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Correct testing for celiac disease

Bonniedog

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Bonniedog Newbie
Bonniedog
Posted

I have most of the symptoms of  celiac disease and DH and have had negative results for IgG and IgA.  I am worried that the negative results may be due to  IgA deficiency.   My doctor has ordered protein electophotesis but this does does not seem right to me.  Advice regarding the correct tests would be much appreciated.

 

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Gluten-free-01 Enthusiast
Gluten-free-01
Posted
3 hours ago, Bonniedog said:

I have most of the symptoms of  celiac disease and DH and have had negative results for IgG and IgA.  I am worried that the negative results may be due to  IgA deficiency.   My doctor has ordered protein electophotesis but this does does not seem right to me.  Advice regarding the correct tests would be much appreciated.

 

Hi, just a short reply:

- Gliadin IgA, Gliadin IgG, TTG IgA, TTG IgG, Endomysium IgA, Endomysium IgG + Total IgA (= serum level of total immunoglobulin A)

- 10 percent of celiacs are seronegative, i.e. negative blood test + positive intestinal biopsy

- some people are non-celiac gluten sensitive (NCGS) - no tests available

- DH is diagnosed via a skin biopsy - a dermatologist can diagnose it; only celiacs have DH

Hope this is a bit helpful :)

You can also search this website for more info or read other (older) discussions. 

Bonniedog Newbie
Bonniedog
Posted
  • Author

Thank you for the information.  I am having an endoscopy in December as I want a definitive diagnosis and because of my age and health issues I cannot afford to muck around.  My GP who is usually very good seems to be ignorant regarding Celiac Disease, which I find a bit bizarre considering 1 in 70 Aussies are sufferers.   The assumption of GPs tends to be " It is IBS because Celiac is so rare we don't test for it".   Maybe why 4 out of 5 people with Celiac are misdiagnosed or undiagnosed.

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