Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiacs test negative.

Baz-781

Recommended Posts

Baz-781 Rookie
Baz-781
Posted

Hi, i dont know where to start im actually glad i came across this website it's great and dare i say it's actually giving me a bit of hope. To start off im 20 years old my symptoms started when i hit puberty round about that time anway. I was actually going through a really dark time in my life, anway my start of symptoms was excessive sweatimg, then really bad stomach pain. Which lead to a downward  sprial i went to my gp and i kid you not he ram his hands over my stomach and said "you have ibs" I believed he gave me some pills on sent me on my way the pills didn't do nothing for me. So a few years i went to him again and i had to see a different gp due to him not being in. The new gp told me that i had previos blood tests which indicated well he said in his own words "you tested abit postive for gluten intolerance" i was actually really angry but i was also filled with joy thinking to my self after all these years of suffering maybe thats what it was so he told me to retake some blood tests for gluten intolerance and see what happens well they back negative im just so lost in life right now my depressiom is so severe he told me i had vitamin d defficancy amd low folate levels but i know their is a problem with my bowels i just dont know what to actually do my lifes a mess i dont know maybe you guys could gove me some advice i have scalp problems acid reflux facial skin problems acne my bowles vary constipation/loosestools. Everything links to gluten intolerance so i dont know what to do.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jmg Mentor
Jmg
Posted

Hi and welcome :)

1 hour ago, Baz-781 said:

Everything links to gluten intolerance so i dont know what to do.

Do you have copies of the tests? Post them if so, there are several different tests and some only test positive for one of them. You could find out that not all tests were ran.

However even if the tests were negative gluten could still be a problem for you. It is for me. I went through testing convinced it would be positive.

You have a couple of options. You can pursue the test results and possibly further testing. Or you can trial the gluten free diet and see how your body responds to removing it. I would only do the second one once your sure you're not getting any more tests at the moment though. 

So, find the test results if you can. Speak to your doctor about the previous weak positive - that's a very strong indicator that you have an issue. See if you can be referred to a gastroenterologist. If you draw a blank along the medical route start a food diary and remove gluten and see what effect it has. 

Best of luck :)

 

 

  • 1 month later...
Baz-781 Rookie
Baz-781
Posted
  • Author
On 8/22/2017 at 11:12 PM, Jmg said:

Hi and welcome :)

Do you have copies of the tests? Post them if so, there are several different tests and some only test positive for one of them. You could find out that not all tests were ran.

However even if the tests were negative gluten could still be a problem for you. It is for me. I went through testing convinced it would be positive.

You have a couple of options. You can pursue the test results and possibly further testing. Or you can trial the gluten free diet and see how your body responds to removing it. I would only do the second one once your sure you're not getting any more tests at the moment though. 

So, find the test results if you can. Speak to your doctor about the previous weak positive - that's a very strong indicator that you have an issue. See if you can be referred to a gastroenterologist. If you draw a blank along the medical route start a food diary and remove gluten and see what effect it has. 

Best of luck :)

 

 

Hi I apologize for the late reply i really do, i grabbed my most recent test results and the ones dating back to 2013 could you help I haven't a clue of what to post many thanks.

Jmg Mentor
Jmg
Posted
1 hour ago, Baz-781 said:

Hi I apologize for the late reply i really do, i grabbed my most recent test results and the ones dating back to 2013 could you help I haven't a clue of what to post many thanks.

No problem :)

If you look at the results they will typically name the test, provide a range guide which shows what a normal or abnormal result will be then provide the result itself. Of course different labs have different layouts. Here's a sample one Open Original Shared Link yours may differ.

The important info is the test, eg TTG DGP etc. the range and the results. There may be some comments on there as well.

 

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods

      I'm a little confused. In your second post you said, "but these symptoms have been ongoing for a long time before the pregnancy" while in your most recent post you say, "I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea...
    2. Maura Gissen
      - Maura Gissen replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods

      They did. I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea. This is what makes me believe it's food related. I do check all of my food products and supplements and I am very careful about them being gluten free...
    3. trents
      - trents replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods

      Did the symptoms commence after you discontinued the AIP diet? Have you checked all nutritional supplements and oral hygiene products for possible gluten content? Have you recently checked all the labels of purchased processed foods in your pantry to check for formulation changes that might have introduced gluten? Historically, when "glutened" did...
    4. Maura Gissen
      - Maura Gissen replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods

      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again?
    5. trents
      - trents replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods

      Welcome to the forum, @Maura Gissen! Don't those same symptoms often come along with the territory when pregnant? And then throw in Hashimoto's. Have you had your celiac antibody levels checked recently?
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,979
    • Most Online (within 30 mins)
      7,748
    Sam777
    Newest Member
    Sam777
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Autoimmune Reaction to SO many foods

      By trents · Posted

      I'm a little confused. In your second post you said, "but these symptoms have been ongoing for a long time before the pregnancy" while in your most recent post you say, "I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea." CBC = Complete Blood Count. This is the typical bloodwork most people would have done routinely with an annual wellness checkup. I would include things like iron levels, various blood cell counts including reds and whites and other infection fighters. CMP = Complete Metabolic Panel. This would measure things like blood sugar, kidney and liver function, plasma proteins and various enzymes. Non cellular things that the body produces. Also typical of an annual wellness check. Have you tried cutting out dairy and oats? These two are the most common cross reactors in the celiac community. I know it must be tough trying to get adequate calories and nutrition when you are pregnant while at the same time eliminating foods that are good sources of those things.
    • Maura Gissen
      Autoimmune Reaction to SO many foods

      By Maura Gissen · Posted

      They did. I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea. This is what makes me believe it's food related.  I do check all of my food products and supplements and I am very careful about them being gluten free and trying to stay away from corn starch etc. However, I am eating gluten free breads that sometimes have rice flour, yeast, etc. - I seem to do fine with these breads/bread products some days, but then am sick other days.  I have never really had any GI symptoms outside of bloating. My symptoms are dizziness, brain fog, and a general feeling of unwellness or malaise, sort of like when you're going to get the flu.  I have had a lot of bloodwork done over the last three years, but I don't recall doing the CBC, CMP, or a celiac-specific test recently. That's helpful so that could at least provide some insight to see if I'm still being exposed.  Do you see most individual with celiacs having to take a period of time away from even gluten free breads and other cross-reactive foods to let their guts heal? I'm not sure how restrictive to get with my diet again since it's so challenging. 
    • trents
      Autoimmune Reaction to SO many foods

      By trents · Posted

      Did the symptoms commence after you discontinued the AIP diet? Have you checked all nutritional supplements and oral hygiene products for possible gluten content? Have you recently checked all the labels of purchased processed foods in your pantry to check for formulation changes that might have introduced gluten? Historically, when "glutened" did you have GI symptoms or were you a "silent" celiac whose symptoms were non GI. Is what you are experiencing now like what you were experiencing at the time of diagnosis? Have you had recent blood work done (CBC and CMP) and if so, were there any parameters out of norm? I know you have Hashimoto's but you say that is well controlled now? It certainly wouldn't hurt to get celiac antibodies rechecked. Because you are essentially gluten free I would not expect to see any big departures from normal levels but if there are even weak positives it could indicate you are getting glutened from some unexpected source.
    • Maura Gissen
      Autoimmune Reaction to SO many foods

      By Maura Gissen · Posted

      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again? 
    • trents
      Autoimmune Reaction to SO many foods

      By trents · Posted

      Welcome to the forum, @Maura Gissen! Don't those same symptoms often come along with the territory when pregnant? And then throw in Hashimoto's.  Have you had your celiac antibody levels checked recently?
×
×
  • Create New...