Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kids tested, how will I know


Deades

Recommended Posts

Deades Contributor

Because I have celiac, my kids were tested today.  I never had the blood test, went straight to the endoscope.  Doctor was looking for something else and happened on a damaged small intestine.  I have no physical symptoms and neither do my kids (ages 21 and 19).  What am I looking for in the blood tests?  Our doctor had them run the full celiac blood panel.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tessa25 Rising Star

You're looking for a high on any one blood test. which would lead to an endoscopy/biopsies being done by a gastroenterologist. Must be eating gluten until all testing is done. 12 weeks of eating gluten before blood tests.

cyclinglady Grand Master
4 hours ago, Deades said:

Because I have celiac, my kids were tested today.  I never had the blood test, went straight to the endoscope.  Doctor was looking for something else and happened on a damaged small intestine.  I have no physical symptoms and neither do my kids (ages 21 and 19).  What am I looking for in the blood tests?  Our doctor had them run the full celiac blood panel.

Since I presented with anemia, I had my doctor check my daughter for it when they ran her celiac panel.   My anemia made me very tired and out of breath.  Tessa is right, anything out of range is suspect.  Highs on the celiac antibodies tests (EMA, DGP, TTG).  A low on the control test (IgA deficiency/Immunoglobulin  can invalidate the IgA celiac antibodies tests.  

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,091
    • Most Online (within 30 mins)
      7,748

    Michelle24077
    Newest Member
    Michelle24077
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kiwifruit
    • trents
      Thanks for following up with us on the results. This might be helpful to you now:  
    • Kiwifruit
      Hi I just wanted to update you all and let you know that I finally have my diagnosis. 2 weeks ago I had my third gastroscopy and the biopsy confirmed the damage. Thank you for giving me the information I needed to advocate for myself when I a was a feeling so lost!
    • Scott Adams
      I agree that the gastritis may go away after you've been on a gluten-free diet for a while. If you are concerned, it might make sense for you to do a follow up biopsy after  a year or so on a gluten-free diet. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Getting tested for celiac disease is a valid concern, especially given your history of microscopic colitis and the potential risks associated with undiagnosed celiac disease, such as cross-contamination, nutrient malabsorption, and increased cancer risk. Since you’ve been gluten-free for years, reintroducing gluten for the standard celiac blood tests or endoscopy would be challenging, as it requires consuming gluten for several weeks to months, which could worsen your symptoms and disrupt your daily life. Gene testing (HLA-DQ2 and HLA-DQ8) through a lab like EnteroLab could be a helpful first step. While these genes are present in nearly all celiac patients, having them doesn’t confirm celiac disease—it only indicates genetic susceptibility. If you don’t have these genes, celiac disease is highly unlikely, which could provide some peace of mind. However, if you do have the genes, it doesn’t confirm celiac disease but suggests further testing might be warranted if you’re willing to undergo a gluten challenge. Another option is to discuss with your doctor whether a follow-up endoscopy or other non-invasive tests (like stool tests for gluten antibodies) could provide insights without requiring a gluten challenge. While a formal celiac diagnosis can be important for ensuring strict dietary adherence, access to gluten-free options in hospitals, and monitoring for complications, it’s also worth weighing the risks and benefits of reintroducing gluten. If you’re already strictly gluten-free and managing your symptoms well, the urgency of a formal diagnosis may depend on your personal health goals and concerns. Consulting a gastroenterologist familiar with celiac disease and Microscopic Colitis can help guide your decision.
×
×
  • Create New...