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Biopsy Results

Jules22

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Jules22 Apprentice
Jules22
Posted

Got the results back--partial villous blunting-definitely celiac.  Now we can move on.

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ravenwoodglass Mentor
ravenwoodglass
Posted

It is good you now have a definate diagnosis and can get busy with the process of healing.  I hope things improve quickly.

cyclinglady Grand Master
cyclinglady
Posted

While I am sad that you received a celiac diagnosis, I can totally relate to knowing where you stand.  Being in diagnostic limboland is so frustrating.  

Here's to a speedy recover!  

Victoria1234 Experienced
Victoria1234
Posted

Good luck with your daughter!

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    • trents
      R there any organizations that help with financial costs of food?

      By trents · Posted

      Moms Across America for one. Here's the article that kicked off long thread and more than one thread on Celiac.com this past summer:  Our community feels the testing needs to be tightened up. As of now, GFCO allows food companies to do self-testing and self-reporting. Testing is also done We strongly believe testing needs to be done more frequently and there needs to be drop in, unannounced testing by the FDA and certification groups.
    • CiCi1021
      R there any organizations that help with financial costs of food?

      By CiCi1021 · Posted

      What celiac watchdog groups have looked into what you mentioned? Thanks.
    • trents
      R there any organizations that help with financial costs of food?

      By trents · Posted

      Welcome to the forum, @CiCi1021! Well, to begin with, most of us have found it isn't necessary to buy a lot of specifically labeled "gluten free" or "Certified Gluten Free" prepackaged food items as long as you are willing and able to cook from scratch. This is especially true since testing by celiac watchdog groups has cast some serious doubt on how consistently food companies are actually meeting gluten free and certified gluten free standards. It's probably just as effective and certainly less expensive to buy naturally gluten free mainline food products such as fresh meat, vegetables and fruit and prepare your own meals. The only major exception to that in my experience is loaf bread. It's very difficult to make your own gluten free bread products and have them come out decent with regard to texture. The major food companies have invested a lot into that component and have come up with some pretty good stuff that's hard to duplicate for yourself.
    • CiCi1021
      R there any organizations that help with financial costs of food?

      By CiCi1021 · Posted

      Struggling with costs of all the special food.  Are there any organizations out there that will assist with costs? 
    • trents
      Should I get a second opinion?

      By trents · Posted

      I would ask the GI doc about the elevated IGA score of 401. That one is what we commonly refer to as "total IGA" and also known as "Immunoglobulin A (IgA)". It could be nothing but it can also indicate some other health issues, some of them serious in nature. I would google potential causes for that if I were you. Also, if there is a chance the GI doc will want to do more testing for celiac disease, either antibody testing or an endoscopy with biopsy, you should not cut back on gluten consumption until all celiac disease testing is done. Otherwise, you will invalidate the testing.
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