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Having symptoms

Wildfire123

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Wildfire123 Apprentice
Wildfire123
Posted

Hello. I'm new here. I'm waiting on test results to see if I'm Celiac's or glute intolerant. My main concerns with my symptoms are excession weight loss, loss of appetite, anxiety and panic attacks. I've also been experiencing pain in my left rib cage, on my left side of my chest and down my left arm. Also seem to be having episodes that appear to be POTS related. I also have a vitamin D deficiency and vitamin B12 deficiency. Should I go ahead and go gluten-free evendors though my test results have not come back yet? 

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Victoria1234 Experienced
Victoria1234
Posted

Which tests? Blood or endoscopy? Because you need to be on gluten for both to be accurate.

Wildfire123 Apprentice
Wildfire123
Posted
  • Author

They are doing the blood test. I had endoscopy a few months ago but the biopsy they took was only tested for H pylori. And I have been eating a lot of gluten.

Victoria1234 Experienced
Victoria1234
Posted

If blood is positive they'll want to do another endo. So stay on gluten.

Wildfire123 Apprentice
Wildfire123
Posted
  • Author

Got it! Check

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    • trents
      Autoimmune Reaction to SO many foods

      By trents · Posted

      Did the symptoms commence after you discontinued the AIP diet? Have you checked all nutritional supplements and oral hygiene products for possible gluten content? Have you recently checked all the labels of purchased processed foods in your pantry to check for formulation changes that might have introduced gluten? Historically, when "glutened" did you have GI symptoms or were you a "silent" celiac whose symptoms were non GI. Is what you are experiencing now like what you were experiencing at the time of diagnosis? Have you had recent blood work done (CBC and CMP) and if so, were there any parameters out of norm? I know you have Hashimoto's but you say that is well controlled now? It certainly wouldn't hurt to get celiac antibodies rechecked. Because you are essentially gluten free I would not expect to see any big departures from normal levels but if there are even weak positives it could indicate you are getting glutened from some unexpected source.
    • Maura Gissen
      Autoimmune Reaction to SO many foods

      By Maura Gissen · Posted

      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again? 
    • trents
      Autoimmune Reaction to SO many foods

      By trents · Posted

      Welcome to the forum, @Maura Gissen! Don't those same symptoms often come along with the territory when pregnant? And then throw in Hashimoto's.  Have you had your celiac antibody levels checked recently?
    • Maura Gissen
      Autoimmune Reaction to SO many foods

      By Maura Gissen · Posted

      Hi! I have been diagnosed with celiacs and hashimotos for about 1.5 years. I have been on a gluten-free diet since then, and was on a strictly AIP diet for about 6 months a while back. I'm now pregnant, making food eliminations really hard. However, even with cutting out gluten and cross-reactive foods like corn, dairy, oats and yeast, I'm still having flare ups and I cannot pinpoint the foods (some weeks I am fine, others not so much). My symptoms are less digestive and more dizziness, brain fog, and a general feeling of being "sick." Can anyone relate? Does anyone have guidance? I feel really stuck and frustrated. 
    • trents
      Worsening oral health with celiac

      By trents · Posted

      The form of the magnesium is important. Go for one that has high absorbability. Most of us opt for magnesium glycinate. Mag citrate is also good. Don't settle for the oxide forms. They aren't absorbed well and tend to have a laxative effect 'cause they just draw water into the colon a' la Milk of Magnesia. Costco is a good place to shop for things like that. Also, good bone and dental health involves vitamin D. Are you taking a dedicated D3 supplement? Have you had your D levels checked? In many ways, vitamin D is turning out to be a master vitamin of human metabolism and celiacs are often low on this one. What was the numerical score on your IGA along with the reference range? I can probably tell you whether it was TTG-IGA by the magnitude of the score. The only other likely option besides TTG-IGA would be Total IGA which usually has scores that range in the hundreds.  I do think it important for you to get a follow-up endoscopy/biopsy to check for healing of the villi. If that isn't happening like it should, you still are not absorbing nutrients well and that could easily explain your dental issues.
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