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vitiligo NOW?

1desperateladysaved

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1desperateladysaved Proficient
1desperateladysaved
Posted

I just stopped in to say that as of last May, I think I am 6 years gluten free.  I have both celiac and super-sensitive allergies to gluten. I can get really sick just by holding a vial of gluten in an enclosed jar.  Home has been gluten free and I am feeling quite well and am working with my diet carefully omitting everything possibly cross contaminated and currently I am just having meat and veggies along with a little fruit.  This seems to be making headway on healing my gut which I have had extreme trouble with ever since accidentally ingesting soy a year or so back.

 I have a new diagnosis of vitiligo.  I think that it may be not so new as I think I noticed a year and a half ago.  IT is usually covered by my hair and neckline so that even though I noticed it that long ago, I forgot along the way until I noticed it again recently.  As soon as I noticed it, I made an appointment with a dermatologist to find out that it was vitiligo.   I hoped that since I have already been strictly gluten free for so long it isn't spreading but today I had it checked and it had increased in size quite a bit.  I am wanting to hear anyone's experience with vitiligo in particularly healing with natural means.  The dermatologist offered me cream but I have trouble with detox and also it is only effective 50% of the time, so I sat back to see if it was growing or not.  Unfortunately, it does seem to be enlarging.

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cyclinglady Grand Master
cyclinglady
Posted

Nice to hear from you.  Sorry to hear about the vitiligo. I have no solutions, but  I hope someone else will.  ?

knitty kitty Grand Master
knitty kitty
Posted

Hello.  

Here's a study that found vitamin B12 and folate supplements can help.  Vitamins D, C, and E are supposed to help, too.  (I prefer the methyl forms of B12 and Folate.) It's possible the bad soy episode resulted in a period of poor absorption.  But even on a gluten free diet, some Celiacs develop vitamin deficiencies.  

Hope this helps.

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    • Jane02
      Terrible Neurological Symptoms

      By Jane02 · Posted

      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
    • Jane02
      Terrible Neurological Symptoms

      By Jane02 · Posted

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      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
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