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- ErinV replied to ErinV's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Decreasing tTiga?
Hi- thanks for the reply. Happy to give more information. No one in my family or the fathers family has celiacs. We’ve all tested and neither of us, nor my other daughter have the genetic markers for it. these are what the lab results say: Endomysial Antibody Titer- Normal value: <1:5 titer. Hers were at 1:10 the past 3 times and t... -
- plumbago replied to ErinV's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Decreasing tTiga?
Hello and welcome, Could you please publish the reference ranges for each test, including tTG-IgA and the endomysial antibodies? When your daughter had her endoscopy, was she eating gluten? I agree with your position, I would not want to subject her to another endoscopy and biopsy. It sounds like your doctor is saying that since her tiredness is... -
- Babygirl877 posted a topic in Coping with Celiac Disease0Recently diagnosed with Celic disease
hi I’m Stephanie from Saginaw Michigan. I was recently diagnosed with Celic disease this month march 2025 on the date of the 17th I was scared my body was trembling from crying after I tmi threw up blood with undigested food. I thought that night that I was dying I texted my family and my close friends and my boyfriend scared. They told me to go in when t... -
- gailc replied to Yenni's topic in Coping with Celiac Disease31Anyone Got Sick From Canola Oil?
I avoid soy because of the link to breast cancer. I have had some scares and two biopsies. Not cancer. -
- ErinV posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
Decreasing tTiga?
Hi all- I'm new to the community. my daughter is 4 and was first tested for celiac back when she was almost 3. Her pediatrician tested her due to a tic that ended up being completely unrelated. Regardless, her bloodwork came back at 74 for tTiga. She had no symptoms that we could see but her doctor recommended a biopsy because her levels were so high...
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Hi- thanks for the reply. Happy to give more information. No one in my family or the fathers family has celiacs. We’ve all tested and neither of us, nor my other daughter have the genetic markers for it. these are what the lab results say: Endomysial Antibody Titer- Normal value: <1:5 titer. Hers were at 1:10 the past 3 times and then this time it came back on her portal as just “negative” Her platelets this time came back at 451, and the normal range is 150-400. They have been in the normal range the past three times. Tissue Transglutaminase Ab- <15.0 Antibody not detected > or = 15.0 Antibody detected Her Value 76.1 this time. 8 months ago it was 140, 6 months before that it was 120 and the time before that it was 72. From what I’ve read and from the doctor, this is the most specific test for celiac and what we should focus on the most. 76 is still extremely high, but why did it decrease when nothing in her diet has changed? -
Hello and welcome, Could you please publish the reference ranges for each test, including tTG-IgA and the endomysial antibodies? When your daughter had her endoscopy, was she eating gluten? I agree with your position, I would not want to subject her to another endoscopy and biopsy. It sounds like your doctor is saying that since her tiredness is not new that there's no real health status change. Personally, I don't like that assessment, and I would question it. From the bits you have posted, it does look like she has Celiac, but I would want to see a more comprehensive panel. It's good you've continued doing the blood tests, and are in general staying on top of it. (Are there others in either your family or the child's father's family that have had Celiac?) People without Celiac do not test positive, regardless of the level. Other moderators on this board may have more up to date information than I do, but I think that's still true. Plumbago
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By Babygirl877 · Posted
hi I’m Stephanie from Saginaw Michigan. I was recently diagnosed with Celic disease this month march 2025 on the date of the 17th I was scared my body was trembling from crying after I tmi threw up blood with undigested food. I thought that night that I was dying I texted my family and my close friends and my boyfriend scared. They told me to go in when they found me in the bathroom shaking leaning up against the bathroom wall with my hand over my mouth I’m 37. A year and a half ago I was diagnosed with diabetic gastropresis another problem that I didn’t want to ever have. The same night I was diagnosed with Celic disease guess they had diagnosed me with gastritis which is another symptom of gastropresis. I am scared but as long as I have God my fam and my boyfriend by my side it helps me calm down. In other ways I know I’ll be ok. Everything has to be gluten free and I’m gonna try nervous and scared don’t know what to expect from this journey. -
I avoid soy because of the link to breast cancer. I have had some scares and two biopsies. Not cancer.
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Hi all- I'm new to the community. my daughter is 4 and was first tested for celiac back when she was almost 3. Her pediatrician tested her due to a tic that ended up being completely unrelated. Regardless, her bloodwork came back at 74 for tTiga. She had no symptoms that we could see but her doctor recommended a biopsy because her levels were so high. That came back negative. Since then she’s had 2 more blood draws (every 6 months). One was 120 and the next was 140. Her original gastro recommended another biopsy but we decided to wait because she’s so small and we don't think she has any symptoms. We just had her blood drawn again and it went down to 76… We haven’t changed her diet at all, but also haven’t tried to get her to eat a heavy gluten diet, as she does seem to avoid bread products, and she is only 4 years old. Her doctor’s office recently changed EMRs so I can’t remember the exact numbers of all her other blood tests, but I know she was positive for both genetic markers. The endomysial antibodies were positive the first 3 blood draws, but this last time it came back negative. I’m unsure what to do from here. She’s only 4 so I hate to put her under anesthesia again when we aren’t seeing any major symptoms- no issues with constipation or diarrhea. No complaints of belly pain. She is ALWAYS very tired and enjoys laying in the floor with her blanket whenever she can. But her gastro said if that’s how she’s always been, then it’s not a symptom? We’ve seen another Dr for a second option about a year ago. She said if her levels reached 150 or higher we could diagnose her with celiacs without a positive endoscopy result (based off of the European standards?). But now that her levels dropped, I’m unsure what to think. Are both doctors going to suggest another scope? Is there another option? I hate the idea of her having damage done without us knowing, but all her bloodwork comes back okay except for the celiac numbers. Her pediatrician says she's growing fine. I will be talking with her gastroenterologist either tomorrow or Tuesday. I’d love some insight on what questions to ask or what to know going into the meeting so I’m not caught off guard. Thanks for any information you can provide!!
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