Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Evolving Symtoms


Ennis-TX

Recommended Posts

Ennis-TX Grand Master

I was working at a anime convention this weekend setting up and running A/V for panel rooms, I know I was handling a bunch of stuff, and around gluten eaters EVERYWHERE, people were walking around eating stuff, and I had to work with equipment others were using while snacking on gluten foods.....and one meal I went and fixed in my room I rushed and did not wash my hands....I got glutened from touch CC, but I was not vomiting like I normally would, either not enough there or perhaps it changed again. I instead about a hour later started zoning out and having brain fog, loopy thoughts repeating, anxiety, heighten pulse up to 183bpm then a hour later EXTREME gut pain to the point of tears. pulse drop to the 30s and I had to sleep it off, and since then I have had extreme constipation, NO feeling in my hands (I pulled a pan from the oven this morning...no cup towel), and I noticed I have red splotches on my face? NEVER seen this, I also have little pimples on my back and chest....NOT seen these since I was a kid.....oddest thing was NO swollen lymp, NO D, and NO vomiting.....the ever evolving celiac response I guess.......I almost questioned if it was gluten, but the numbness, and C is a SURE sign for me of CC in the smallest of amounts....the extreme of it right now tells me I was glutened by a decent amount.

 

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jmg Mentor
1 hour ago, Ennis_TX said:

I was working at a anime convention this weekend setting up and running A/V for panel rooms, I know I was handling a bunch of stuff, and around gluten eaters EVERYWHERE, people were walking around eating stuff, and I had to work with equipment others were using while snacking on gluten foods.....and one meal I went and fixed in my room I rushed and did not wash my hands....I got glutened from touch CC, but I was not vomiting like I normally would, either not enough there or perhaps it changed again. I instead about a hour later started zoning out and having brain fog, loopy thoughts repeating, anxiety, heighten pulse up to 183bpm then a hour later EXTREME gut pain to the point of tears. pulse drop to the 30s and I had to sleep it off, and since then I have had extreme constipation, NO feeling in my hands (I pulled a pan from the oven this morning...no cup towel), and I noticed I have red splotches on my face? NEVER seen this, I also have little pimples on my back and chest....NOT seen these since I was a kid.....oddest thing was NO swollen lymp, NO D, and NO vomiting.....the ever evolving celiac response I guess.......I almost questioned if it was gluten, but the numbness, and C is a SURE sign for me of CC in the smallest of amounts....the extreme of it right now tells me I was glutened by a decent amount.

 

Ouch. Sorry to hear this, you've been so careful. I wonder if it's related to a particular kind of gluten? I find I react differently to barley malt than wheat gluten, perhaps you've been CC'ed by a relatively unusual form?

I do find my reactions changing over time. I recently got a rash along my bicep and now have a swollen lymph which I think is down to CC.  I'd not had a rash there before, so maybe my responses are changing too.

Hope you're feeling better soon and that you managed to enjoy at least some of the convention. 

Link to comment
Share on other sites
Ennis-TX Grand Master
2 hours ago, Jmg said:

Ouch. Sorry to hear this, you've been so careful. I wonder if it's related to a particular kind of gluten? I find I react differently to barley malt than wheat gluten, perhaps you've been CC'ed by a relatively unusual form?

I do find my reactions changing over time. I recently got a rash along my bicep and now have a swollen lymph which I think is down to CC.  I'd not had a rash there before, so maybe my responses are changing too.

Hope you're feeling better soon and that you managed to enjoy at least some of the convention. 

The con was bad for me this year, over worked, poisoned, forgot medications, bed ridden, had a room mate cancel and I was stuck with a huge bill....yeah no fun at all I even left early.

OH and hoping I get better....thanks but I JUST glutened myself like a idiot I know it, just waiting for it to hit. I made some salsa with chorizo seasoning for a chorizo flavored salsa and took a sample to my dad.....after he tried it used the EXACT same sample spoon to double check it myself, then it hit me, and I asked when and what he last ate, was toast less then 4 hours ago....so yeah pretty sure I just screwed myself.

Link to comment
Share on other sites
Jmg Mentor
1 hour ago, Ennis_TX said:

The con was bad for me this year, over worked, poisoned, forgot medications, bed ridden, had a room mate cancel and I was stuck with a huge bill....yeah no fun at all I even left early.

That sucks :( I know you'd been looking forward to it. 

1 hour ago, Ennis_TX said:

so yeah pretty sure I just screwed myself.

Well until you know you have try and forget about it and maybe you got lucky. You're due some good luck I think!

Link to comment
Share on other sites
Victoria1234 Experienced
4 hours ago, Ennis_TX said:

The con was bad for me this year, over worked, poisoned, forgot medications, bed ridden, had a room mate cancel and I was stuck with a huge bill....yeah no fun at all I even left early.

OH and hoping I get better....thanks but I JUST glutened myself like a idiot I know it, just waiting for it to hit. I made some salsa with chorizo seasoning for a chorizo flavored salsa and took a sample to my dad.....after he tried it used the EXACT same sample spoon to double check it myself, then it hit me, and I asked when and what he last ate, was toast less then 4 hours ago....so yeah pretty sure I just screwed myself.

That's terrible. I've been wondering why you haven't been around last few days. I Should have remembered your con. I'm so sorry it wasn't what you were hoping for. We all tend to make mistakes when we're excited about stuff, makes our brains go a bit wonky.

hope your dads mouth wasn't dirty anymore. Good luck to you. You are missed here!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to hilly's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Extreme bloating even gluten-free

    2. - hilly posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Extreme bloating even gluten-free

    3. - Scott Adams replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Shaking/Tremors and Off Balance

    4. - cristiana replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Shaking/Tremors and Off Balance

    5. - Ginger38 replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Shaking/Tremors and Off Balance


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      124,667
    • Most Online (within 30 mins)
      7,748

    Schellee94
    Newest Member
    Schellee94
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.7k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Some studies, with admittedly small sample sizes, show that about 50% of celiacs react to the protein casein in dairy the same way they do gluten. Can't find the NIH article I'm looking for but this one basically makes the point:   
    • hilly
      I was diagnosed in April. I have been very careful about being gluten-free, except for one accident in August where I ate candy with wheat. Despite being careful, I still experience extreme painful bloating almost daily. I'm so frustrated. I stopped eating gluten-free oats because I wondered if that was it. Now I am wondering if is dairy. I'm already tired of constantly wondering if I messed up.
    • Scott Adams
      In general I'm all for a formal diagnosis, except in cases where someone gets very sick when they eat gluten, and have already been on a gluten-free diet for a long time and don't plan to eat it again anyway. There seems to be more drawbacks that keep popping up with being formally diagnosed--at least here in the USA. I can testify that it's definitely harder to obtain life insurance, and if you can get it the premiums are quite a bit higher than if I did not have it, at least from my fairly recent experience when getting a new policy.  @Ginger38 you're very close to the end of your challenge, so let us know how it turns out.
    • cristiana
      Just to add something here... if any people in the UK are reading this, there can be definite advantages if you are formally diagnosed coeliac,  in terms of getting extra support from the NHS.  For free you get to see a nutritionist, additional vaccinations if deemed necessary, in some areas prescriptions for gluten free food; bone density scans, annual blood tests and reviews with a gastroenterologist, plus it has been my experience I've been able to see a gastroenterologist without a GP's re-referral when I've had complications.  That said, I don't know what impact there would be on health insurance; but I have found that when it comes to travel insurance I have had to declare it but it hasn't made any difference to the premium. However, I realise things can be very different in other parts of the world, and I am not sure where you are from, @Ginger38  
    • Ginger38
      Yes I figured out I couldn’t have gluten years ago when I was symptomatic and tested positive, but was misinformed and told I couldn’t have celiac but to go gluten free. I was already gluten free. I was never willing to go back on gluten and make myself so sick to have the biopsy especially when the biopsy isn’t 💯. But Now I have to have a procedure anyway and he told me he was doing the biopsy either way .. but I should consider the gluten challenge since I have never had the biopsy. He acted like it was super important to have this on paper.  I had no idea there were any possible negative drawbacks to having a formal diagnosis 🤦🏼‍♀️
×
×
  • Create New...