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News: Celiac.com: The Lancet on Celiac Disease

Scott Adams

By Scott Adams
in Publications & Publicity

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Scott Adams Grand Master
Scott Adams
Posted

Understanding Celiac Disease. What is Celiac Disease? ... New York Golf Outing 8-31-17 · Sip & Savor: A Gluten-Free Experience 10-14-17.

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    • Scott Adams
      Pretty desperate for some guidance

      By Scott Adams · Posted

      I can understand your decision, and if he ends up having the celiac disease genes, and his symptoms go away on a gluten-free diet, at the very least you can likely conclude that he has NCGS and possibly even celiac disease, although you can be certain about the latter.  Actually he could still have NCGS without any genetic markers for celiac disease. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. There can be some negative consequences with a formal diagnosis, for example it is included as a disability now on most job applications, life insurance can be more expensive and harder to get, and depending on what changes are made to the ADA over the next few years it is possible that those with pre-existing conditions could be penalized.    
    • trents
      Pretty desperate for some guidance

      By trents · Posted

      Although genetic testing cannot be used as a stand alone diagnostic measure, it can serve as corroborative evidence to support a diagnosis of celiac disease when considered together with symptoms, particularly when withdrawal of gluten results in dramatic improvement in symptoms. This may be the best course of action in cases where health risks make the gluten challenge inadvisable. Some physicians are open to declaring a celiac diagnosis on this basis.
    • Scott Adams
      Help with blood test result

      By Scott Adams · Posted

      Is it possible you overlooked the results of your tTg-IgA test results? It looks like you might have only shared with us one part of your test results. 
    • Pua
      Pretty desperate for some guidance

      By Pua · Posted

      Thanks for the numbers. Yes I understand and I don’t know if I would do it. All I know is whatever my dad and I have attacks the whole body and once I cut gluten out everything heals. My son is doing so much better so I’m going to keep doing that. I don’t see the need to gluten him just to get an official diagnosis and go through what I did. 
    • trents
      Help with blood test result

      By trents · Posted

      Welcome to the forum, @gemknorodo! In your post you actually mention two antibody tests that are commonly run when checking for celiac disease. The first is the TG-IgA. You do not give a score for that one. The second one is the Immunoglobulin A for which you scored 3.06. This is above the normal range. This test is also commonly known as "total IGA". What you need to know is that it is not a test that detects celiac disease per se. It is used to determine if the person being tested is IGA deficient. IGA deficiency results in inaccurate scores for the IGA tests that are used to detect celiac disease such as the TG IgA. IGA deficiency depresses the other IGA scores and so, it can cause false negatives. In your case, you are not IGA deficient so that is not an issue for you. In case you are wondering, I do not know that there is any particular significance or health risks associated with higher than normal total IGA. But that is something you can ask your physician. Here is an article that outlines the various tests that can be run when checking for celiac disease: There are other IGA tests that can be run when checking for celiac disease and there are also IGG tests that can be run to check for celiac disease. You might talk to your physician about having a more complete "celiac panel" run. Your physician might also want to refer you to a gastroenterologist who might do more extensive antibody panel or even an endoscopy with a biopsy to check for the damage to the small bowel lining caused by celiac disease. May we ask what symptoms you are experiencing? What has led up to you being tested for celiac disease?
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