Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Suspect my gluten-free granola has just glutened me


FiveSecondWarning

Recommended Posts

FiveSecondWarning Newbie

I am usually very wary of oats, but there was a delicious-looking, reassuringly expensive box of granola on sale in a very pukka health food store that said that it contained oats which were gluten-free, so I bought it.  Big sign on box saying contents were gluten-free.  But I've just been glutened after eating a portion of this granola and absolutely nothing else except the milk I added to it.   I was 100% fine before eating.  I am just kicking myself at voluntarily having let myself in for about 48 hrs of feeling lethargic, having an embarrassingly rumbly tummy and knowing I will need the lavvy frequently and very urgently.  Am I unique in this regard?  I find my celiac disease is completely under control so long as I stick to unprocessed foods which I know are gluten-free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jmg Mentor
18 minutes ago, FiveSecondWarning said:

.  Am I unique in this regard? 

No not at all! I recently treated myself to some gluten free muesli, part of Aldis coeliac month promotion. I don't normall have oats now, at least not in cereal form. Anyway I don't know whether there was some gluten or if I just reacted to the oats but I had a reaction. For me it's typically neurological, so tummy wasn't so bad, but I did kick myself for letting my guard down somewhat. 

Pity because I really enjoyed the muesli and I bought the granola too, though didn't try that after the reaction to the muesli...

Ennis-TX Grand Master
33 minutes ago, Jmg said:

No not at all! I recently treated myself to some gluten free muesli, part of Aldis coeliac month promotion. I don't normall have oats now, at least not in cereal form. Anyway I don't know whether there was some gluten or if I just reacted to the oats but I had a reaction. For me it's typically neurological, so tummy wasn't so bad, but I did kick myself for letting my guard down somewhat. 

Pity because I really enjoyed the muesli and I bought the granola too, though didn't try that after the reaction to the muesli...

First off Aldi is really bad with gluten in gluten free products they had over 4 recalls in the past year for these issues. Second its oats, I love them but they hate me as being one of the 10% that react to them.

THERE are alternatives, Julian Bakery has a sale on Pro Granola right now a oat free granola, UNGranola is another option.

Open Original Shared Link

cyclinglady Grand Master

You are NOT unique (well...not in terms of describing your reaction to the granola).  I do best (less risk for exposure) on a whole foods diet too.  You could be reacting to the oats.  Were they certified or dedicated grown oats?  I am sure General Mills is considering or is already selling their mechanically sorted oats to other gluten free suppliers.  This is just a wild guess in my part.  I have no facts, but when I was brainstorming during marketing meetings, we were always trying to think of ways sell some of our by-products to another industry or even our competitors (private labeling).  Maybe General Mills needs to off set their Research and Development costs.   Just sayin.........?

FiveSecondWarning Newbie

Thanks for feedback, everyone.  Box says 'Made in England' and 'gluten free OATS' highlighted in bold, adding that allergens are in bold.  So I think that's a bit ambiguous as box also says it's certified gluten-free.  Unless you can be a non-coeliac who is allergic to oats...   Don't want to say what brand as I don't think it's fair - I've just gotten rid of all my other unopened boxes of breakfast cereals containing oats and don't want to pick on the manufacturer of the box of cereal which I just happened to open first.

Ennis-TX Grand Master
9 minutes ago, FiveSecondWarning said:

Thanks for feedback, everyone.  Box says 'Made in England' and 'gluten free OATS' highlighted in bold, adding that allergens are in bold.  So I think that's a bit ambiguous as box also says it's certified gluten-free.  Unless you can be a non-coeliac who is allergic to oats...   Don't want to say what brand as I don't think it's fair - I've just gotten rid of all my other unopened boxes of breakfast cereals containing oats and don't want to pick on the manufacturer of the box of cereal which I just happened to open first.

10% of celiacs react to oats in a very similar fashion to gluten. EVEN if gluten free. I get the the rumblys and minor nerve/brain fog if I even get a bit of CC from oats. I used to use gluten-free harvest oats, they triple check their oats, have their own dedicated farms, and the company is owned by a celiac family.  I had to stop using them even in my bakery due to reaction issues.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,141
    • Most Online (within 30 mins)
      7,748

    Meghan W
    Newest Member
    Meghan W
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • MHavoc
      Thank you all for the reply posts.  Yes, the constipation has abated.  I am not sure whether its due to having changed to a gluten-free diet or not, but I do think that there is a reasonable correlation.  I know that I will get over this eventually, but I am finding it hard not to lament missing all of my favorite foods that contain gluten.  Certainly, my health comes first... I guess I never realized how many things contain some element of wheat.  My sister has been living with celiac disease for most of her life, so I have someone who will share her favorite recipes. The next step for me will be my appointment with a Gastroenterologist for the Celiac Team... I hope everyone has a safe and wonderful Thanksgiving!
    • sh00148
      Thank you. That’s all really helpful. I think it must have been something she ate as the poo colour has settled now.    Starting to see improvements in her tummy, slowly but surely!
    • Yaya
      I take all vitamins and supplements.  My cardiologist has me taking B12 5,000 once per weeks.  He gives me complete blood work every 6 months.  He's still building my D levels which is now in 60s.  He wants them in low 80s.  I take 5,000 IU's daily.  With this dosage I've gone from 42 to 65 over a period of about 5 years.  It builds very slowly.   As far as iron, I take a double dose of gentle iron with C on an empty stomach on alternate nights.  Yes, iron is a component for many of us with RLS, but mostly "brain iron" that in some people may require iron transfusions.   
    • trents
      The positive DGP-IGA indicates the possibility of celiac disease. It is typical for someone who does have celiac disease to have some antibody tests be negative and others positive. This is not unique to celiac disease diagnosis. It is why doctors typically run many tests when seeking diagnosis of a suspected disease.  The DGP-IgA test is considered to have high sensitivity and specificity. In general, the DGP-IgA test has been reported to have a sensitivity ranging from 75% to 95% and a specificity ranging from 90% to 100%. Overall, the DGP tests, including DGP-IgA and DGP-IgG, exhibit a sensitivity of approximately 85-95% and a specificity of about 95-98%. The above paragraph is taken from this article which gives an overview of the various tests that can be run for celiac disease and their reliability: What symptoms are you experiencing?
    • trents
      Check Costco's store brand.
×
×
  • Create New...