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Common Cookware Cross-contamination with Gluten Post Customary Sanitation Study


Scott Adams

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Scott Adams Grand Master
radioactive_CC--Nicki_Dugan_Pogue_thumb.

Misdiagnosed my sophomore/ junior year of High School, 3 years ago, with celiac disease, I became obsessed with the science of this ailment and how it was supposedly affecting me. I was shocked by how little is known about this autoimmune disease and the many gaps in research done on it. One such gap is that of cross-contamination in the household, where it is likely to have a daily impact on those following gluten-free diets. Because of this, I decided to help fill this gap in scientific knowledge with a manageable project based on cross-contamination in the home, asking whether one can share common kitchen cookware that is used with gluten containing foods, or if people, to help maintain a gluten-free diet, need designated ones for their food preparation.

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ravenwoodglass Mentor

Interesting article. I do wonder how she was 'misdiagnosed' though and how she came to the conclusion she wasn't celiac.

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kareng Grand Master

Odd.  And I wonder why she thinks she doesn't have Celiac?  But her little experiment does show that some people may be going over board with new and separate pots, etc

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Victoria1234 Experienced

Wish we could see her follow up studies from the last 5 years.

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ravenwoodglass Mentor
12 hours ago, Victoria1234 said:

Wish we could see her follow up studies from the last 5 years.

Yea. I hope she isn't like one of my blood and biopsy diagnosed relatives who then had a gene test that showed she didn't have one of those 2 most common genes.  She was then told it was a misdiagnosis and went back to eating gluten.

She is young so she could also be in what they call the 'Honeymoon' period that used to cause doctors to think celiac could be outgrown.  In young adults it can seem celiac has resolved because the person can consume gluten for a time before the antibodies start causing symptoms again.

Pure conjecture on my part.

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ironictruth Proficient

She may be one of those people who got diagnosed only via blood. Some tests can come back false positive. Or maybe only via biopsy and it turns out she had H. Pylori. Who knows. Absolutely could happen though.

 

One of the things that surprised me too was when my doc said it can weeks to months for symptoms to develop on a gluten challenge. I always had this image of getting so imminently sick that there was no question about the connection with gluten. 

 

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cyclinglady Grand Master

Another variable that should be considered......old age and reduced eyesight!  We do not have a dishwasher, so we hand wash.  It appears that I am not washing as well at night.  This might be fine for a good gut bionome (referencing a study in Sweden, I think), but bad from a cross contamination perspective with gluten.  

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Bottom line?  Wear your reading glasses and improve your lighting!  You may consider transitioning to a 100% gluten-free household as reduced vision and dementia kick in.  ?

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Awol cast iron stomach Experienced

Interesting the Teflon was the substrate /material the gluten "stuck to" with a higher ppm of cc a synthetic man made versus an organic material iron . Based on her writing further exploration is not likely to get funding but perhaps from this preliminary finding if repeated celiacs in shared households should avoid teflon products. 

My husbands bachelor pots and pans were a great set of stainless steel. Our wedding set of dishes mostly have broken.  I purged all pre diagnosis wood , plastic, and and old or very used ceramic and with my son and I both affected the household went completely gluten free. 

I wish the budding scientist much success, but hope she followed her own data and ditched all teflon.

 

 

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    • Dhruv
      @DebJ14 my son is a symptomatic. And his all bloodwork looks good so far. Here there is no treatment for this in allopathic, but back in india , there is a homeopathic treatment which makes people immune to wheat for celiac. Have known doctors whos given best treatment to the patinents and they are back to gluten,  we are going india , as it's not sure if my son has a celiac or something else. Diagnosis is sucks here, every doctor has own narrative and every lab has own counts. I don't trust medical here. I have been working in healthcare administration past 10 yrs and can tell yoh how miserable it is, every dr works here to get money from the insurance,  nobody really cares what patients are going though,  this is the big problem of this country. None of the doctor has given me an example of the damage being caused gluten indulge. 
    • Scott Adams
      I can understand your decision, and if he ends up having the celiac disease genes, and his symptoms go away on a gluten-free diet, at the very least you can likely conclude that he has NCGS and possibly even celiac disease, although you can be certain about the latter.  Actually he could still have NCGS without any genetic markers for celiac disease. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. There can be some negative consequences with a formal diagnosis, for example it is included as a disability now on most job applications, life insurance can be more expensive and harder to get, and depending on what changes are made to the ADA over the next few years it is possible that those with pre-existing conditions could be penalized.    
    • trents
      Although genetic testing cannot be used as a stand alone diagnostic measure, it can serve as corroborative evidence to support a diagnosis of celiac disease when considered together with symptoms, particularly when withdrawal of gluten results in dramatic improvement in symptoms. This may be the best course of action in cases where health risks make the gluten challenge inadvisable. Some physicians are open to declaring a celiac diagnosis on this basis.
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      Is it possible you overlooked the results of your tTg-IgA test results? It looks like you might have only shared with us one part of your test results. 
    • Pua
      Thanks for the numbers. Yes I understand and I don’t know if I would do it. All I know is whatever my dad and I have attacks the whole body and once I cut gluten out everything heals. My son is doing so much better so I’m going to keep doing that. I don’t see the need to gluten him just to get an official diagnosis and go through what I did. 
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