Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Missing Something? Seems too easy


Deades

Recommended Posts

Deades Contributor

I am only 7 weeks gluten free and it hasn't been that bad.  I am a silent celiac so I may be glutening myself without knowing it. However, it hasn't been as bad as I thought.  There are a lot of foods I can eat.  When I have had to eat out, I bring my own salad.  At home, whatever I prepare is gluten free.  A friend of mine who had breast cancer a few years back, contracted Parkinson's last year and the. Found out her cancer is back.  It really put this in perspective for me.  I don't have to take pills and deal with side effects, I don't have cancer.  I have to watch my food intake.  I can do it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

Yep, we really have it good when you think about it. The only treatment for us is eating gluten free. No pills, no chemo, no radiation. And there is plenty for us to eat, especially now with so many gluten-free foods on the market that are tasty. Labeling laws make it easier too. 20 years ago, these things were not true and celiacs had to be wary of so much. I am glad to hear you are taking your own food when eating out. Kudos!

Ennis-TX Grand Master
1 hour ago, Deades said:

I am only 7 weeks gluten free and it hasn't been that bad.  I am a silent celiac so I may be glutening myself without knowing it. However, it hasn't been as bad as I thought.  There are a lot of foods I can eat.  When I have had to eat out, I bring my own salad.  At home, whatever I prepare is gluten free.  A friend of mine who had breast cancer a few years back, contracted Parkinson's last year and the. Found out her cancer is back.  It really put this in perspective for me.  I don't have to take pills and deal with side effects, I don't have cancer.  I have to watch my food intake.  I can do it.

Yep I nailed a JAXpac meal prep kit on amazon day and have been leaving my house more with it packing my own gluten-free herbed flat bread, salads, almond butter, and seeds with me. Made a nice vegan  taco soup the other day with my own cheese sauce, keto salsa (watered down low carb version thickened to a sauce with konjac) miracle rice, and jackfruit meat sub, was great with some taco seasoned thin flat breads from my newest recipe used as tortillas. Lifes been good for me this month celiac health wise. >.< everything else is SUPER bad lol.

Gemini Experienced

You shave stumbled onto the biggest secret out there..........the gluten-free diet isn't as horrible as many would have you believe, including the medical profession. There is plenty of good food to eat and the biggest drawback is we have to prepare it ourselves the vast majority of times.  That's the worst part.  :o  And like yourself, I have friends who have much more serious health issues and they do not have the control over theirs as we do over ours. There may be times when you will be faced with temptations you will have to turn away from but you will move on and survive. 

Congratulations on having such a positive attitude!

Dimples Des Newbie

I was diagnosed about 7 weeks ago, and have been gluten-free since. A few slip-ups, mind you, that I paid for. 

I was diagnosed on my symptoms only. However, I understand there is a more definitive diagnosis with a blood test.   Is it recommended that I get this done? 

Thanks. 

Ennis-TX Grand Master
16 minutes ago, Dimples Des said:

I was diagnosed about 7 weeks ago, and have been gluten-free since. A few slip-ups, mind you, that I paid for. 

I was diagnosed on my symptoms only. However, I understand there is a more definitive diagnosis with a blood test.   Is it recommended that I get this done? 

Thanks. 

YES get the blood test and the endoscope done if you can, if your doctor will put the dia. formally on your records without these then your blessed in a way. I had a similar issues getting mine done. You have to be eating gluten for 12 weeks at least a half slice of bread a day for the antibodies to build up for the blood testing, 2 weeks for the damage etc to show up in a endoscope.

squirmingitch Veteran

So to repeat, you will have to do a gluten challenge which is 12 weeks of eating 1 slice of bread per day for the blood tests or 2 weeks of gluten eating for an endoscopy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
9 hours ago, Dimples Des said:

I was diagnosed about 7 weeks ago, and have been gluten-free since. A few slip-ups, mind you, that I paid for. 

I was diagnosed on my symptoms only. However, I understand there is a more definitive diagnosis with a blood test.   Is it recommended that I get this done? 

Thanks. 

Celiac disease is not diagnosed by symptoms alone. Why?  There are over 300 of them and many, if not all, overlap with other autoimmune issues or other illnesses.  Learn more about proper testing:

Open Original Shared Link

I am formally diagnosed.  My hubby is not.  His mis-informed doctors told him 16 years  ago to give up gluten.  It worked, but now we do not really know if he has celiac disease or not.  He will be the first to say that I get WAY more support from family, friends and medical.  

I am sorry at your doctor gave you the wrong advice.  Now, you must decide if testing is worth pursuing.  I wish you well.  

Pegleg84 Collaborator

I also never had a formal diagnosis, but due to symptoms and family history, I do and will always consider myself having Celiac.
As Cyclinglady said, you do want to get some more testing done if possible. If you're unwilling to do a gluten challenge, there may still be traces enough after 7 weeks to come up positive (worth a shot), or other conditions with the same symptoms should also be investigated.

Anyway, back to the OP, yeah! It is that easy! When I went gluten-free 8 years ago I was feeling noticeably better by the end of a week! It took a long time to figure out all gluteny traps you can find yourself in if not careful, but man, if I only had to worry about gluten I would be soooooo happy. Of course, first came dairy, then came soy, then came a few other weirdo things that my body just won't tolerate. But even that just means: if it makes you feel like crud, don't eat it. Simple.

If only the same thing worked for Fibromyalgia (oh! So it isn't gluten making my body cramp up into horrible aches. Good to know)

But yes, it definitely puts things into perspective. It's not cancer. It's not dehabilitating. We don't need to take drugs. We don't even need to eat expensive special food (though a gluten-free baked treat is always needed on occasion). Not so bad.
Keep it up and it will only get better!

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,538
    • Most Online (within 30 mins)
      7,748

    DianeSch
    Newest Member
    DianeSch
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      One avenue you can pursue is to contact the manufacturer of the Augmentin syrup in question and ask that question. The dispensing pharmacy will likely be able to give your the name of the manufacturer and some contact information, though that approach would likely take some time to yield the information you need. My gut feeling (excuse the pun) is that it is pretty unlikely this med will have gluten-containing ingredients. Perhaps another option would be to ask for the drug to be administered IM via injection. I know that scares children but when I was a kid that's how they usually gave antibiotics. I don't think there were so many antibiotics available in pill form back in the 1950s. 
    • Sergiu2020
      I don't know the regulations regarding maltodextrin in my country but i'll  do a research. Anyway i didnt see on any products which contains Maltodextrin to have Gluten or Wheat mention added.  Thanks a lot for your reply. It helped a lot! 👍
    • trents
      Excerpted from the above article: "While USA regulations permit maltodextrin to be made with wheat, it is very rare. Also, maltodextrin made with wheat will be labeled as "wheat maltodextrin" or "maltodextrin (wheat)." Any product that contains wheat should also have 'wheat' listed on the allergen disclosure." If you are not in the USA, the regulations and protocols surrounding maltodextrin mentioned in this article may not apply. You would need to familiarize yourself with your government's food and drug administration regulations that control disclosures relative to allergen's in general and maltodextrin in particular.
    • Sergiu2020
      https://i.postimg.cc/wjGp0qYy/20250129-194549.jpg My 4-year-old daughter started having pain in her right ear yesterday. We went to the ENT doctor today, and he prescribed an antibiotic and ear drops. The prescribed antibiotic is Augmentin syrup (amoxicillin) with a berry flavor (since my daughter has a very hard time taking oral medication, the doctor chose a flavored version). The package insert does not specify whether it contains gluten or not. However, it does mention that it contains maltodextrin. I read somewhere that maltodextrin generally does not contain gluten, but there is a (much lower) risk that it might. The doctor told us it is gluten-free. The pharmacist said the same but didn’t seem very confident. Given that my daughter has celiac disease and that the last time she accidentally consumed gluten, we ended up in the hospital with severe stomach pain, IV fluids, etc., we are afraid to give her the antibiotic, but she needs it.   Does anyone know if Augmentin contains gluten or not? Thank you in advance!
    • trents
      Welcome to the forum, @Sandi20! By "specifically designed for celiac" do you mean gluten free or something more?
×
×
  • Create New...