Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

CoriMoen

Recommended Posts

CoriMoen Newbie

I live near Denver, near the foothills and I'm looking for a Doctor that either specializes in Celiac or has the disease him or herself.  That would be amazing.  I have seen 3 different doctors who all sympathize and kind of understand the list of it, but by no means are fully understanding of this.  I feel like I'm always telling them why I can't just take any medicine, or do this or that, or why I can't work in a bakery...this all stems from me having to do a lot of disability paperwork and never, ever having it filled out correctly.  I was denied multiple times because of ignorance.  I would really appreciate any help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lorjenn22 Apprentice

i do know of a doc that has celiacs but they are in thexstate of pa. as far as disability a couple tips. first list all ur diagnosis big or small n in order of significance. second explain how the symptoms prevent u from working. u listed bakery. say i cannot work in environment where i am exposed to gluton and since my training work experience or skill set is in bakery or hospitality i am unable to perform duties of these jobs bc my exposure to gluton makes me sick. therefor causing me to miss work n miss pay. go farther and say celiacs causes me to be fatigued and unable to concentrate. these are examples w out knowing ur full story. and how to word it so it is more legit. i hv had disability due to other issues. another thing if celiacs is anyway affecting ur joints say that. give concrete answes. dont just list stuff they think could be symtoms of anything. goodluck. also list what treatment you hv received. example if u get physical therapy. u want provide details of how it affects u on a daily basis. not everything that u hv experienced. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,210
    • Most Online (within 30 mins)
      7,748

    Sharon Camden
    Newest Member
    Sharon Camden
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Chissers
      Thank you for your prompt reply. Have others experienced LUQ and L sided back pain when on gluten? Could gluten be irritating the pancreas to cause the slight rise in lipase?
    • Rogol72
      Wow! I'd be interested to know where you get the tinctures. You can DM me if you wish. There's a Spanish company ... hifasdaterra ... who make high quality medicinal mushrooms in capsule form. 
    • trents
    • trents
      Jason, I have a bone to pick with your terminology. There is "gluten intolerance" which I believe is synonymous with celiac disease and then there is "gluten sensitivity" which comes from Non Celiac Gluten Sensitivity or NCGS for short. It is true, however, that there is still a lot of inconsistency in the use of these terms.
    • Liquid lunch
      I can’t say this will work for everyone but for me the difference is incredible so might be worth trying. I’ve never been diagnosed celiac but via an elimination diet I realised I can’t eat any lectins, gluten soy and oats are particularly problematic. If I eat them I’m in bed for a week, then heavy bleeding and extreme pain for another, followed by a third week of bleeding on and off. My skin was a mess and it snowed when I brushed my hair. Since taking reishi and cordyceps mushroom tincture I can’t believe the difference, I’ve had a lot of help from this site so I want to return the favour. I took the tincture for my guts but the most apparent effect is that I feel like my brain works again, I can’t begin to describe how wonderful it is to be able to achieve basic things, I’ve barely been able to organise getting out of bed for so long, it feels like I haven’t been hit over the head with a mallet for the first time in years. Then I glutened myself, not necessarily gluten as so many things wipe me out but definitely ate something I shouldn’t have, I took a treble dose of the tincture and almost immediately felt much better so continued with the increased dose and three days (not weeks) later was back to feeling great, no bleeding involved. My skin is better than I can remember it ever being, I feel great 😊. I spend £1.50 a day on these but it’s worth every penny, I hope this helps someone else out there reading this. I wish I’d known about them 20 years ago. best wishes everyone 🍄 
×
×
  • Create New...