Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Holiday Family Travel


Kristi626

Recommended Posts

Kristi626 Newbie

My 13yo son was diagnosed by biopsy in August of this year.    We have not had to travel since he has been diagnosed.   I am concerned with holiday travel coming up.   My husband wants to visit his parents this year for our kids Christmas break but, I'm concerned about my son getting "glutened" while we stay at my in-laws.    I already know that they will think I'm being irrational if I insist on bringing a toaster and cookware for my son's meal prep.   They won't understand about him not being able to use the communal butter dish or serving utensils.   Fortunately, my sister-in-law says that there are gluten-free options at their small grocery store.   But, I'm worried about what to do, say and generally how to handle this.   I don't want to ruin my family's vacation.   I want to show my son that his life doesn't have to stop because he has Celiac.    I want him to still be able to travel and visit his friends and family!

Any good advice out there as to how to handle this with my in-laws and how best to ensure my son doesn't get glutened without offending anyone?       


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

You can keep down the clutter by bringing a set of Nordicware microwave cook ware, r roll of butcher/freezer paper (makes gluten-free safe prep area on top of counters, tables, and a nice eating mat) spatula, plastic utensils, and perhaps a small griddle. I normally just do stuff that way and bring at home made muffins, cookies, etc to make myself feel good. I tend to stick to whole food omelettes and the premade stuff I bring to keep it simple and easy. PS the nordic ware has steamer dishes, rice cookers and microwave grill plates so you can cook salmon, rice, steamed veggies chicken all in a microwave.  I did a huge post a few years ago about me hosting my families thanksgiving. I even had instructions on how to make the turkey, and dressing.

Victoria1234 Experienced

Start taking to them now about the seriousness of him staying gluten free. You have to get them past that point of thinking you are being irrational. Send them articles talking about what it's like to be glutened. You've got to make this normal and you have the time now to do it. Be firm.  I've had too many dinners in the past with my husbands family that doesn't care or care to even understand about my issues where they actually told me things were made without flour, but I reacted. Badly. They still don't care but now I just don't believe them, lol. But with a child hopefully they do care and do want to understand. You have to make them realize he is going to SUFFER if he gets glutened. And you don't want your son to hear little snide comments either. You've done a good job normalizing it for him in your environment. Hopefully you will be able to prepare them now so you aren't walking into a war zone then.

 

 

cyclinglady Grand Master

You are a mom with a child who has an autoimmune disease that fortunately can be managed with diet.  It is your family's job to protect your son.  Most of that responsibility falls to you, your husband and your child.  It is very hard to completely understand the gluten free diet unless you are living it every single day.  But there are things that you can do.

Send them some information via email about celiac disease and the diet prior to your arrival.  Hit the ground running the very first day to obtain food and the necessary tools to prevent cross contamination.  Keep those items in a storage bin located out of the kitchen.  Have a family meeting on the first day.  Tell them nicely and with love that you need to do all of these things to keep your son safe.  

If they are not supportive, well, for me, it would be our last visit home.  It is that simple.  

Luckily, my family has been supportive.  We go home for weeks at a time.  I have a bin, systems in place and hubby and I are kept safe.  I watch all food preparation and we hit the buffet first and only once.  We manage well at my parent's house and even at the family lake house where there are tons of gluten eaters.  We have a few others in the extended family who have allergies as well.  So everyone is careful.   Do they think I go over board?  Of course.  But I am an adult and my health and hubby's comes first.  it has taken some time, but they now feel comfortable with us just ordering a drink if they occasionally choose a restaurant that is not safe us.    After all, it is all about relationships and not food.  

cyclinglady Grand Master

Reusable toaster bags....get them on Amazon.  Makes for easier travel.  Squeeze bottle for condiments are best.  Once a bag of chips are opened in the pantry, we are done.   

Jmg Mentor
3 hours ago, Kristi626 said:

Any good advice out there as to how to handle this with my in-laws

To add to the good advice above. I think your husband has to take it on himself to communicate with his parents that this is a serious, medically diagnosed condition that their grandson has to live with for the rest of his life. He needs them to back you up, be supportive etc. On no account should you be cast as the fussy daughter-in-law who has to have her crazy notions indulged - they need to know that their son is 100% on board with this and that the pair of you are united.

Just one other point. It's very difficult for most people to conceptualise celiac, they tend to think of it as they would a problem with spicy food say. Something that you should probably avoid but a little bit now and then won't hurt. So without getting scientific, it would be good if your husband could get that key point across. That a little is just about as bad as a lot when the body's immune system is involved.  That there can't be any compromises or cheating. Even the suggestion will be harmful for your son in adjusting.

Also that you understand that their house cannot be a gluten-free environment and you don't expect them to change their lives whilst your there - but that you need to take reasonable precautions to keep your son safe. 

I think as long as people understand there's reasons for all the precautions etc its easier for them to accept. They may not agree with it or understand it but they can at least understand your thought process. 

Finally, get as much of this communicating done in advance so you, your husband and your son can just enjoy himself without constant references to his diet. 

Hope it goes well!

  • 4 weeks later...
CeliacMommaX2 Enthusiast

Everyone here has had great advice!  Celiac has made me a stronger person in standing up for myself and my family.  I HAVE protect my children as their mother, so I must stand up and do what is best for them.  We travel to visit family often, and while we get lots of questions and people who don't get it, I bring our own pots/pans, utensils, cutting board, etc.  Meal planning is a must when we're away and we've invested in a nice Yeti cooler that practically lives in our trunk.  We bring our own ham, sweet potatoes, green beans, etc to holiday functions even when family has insisted what they are making is safe.  It's just easier for me to relax and enjoy family when I know my kids have safe foods to eat.  

Good luck!  The first times traveling are really hard, but you'll soon get into a groove.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,356
    • Most Online (within 30 mins)
      7,748

    Deb powell
    Newest Member
    Deb powell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Lynnard
      Thank you - that makes perfect sense and I understand. celiac disease is an autoimmune disease which will cause further damage while gluten sensitivity is different. Based on my symptoms and bloodwork, I am almost certain I have celiac disease.  I kind of hate to hope for a positive biopsy but a negative one would be frustrating for sure. Regardless, I have done a lot of research on gluten-free diet and am prepared to begin a new lifestyle journey - with a lot of questions along the way.  I appreciate your information and advice! 
    • trents
      Let's talk about terminology for the sake eliminating (as much as possible) confusion. Unfortunately, the terms "gluten sensitive" and "gluten intolerant" have, historically, been used indiscriminately. There are two primary categories of gluten disorders whose "official" terms are 1. celiac disease and 2. Non Celiac Gluten Sensitivity or NCGS for short.  I believe there is an evolution toward using the term "gluten intolerance" to refer to celiac disease and "gluten sensitive" to refer to NCGS. I say that because the words "gluten sensitivity" are actually found in the official medical term for the non celiac medical disorder involving gluten. Does that make sense? The difference between celiac disease and NCGS is that celiac disease causes inflammation in the small bowel lining and (over time) does damage to it so that it becomes inefficient in absorbing nutrients from what we eat. This is the area of the intestinal track where all of our nutrients are absorbed. Of course, this can lead to any number of other medical problems. NCGS, on the other hand, does not cause inflammation or damage to the lining of the small bowel and therefore does not produce the antibodies that celiac disease antibody tests look for. Neither will NCGS, therefore, produce a positive biopsy result. NCGS and celiac disease, however share many of the same symptoms in the area of GI distress and NCGS is 10x more common than celiac disease. There is, at the present time, no defining test for NCGS so an NCGS diagnosis is arrived at by first eliminating celiac disease for which we do have tests for. Having said that, some experts believe that NCGS can be a precursor to celiac disease.  Yes, you are correct in stating that both conditions require a gluten free diet.  So, in the absence of official testing for celiac disease (and official testing done under the proper conditions) a person who is experiencing distress when consuming gluten cannot be certain whether they are dealing with celiac disease or NCGS. Not to have an official diagnosis of celiac disease while actually having the condition makes it difficult for some folks to stay on the gluten free bandwagon. It's just the psychology of the situation and wanting to rationalize away a very inconvenient and socially isolating medical condition.
    • Lynnard
      Thank you!  This is super helpful and confirms everything I have read. I was definitely eating lots of gluten before both testing and endoscopy. If the biopsies do come back negative, I'm wondering how conclusion/distinction is made between celiac and gluten intolerance is made.  Or does it matter because presumably recommendation of gluten-free diet will be the protocol??  
    • trents
      You are welcome! We frequently get similar comments. Knowledge about celiac disease in the medical community at large is, unfortunately, still significantly lacking. Sometimes docs give what are obviously bum steers or just fail to give any steering at all and leave their patients just hanging out there on a limb. GI docs seem to have better knowledge but typically fail to be helpful when it comes to things like assisting their patients in grasping how to get started on gluten free eating. The other thing that, to me at least, seems to be coming to the forefront are the "tweener" cases where someone seems to be on the cusp of developing celiac disease but kind of crossing back and forth over that line. Their testing is inconsistent and inconclusive and their symptoms may come and go. We like to think in definite categorical terms but real life isn't always that way.
    • Rogol72
      Hey @Morgan Tiernan, Sounds just like my experience. I was diagnosed with dermatitis herpetiformis over 10 years ago. It appeared suddenly as a very itchy rash which looked like Eczema. When a steroid cream didn't clear it up, my Dermatologist (who had come across it before) suspected dermatitis herpetiformis and performed a skin biopsy which came back positive for dermatitis herpetiformis. The important thing is to get a definitive diagnosis of dermatitis herpetiformis. What you've described sounds like classic dermatitis herpetiformis though. Hopefully, your Dermatologist has come across dermatitis herpetiformis before and performs the skin biopsy correctly as trents mentioned. I've had the blisters on the knees, hips, forearms/elbows or anywhere that pressure is applied to the skin ... from clothing or otherwise. They itch like nothing on earth, and yes salt from sweat or soaps/shower gels will irritate a lot. I've been on Dapsone and it is very very effective at eliminating the dermatitis herpetiformis itch, and improved my quality of life in the early stages of getting on top of dermatitis herpetiformis while I adjusted to the gluten-free diet. But it does have various side effects as trents said. It can effect the red blood cells, lowering hemoglobin and can cause anemia, and requires regular blood monitoring whilst on it. You would need to consider it carefully with your Dermatologist if you do have dermatitis herpetiformis. Here's a very informative webinar from Coeliac Canada discussing everything dermatitis herpetiformis related.  https://www.youtube.com/watch?v=PAdmsNiyfOw I've also found this recent interview with a Dermatologist about dermatitis herpetiformis to be educational.  https://www.youtube.com/watch?v=rZnLeKutgUY Keep the chin up and keep advocating for yourself for a proper diagnosis. Though it sounds like you're on top of that already. Are you in the UK or Ireland? I'm curious because your surname is Irish. 
×
×
  • Create New...