Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Suspect my gluten-free granola has just glutened me

FiveSecondWarning

Recommended Posts

FiveSecondWarning Newbie
FiveSecondWarning
Posted

I am usually very wary of oats, but there was a delicious-looking, reassuringly expensive box of granola on sale in a very pukka health food store that said that it contained oats which were gluten-free, so I bought it.  Big sign on box saying contents were gluten-free.  But I've just been glutened after eating a portion of this granola and absolutely nothing else except the milk I added to it.   I was 100% fine before eating.  I am just kicking myself at voluntarily having let myself in for about 48 hrs of feeling lethargic, having an embarrassingly rumbly tummy and knowing I will need the lavvy frequently and very urgently.  Am I unique in this regard?  I find my celiac disease is completely under control so long as I stick to unprocessed foods which I know are gluten-free.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jmg Mentor
Jmg
Posted
18 minutes ago, FiveSecondWarning said:

.  Am I unique in this regard? 

No not at all! I recently treated myself to some gluten free muesli, part of Aldis coeliac month promotion. I don't normall have oats now, at least not in cereal form. Anyway I don't know whether there was some gluten or if I just reacted to the oats but I had a reaction. For me it's typically neurological, so tummy wasn't so bad, but I did kick myself for letting my guard down somewhat. 

Pity because I really enjoyed the muesli and I bought the granola too, though didn't try that after the reaction to the muesli...

Ennis-TX Grand Master
Ennis-TX
Posted
33 minutes ago, Jmg said:

No not at all! I recently treated myself to some gluten free muesli, part of Aldis coeliac month promotion. I don't normall have oats now, at least not in cereal form. Anyway I don't know whether there was some gluten or if I just reacted to the oats but I had a reaction. For me it's typically neurological, so tummy wasn't so bad, but I did kick myself for letting my guard down somewhat. 

Pity because I really enjoyed the muesli and I bought the granola too, though didn't try that after the reaction to the muesli...

First off Aldi is really bad with gluten in gluten free products they had over 4 recalls in the past year for these issues. Second its oats, I love them but they hate me as being one of the 10% that react to them.

THERE are alternatives, Julian Bakery has a sale on Pro Granola right now a oat free granola, UNGranola is another option.

Open Original Shared Link

cyclinglady Grand Master
cyclinglady
Posted

You are NOT unique (well...not in terms of describing your reaction to the granola).  I do best (less risk for exposure) on a whole foods diet too.  You could be reacting to the oats.  Were they certified or dedicated grown oats?  I am sure General Mills is considering or is already selling their mechanically sorted oats to other gluten free suppliers.  This is just a wild guess in my part.  I have no facts, but when I was brainstorming during marketing meetings, we were always trying to think of ways sell some of our by-products to another industry or even our competitors (private labeling).  Maybe General Mills needs to off set their Research and Development costs.   Just sayin.........?

FiveSecondWarning Newbie
FiveSecondWarning
Posted
  • Author

Thanks for feedback, everyone.  Box says 'Made in England' and 'gluten free OATS' highlighted in bold, adding that allergens are in bold.  So I think that's a bit ambiguous as box also says it's certified gluten-free.  Unless you can be a non-coeliac who is allergic to oats...   Don't want to say what brand as I don't think it's fair - I've just gotten rid of all my other unopened boxes of breakfast cereals containing oats and don't want to pick on the manufacturer of the box of cereal which I just happened to open first.

Ennis-TX Grand Master
Ennis-TX
Posted
9 minutes ago, FiveSecondWarning said:

Thanks for feedback, everyone.  Box says 'Made in England' and 'gluten free OATS' highlighted in bold, adding that allergens are in bold.  So I think that's a bit ambiguous as box also says it's certified gluten-free.  Unless you can be a non-coeliac who is allergic to oats...   Don't want to say what brand as I don't think it's fair - I've just gotten rid of all my other unopened boxes of breakfast cereals containing oats and don't want to pick on the manufacturer of the box of cereal which I just happened to open first.

10% of celiacs react to oats in a very similar fashion to gluten. EVEN if gluten free. I get the the rumblys and minor nerve/brain fog if I even get a bit of CC from oats. I used to use gluten-free harvest oats, they triple check their oats, have their own dedicated farms, and the company is owned by a celiac family.  I had to stop using them even in my bakery due to reaction issues.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,271
    • Most Online (within 30 mins)
      7,748
    Clare Hawkings-Byass
    Newest Member
    Clare Hawkings-Byass
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      any advice would be helpful

      By knitty kitty · Posted

      @Jane07, welcome to the forum! Have you been checked for nutritional deficiencies?  Malabsorption of essential nutrients is common in Celiac Disease.  Supplementing with vitamins and minerals that are commonly low in the newly diagnosed can help immensely with recovery.   Vitamin D is frequently low.  Vitamin D helps regulate the immune system and calm it down.  The eight essential B vitamins help repair and maintain our body's health.  Magnesium, calcium, zinc and other minerals are necessary, too.  Vitamin C helps, as well.  Benfotiamine, A form of Thiamine, has been shown to promote intestinal healing. Are you still consuming dairy?  Eliminating dairy may bring some improvements.  Have you tried the low histamine Autoimmune Protocol diet?  Developed by a Celiac, Dr. Sarah Ballantyne, the AIP diet can improve symptoms while healing.  
    • knitty kitty
      What would a diagnosis tell me?

      By knitty kitty · Posted

      Welcome to the forum! A blood test for Celiac looks for the amount of antibodies your body is producing in response to gluten.  An endoscopy looks at the damage done by the antibodies attacking the villi lining the intestines.   When you have a cold or infection, antibodies are made that attack the foreign invader.  In Celiac Disease, our immune system recognizes gluten as a foreign invader and launches antibodies against it.  However, the gluten particles resembles the same structural components in our body cells.  As a result, the anti gluten antibodies attack our own cells, causing damage like flattening villi in the intestines and also potentially attacking vital organs like the thyroid, the pancreas, the brain, and the heart.   Gluten itself does not stay in the body for years.  The anti gluten antibodies stay in the body for years.  Our bodies remember gluten and continue making antibodies against gluten which continue to damage our bodies for years.  Eventually, if not triggered by gluten ingestion for two years or longer, our bodies may go into remission and stop producing the antibodies and thus end the inflammation and damage. You should be afraid.  You should be very afraid.  Consuming gluten accidentally or intentionally can start the while cycle over again from the beginning.  And getting to that state of remission again can take years.   A dietician or a nutritionist can advise you on how to start and sustain a gluten free diet while meeting your nutritional requirements.  We need essential vitamins and minerals to heal and maintain our health.  The gluten free diet can be lacking in essential nutrients unless we eat mindfully.  A nutritionist can teach us which foods will help us meet our nutritional requirements, and help us correct nutritional deficiencies with vitamin and mineral supplements.  
    • cristiana
      UK Member Looking For Help - Recent Test

      By cristiana · Posted

      @LeeRoy83    Hello again.  Picking up on something else you said re: the shock that you may be a coeliac. It may has come as a shock to learn that coeliac disease is a possibility, but if that is the case, although it can be at times a bit of a nuisance not to be able to eat gluten anymore, it has been my experience that most of my friends and acquaintances who have it have adapted to it well, and are thriving.  Although statistically it affects 1 in a 100 people, I know more than that, strangely, so I can see first hand how the diet can make a big difference for most people. In the UK we are blessed with a wonderful selection of gluten free food on sale in the shops, which seems to be ever-increasing, well labelled food packaging making it easier to determine if food contains gluten, a fabulous charity called Coeliac UK who provide a lot of very helpful information, including a gluten free food app and guide that you can take shopping with you, and good follow-up care provided by the NHS.   But that's for another day - IF you have indeed got Coeliac Disease.   Do meet up with your GP, take a list of questions to ask, and then if he wants you to take the coeliac diagnosis a step forward do let us know if we can be of help  - we can walk with you every step of the way. Cristiana
    • trents
      Elimination diet think I may be Gluten tolerant next steps to get tested? Questions

      By trents · Posted

      No. That is, unless the dietician themself has a gluten disorder or is managing a close family member who does and therefore is immersed in it daily so as to be up on the nuances of eating gluten free. Otherwise, they just give you very general information which you can get online.  
    • trents
      UK Member Looking For Help - Recent Test

      By trents · Posted

      Yes, a very cryptic and uninformative lab result report indeed! But it does seem like this is typical for the UK. It's almost like the "professionals" in that healthcare system don't want you to try and figure anything out for yourself.
×
×
  • Create New...