Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Both kids NEGATIVE!!!!!!!!!!!


Deades

Recommended Posts

Deades Contributor

I am so excited for my kids (ages 21 and 19).  They had the blood test and it was negative for both. So happy for them.  However, we know it may be dormant and can appear any time.  Mine was dormant until last year.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
3 hours ago, Deades said:

I am so excited for my kids (ages 21 and 19).  They had the blood test and it was negative for both. So happy for them.  However, we know it may be dormant and can appear any time.  Mine was dormant until last year.

My boys are 21 and 24.  They have tested negative before, but if symptoms arise, they get tested.  One had some symptoms And tested -  it was negative.  Worked out the problem - not Celiac.

But it is good for them to keep it in mind. 

 

ravenwoodglass Mentor

That's great news. Good they know to retest if any symptoms pop up down the line. If and when they do develop celiac they will have you to help them with the ins and out of staying safe. Hope you are healing well and feeling better.

TexasJen Collaborator

Yay! My kids are negative too. I am going to have them screened every 2 years while they are still growing. I don't want to wait until they are not growing to diagnose it. (By then, they probably would have had it for 2-3 years, esp since 50% don't have typical symptoms). Of course, if they develop symptoms, I'll have them retested sooner. 

I think the current guidelines say screen first degree relatives every 2-3 years or if symptoms develop. However, I was only diagnosed last year, and there were no guidelines at that time. My pedi called a very well respected pedi GI and he made his "best guess" at the time.  I think the recommendations on screening relative will be changing over the next 5-10 years

 

squirmingitch Veteran

Hooray, hooray! Great news! 

cyclinglady Grand Master

Congrats!  My kid tested normal too.  She will get re-tested if symptoms develop.  Our doctor also checked her thyroid and anemia issues too, since that was how I presented.  

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to Mimiof2's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      9

      EDG 3 years ago fine, now it shows focal villous blunting,

    2. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      361

      Terrible Neurological Symptoms

    3. - Aretaeus Cappadocia replied to HectorConvector's topic in Related Issues & Disorders
      361

      Terrible Neurological Symptoms

    4. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      361

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,073
    • Most Online (within 30 mins)
      10,442

    Liley
    Newest Member
    Liley
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
    • Aretaeus Cappadocia
      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
    • HectorConvector
      I had MRI scan a few years ago showing everything normal, and now it's no longer triggering the nerve pain when I bow my head today - it only seemed to happen yesterday, and that was the only time it happened! Just seemed weird as no movement has caused my usual nerve pain before. It's normally just random.
×
×
  • Create New...