Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

1desperateladysaved

Recommended Posts

1desperateladysaved Proficient

I just stopped in to say that as of last May, I think I am 6 years gluten free.  I have both celiac and super-sensitive allergies to gluten. I can get really sick just by holding a vial of gluten in an enclosed jar.  Home has been gluten free and I am feeling quite well and am working with my diet carefully omitting everything possibly cross contaminated and currently I am just having meat and veggies along with a little fruit.  This seems to be making headway on healing my gut which I have had extreme trouble with ever since accidentally ingesting soy a year or so back.

 I have a new diagnosis of vitiligo.  I think that it may be not so new as I think I noticed a year and a half ago.  IT is usually covered by my hair and neckline so that even though I noticed it that long ago, I forgot along the way until I noticed it again recently.  As soon as I noticed it, I made an appointment with a dermatologist to find out that it was vitiligo.   I hoped that since I have already been strictly gluten free for so long it isn't spreading but today I had it checked and it had increased in size quite a bit.  I am wanting to hear anyone's experience with vitiligo in particularly healing with natural means.  The dermatologist offered me cream but I have trouble with detox and also it is only effective 50% of the time, so I sat back to see if it was growing or not.  Unfortunately, it does seem to be enlarging.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Nice to hear from you.  Sorry to hear about the vitiligo. I have no solutions, but  I hope someone else will.  ?

knitty kitty Grand Master

Hello.  

Here's a study that found vitamin B12 and folate supplements can help.  Vitamins D, C, and E are supposed to help, too.  (I prefer the methyl forms of B12 and Folate.) It's possible the bad soy episode resulted in a period of poor absorption.  But even on a gluten free diet, some Celiacs develop vitamin deficiencies.  

Hope this helps.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to suek54's topic in Dermatitis Herpetiformis
      9

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      9

      Awaiting dermatitis herpetiformis confirmation following biopsy

    3. - trents replied to dani nero's topic in Dermatitis Herpetiformis
      191

      DH Photo Bank

    4. - KeriRae replied to dani nero's topic in Dermatitis Herpetiformis
      191

      DH Photo Bank

    5. - Aretaeus Cappadocia commented on Scott Adams's blog entry in Gluten Busters: Gluten-Free Product Alerts by Celiac.com
      7

      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,717
    • Most Online (within 30 mins)
      7,748

    Lellymay
    Newest Member
    Lellymay
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Rogol72
      Hey @suek54, I also have Dermatitis Herpetiformis. I used to be on Dapsone but have managed to wean myself off it after many attempts. It's quiet a toxic drug, as it affects the bone marrow and red blood cells. It also artificially reduces Hemoglobin A1C. Mine was at 21 at one stage, I think normal is around 37. With dermatitis herpetiformis, you need to be really strict. It wasn't until I focused on getting the trace minerals the body needs that I managed to get off it. I believe getting the thyroid numbers in the optimal range also helped with Iodine and Selenium. Iodine doesn't bother me for some reason, but flares others as knitty kitty said. I take Viridian Trace Mineral complex and it's made a huge difference, among other vitamins and minerals. Now I can tolerate gluten free oats which I could never eat before. Though I only have them very occasionally in the form of gluten free soda bread . One thing I miss is my Mums Irish soda bread. Hope this helps.
    • suek54
      Hi all Biopsy confirmed dermatitis herpetiformis. Strict gluten free diet going OK, I cook nearly everything from scratch anyway and am finding gluten free  adaptations for most recipes.  I seem to be tolerating 50mg Dapsone well, regular blood tests OK so far.  Next derma appt in 8 weeks. I have some continuing itching and rash outbreaks, though nowhere near as severe as they were, so I am hoping for an increased dose, as the effect only seems to last 6-7 hours.  I think I may be burning through it more quickly than some due to other medication. Also I cannot mount a response to inflammation due to Addison's Disease.  I hope others are finding their way though the minefield that is dermatitis herpetiformis. Hang on in there! Sue (in UK)
    • trents
      @KeriRae, have you been diagnosed with celiac disease or with dermatitis herpetiformis?
    • KeriRae
      I've had this same rash on my back on and off for the last year or two.  I was taking LDN to help with other issues but quit awhile back. I'm wondering if LDN would help with this rash. 
    • Russ H
      Shingles vaccination also provides some protection against dementia: https://www.nihr.ac.uk/news/major-study-finds-new-shingles-vaccine-could-lower-risk-dementia
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.