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Test results

Wildfire123

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Wildfire123 Apprentice
Wildfire123
Posted

So I just heard from my GI doctor and he said my test results were normal for Celiac's. If they are normal then why am I still having symptoms? What do I do now?

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ravenwoodglass Mentor
ravenwoodglass
Posted

If you had a full celiac panel and biopsy then now you give the diet a good strict try to see if it helps.

Wildfire123 Apprentice
Wildfire123
Posted
  • Author

I'm not sure if I had full Celiac panel done. I just know they tested for it. Haven't had a biopsy done. Could it come up negative on blood work but still have a gluten intolerance of some sort?

Gluten-free-01 Enthusiast
Gluten-free-01
Posted
2 hours ago, Wildfire123 said:

I'm not sure if I had full Celiac panel done. I just know they tested for it. Haven't had a biopsy done. Could it come up negative on blood work but still have a gluten intolerance of some sort?

Can you get copies of your blood test results? Trust me, it's better to see the results yourself, if possible. 

Let's say your GI doctor ordered the full celiac panel and the results are negative AND they are relevant because you were eating gluten at the time. You haven't had a biopsy but you still have unpleasant symptoms. Basically, there are two possibilities: 1. You have Non celiac gluten sensitivity. 2. You are a seronegative celiac.   

Wildfire123 Apprentice
Wildfire123
Posted
  • Author
17 minutes ago, Gluten_free_01 said:

Can you get copies of your blood test results? Trust me, it's better to see the results yourself, if possible. 

Let's say your GI doctor ordered the full celiac panel and the results are negative AND they are relevant because you were eating gluten at the time. You haven't had a biopsy but you still have unpleasant symptoms. Basically, there are two possibilities: 1. You have Non celiac gluten sensitivity. 2. You are a seronegative celiac.   

I will be able to see my results on Wednesday. I'll post them on this thread.

 

cyclinglady Grand Master
cyclinglady
Posted

Get the copies of your celiac blood test panel.  You may have just had the TTG IgA and the control test (Immunoglobulin A).  The TTG is a good test, but does not catch all celiacs.   If you still suspect celiac disease, the EMA and the DGP should be ordered based on this celiac disease diagnosis algorithm below.  Keep in mind that some celiacs are seronegative.  

Open Original Shared Link

 

Wildfire123 Apprentice
Wildfire123
Posted
  • Author

As pomised here are my test results 

Screenshot_2017-09-13-09-19-53-1.png

Screenshot_2017-09-13-09-20-02-1.png

Screenshot_2017-09-13-09-20-13-1.png

Screenshot_2017-09-13-09-20-19-1.png

Screenshot_2017-09-13-09-20-25-1.png

Screenshot_2017-09-13-09-20-32-1.png

Screenshot_2017-09-13-09-20-42-1.png

Screenshot_2017-09-13-09-20-48-1.png

Screenshot_2017-09-13-09-20-55-1.png

Screenshot_2017-09-13-09-21-01-1.png

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Gluten-free-01 Enthusiast
Gluten-free-01
Posted

Ok, so you've had TTG IgA - negative, Deamidated Gliadin IgA - negative and Total IgA - normal. A full celiac panel would also include the following: 

Deamidated Gliadin IgG 

Endomysium IgG 

Endomysium IgA 

TTG IgG 

Have you seen the diagram cyclinglady has given a link to? It's very interesting and useful.

Let us know if you have any questions.. 

Wildfire123 Apprentice
Wildfire123
Posted
  • Author

I've looked at it. It's kin of confusing. I need to study it along with my test results. Should I just go on a gluten free and aspartame free diet and see how I feel?

Gluten-free-01 Enthusiast
Gluten-free-01
Posted

Well, the following applies to you: Celiace disease very unlikely. Exception: approx. 10% of patients with celiac disease are seronegative. (the left side of the diagram)

However, If I were in your situation, I would either persuade a doctor to order the full celiac panel or go to a lab and order it/pay for it myself (that's what I did eventually beacuse my GP is totally incompetent). Note: I don't live in the US/UK. 

Then if all the tests were negative, I would go gluten free anyway.

Btw I've noticed your glucose level is quite high.. 97.. ref. range: 65-99. (I'm not a doctor.)

Wildfire123 Apprentice
Wildfire123
Posted
  • Author

I do have blood sugar problems but never diagnosed with diabetes even though it runs heavily in my family. 

Wildfire123 Apprentice
Wildfire123
Posted
  • Author

I also had a gene test done at my psychiatrist's office.  Interestingly I had am heterozygous for the C677T polymorphism in the MTHFR gene.

Gluten-free-01 Enthusiast
Gluten-free-01
Posted

I see, I'm a bit suspicious of it myself.. Did you eat anything before the blood test or is this the 'fasting glucose' test? There are other tests available btw: HbA1c, Oral glucose tolerance test, C-peptide, GAD antibodies.

Gluten-free-01 Enthusiast
Gluten-free-01
Posted
8 minutes ago, Wildfire123 said:

I also had a gene test done at my psychiatrist's office.  Interestingly I had am heterozygous for the C677T polymorphism in the MTHFR gene.

I have no idea what it means, sorry.. I'd have to google it.

Wildfire123 Apprentice
Wildfire123
Posted
  • Author

Before the test I had Cookie Crisp cereal with milk (did not drink the milk. I hate milk except for in my cereal) and I had 3 chocolate donuts. Please Google that and let me know what you think.

Gluten-free-01 Enthusiast
Gluten-free-01
Posted
1 hour ago, Wildfire123 said:

Before the test I had Cookie Crisp cereal with milk (did not drink the milk. I hate milk except for in my cereal) and I had 3 chocolate donuts. Please Google that and let me know what you think.

Wildfire123, I googled it (‘heterozygous for the C677T polymorphism in the MTHFR gene’) briefly and many research articles came up. I have to admit that I’m neither a medical professional nor a native English speaker. If I spent hours reading about it and used a medical dictionary, I’m sure I’d learn a lot about the subject. However, I don’t have so much time and don’t feel like I’m the right person to give you advice about it. I’ve told you my opinion regarding your celiac testing process but don’t have enough knowledge about that genetic test and its interpretation. As for the glucose, it wasn’t fasting glucose obviously so I think you don’t have to worry about it. I’m afraid I’m not able to help anymore. 

Good luck :)   

ravenwoodglass Mentor
ravenwoodglass
Posted
1 hour ago, Wildfire123 said:

Before the test I had Cookie Crisp cereal with milk (did not drink the milk. I hate milk except for in my cereal) and I had 3 chocolate donuts. Please Google that and let me know what you think.

You said this before which makes me wonder if you had been gluten free or gluten light before you had celiac testing. If you were you need to go back on a regular gluten diet for 3 months or so and then have the celiac panel rerun.

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    • trents
      Test uncertainty

      By trents · Posted

      To put this in perspective, most recent pretest "gluten challenge" guidelines for those having already been eating reduced gluten or gluten free for a significant time period is the daily consumption of 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of two weeks leading up to the day of testing (antibody or biopsy). And I would certainly give it more than two weeks to ensure a valid test experience. Short answer: If it were me, yes, I would assume I have celiac disease and launch full bore into gluten-free eating. I think the tTG-IGA is reliable enough and your score is solid enough to make that a reasonable conclusion. Here is an article to help you get off to a good start. It's easy to achieve a reduced gluten free state but much more difficult to achieve consistency in truly gluten-free eating. Gluten is hidden in so many ways and found in so many food products where you would never expect to find it. For example, soy sauce and canned tomato soup (most canned soups, actually), pills, medications, health supplements. It can be disguised in terminology. And then there is the whole issue of cross contamination where foods that are naturally gluten free become contaminated with gluten incidentally in agricultural activities and manufacturing processes: Eating out at restaurants is a mine field for those with celiac disease because you don't know how food is handled back in the kitchen. Gluten free noodles boiled in the same water that was used for wheat noodles, eggs cooked on the same griddle that French toast was, etc.  
    • MI-Hoosier
      Test uncertainty

      By MI-Hoosier · Posted

      Thank you for the response and article. I was placed on the Mediterranean diet and been on that now for about 3 weeks. While not gluten free I am eating very little bread or anything with gluten ie a slice of whole wheat bread every couple days so assume that would cause issues now with a biopsy.  With the condition my liver is in I am unsure moving back to higher bread consumption is ideal.  In this scenario would my test results be enough to assume positive Celiac and just move forward gluten free?
    • trents
      Test uncertainty

      By trents · Posted

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    • MI-Hoosier
      Test uncertainty

      By MI-Hoosier · Posted

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    • Sunshine4
      Neurologic symptoms - Muscle Twitching and Hand Tremors

      By Sunshine4 · Posted

      Many apologies for somehow changing your first name Scott! 
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