Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trying gluten free diet

HARRYE10

Recommended Posts

HARRYE10 Rookie
HARRYE10
Posted

I have been tested for coeliac (ttg blood test) and twice it has come back negative and so my GI has said that I don't have coeliac disease and have IBS. However I am still suspicious as my grandmother was a coeliac and I am exhibiting many of the symptoms and so I'm not sure why the GI was so quick to dismiss it. As the doctors and specialist are no help I am trying a gluten free diet. I have been off gluten since Wednesday night but I still haven't been feeling right. The bloating I was having seems to have stopped but I am still having abnormal stools and some stomach cramps. I have also been having some bad tension headaches and light-headedness since then and I was wondering - is this a type of withdrawal symptom? Has anyone else had this? Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gluten-free-01 Enthusiast
Gluten-free-01
Posted

I’m in a similar situation. My blood tests were negative, but I have symptoms that are related to gluten consumption. And I also have a family member (blood relative) who has celiac. I don’t rely on the tests because I’d already been off gluten for approx. 2 weeks prior to testing. Thanks to this forum, I’ve found out that many people make this mistake.  

Well, I’d be happier if I had an official diagnosis.. maybe I could have it if I did a gluten challenge.. but I don’t really want to do it. I’d say the diet is not a problem for me as I’m not tempted to cheat and I like cooking so that makes things easy :)  

As for the withdrawal symptoms.. yes I’ve had stomach cramps, headaches and lightheadedness too. My headaches/migraines have almost disappeared.  I still feel lightheaded though.. feel like I’m on drugs most of the time.. haven’t figured that out :)

2 hours ago, HARRYE10 said:

I have been off gluten since Wednesday night but I still haven't been feeling right.

It’s been 5 days. Withdrawal symptoms can last for weeks – be patient :)

Good luck :)

 

Feeneyja Collaborator
Feeneyja
Posted

Just want to chime in that I too was negative (8 week gluten challenge, I had bee gluten free for two years for my daughter who is also gluten intolerant) and it took at least a month to feel better. Some symptoms resolved quicker than others.  The bloat was the first to go.  But the dizziness and problems with eye focus took longest. The constipation and mucus took several weeks too.  Also sores in my mouth took a while. 

Celiac or not, an immune system reaction to gluten takes time to recover from.  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,759
    • Most Online (within 30 mins)
      7,748
    Audrey56
    Newest Member
    Audrey56
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Bebee
      Testing for celiac

      By Bebee · Posted

      I am new here, I have been diagnosed with Microscopic Colitis (Lymphatic) years ago and have been gluten-free, DF since, but I still can have occasional bouts of diarrhea (still trying to figure that out).  I also have MS, Hypothyroid, Arthritis, Reynaud's and my rosacea has been acting up lately.  What treatment is suggested to help with rosacea?  I would like to know too if there is a test for celiac if you have been gluten-free?   Thank you, Barb    
    • K6315
      Newly gluten free… withdrawal?

      By K6315 · Posted

      Well, that's interesting. I am lactose intolerant and have been managing that for years. I'd be interested in seeing if that changes once I feel better from not eating gluten (one thing at a time for now, though). Helpful to hear about the avenin. I will do some digging and pose that to the dietitian. Grateful for your feedback.
    • kate g
      Nandos improper preparion celiac childrens food

      By kate g · Posted

      Recently my daughter ate in nandos harlow I rang in advance to speak about the celiac protocals and learned that childs portion chicken nandinos is cooked on the same grill as garlic bread even if they are celiac! Even if you clean it this is not good practise and will be making many children ill. I learnt adults butterfly chicken cooked on a grill purely for chicken.  This is fine and what we ordered however nandos need to take note of your practises for the safety of celiac children. my daughter has been ill from their nandinos chicken before and i emailed head office and they wouldnt accept responsibility 
    • Scott Adams
      High blood test numbers - with scales. Any advice?

      By Scott Adams · Posted

      I agree with @RMJ, you have multiple positive tests so celiac disease is likely.  This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.     
    • trents
      Newly gluten free… withdrawal?

      By trents · Posted

      One small study found that 50% of celiacs react to the dairy protein "casein" like they do to gluten. It is also common for celiacs to be lactose (the sugar in milk) intolerant, though that often disappears in time as the villi heal. About 10% of celiacs react to the oat protein "avenin" like they do gluten.
×
×
  • Create New...