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vitiligo NOW?

1desperateladysaved

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1desperateladysaved Proficient
1desperateladysaved
Posted

I just stopped in to say that as of last May, I think I am 6 years gluten free.  I have both celiac and super-sensitive allergies to gluten. I can get really sick just by holding a vial of gluten in an enclosed jar.  Home has been gluten free and I am feeling quite well and am working with my diet carefully omitting everything possibly cross contaminated and currently I am just having meat and veggies along with a little fruit.  This seems to be making headway on healing my gut which I have had extreme trouble with ever since accidentally ingesting soy a year or so back.

 I have a new diagnosis of vitiligo.  I think that it may be not so new as I think I noticed a year and a half ago.  IT is usually covered by my hair and neckline so that even though I noticed it that long ago, I forgot along the way until I noticed it again recently.  As soon as I noticed it, I made an appointment with a dermatologist to find out that it was vitiligo.   I hoped that since I have already been strictly gluten free for so long it isn't spreading but today I had it checked and it had increased in size quite a bit.  I am wanting to hear anyone's experience with vitiligo in particularly healing with natural means.  The dermatologist offered me cream but I have trouble with detox and also it is only effective 50% of the time, so I sat back to see if it was growing or not.  Unfortunately, it does seem to be enlarging.

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cyclinglady Grand Master
cyclinglady
Posted

Nice to hear from you.  Sorry to hear about the vitiligo. I have no solutions, but  I hope someone else will.  ?

knitty kitty Grand Master
knitty kitty
Posted

Hello.  

Here's a study that found vitamin B12 and folate supplements can help.  Vitamins D, C, and E are supposed to help, too.  (I prefer the methyl forms of B12 and Folate.) It's possible the bad soy episode resulted in a period of poor absorption.  But even on a gluten free diet, some Celiacs develop vitamin deficiencies.  

Hope this helps.

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    • Aretaeus Cappadocia
      Finding gluten free ingredients

      By Aretaeus Cappadocia · Posted

      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
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      Finding gluten free ingredients

      By Aretaeus Cappadocia · Posted

      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
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      Severe severe mouth pain

      By knitty kitty · Posted

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    • cristiana
      Severe severe mouth pain

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      By trents · Posted

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