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Celiac? or something else?

alex1234

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alex1234 Rookie
alex1234
Posted

I have had a multitude of symptoms for an extended period that have seemed to get worse throughout the past year including: constant fatigue, severe migraine, inability to concentrate, "brainfog," unmotivated, poor mood, diarrhea/constipation, hemorrhoids, etc... for about 6 months I eaten very little gluten. When I eat no gluten for about 1 week, nearly all of these symptoms go away until I eat bread or oatmeal or other gluteny foods. I had a blood test for IgA, TTG, IgG, and TTG IgG Quantitative; all of which returned a negative Celiac diagnosis. BUT, I hadn't eaten gluten for about 2-3 months before this test. I also had an ultrasound which showed a prominent gall bladder and have bilirubin levels at 2.6 with a standard range of  .2-1.3.

I am seeing a GI next week seeking answers to try to feel normal again. Do you think I may have Celiac, or is it worth testing? Testing would likely mean going on a gluten challenge... Any insight would be very helpful!

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cyclinglady Grand Master
cyclinglady
Posted

Please let your GI know that you had been gluten free for months prior to your blood draw.  You may decide to undertake a gluten challenge or maybe he/she will order a biopsy without the blood tests.  

Do you have celiac disease?  Who knows?  There are over 200 symptoms that often overlap with other illnesses.  The only way to know for sure is to get tested.  And...ask for the complete panel this time.  But gallbladder issues are common.  I has a non-functioning gallbladder. I bet I would still have a GB if my celiac disease had been diagnosed earlier.  

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I wish you well.  

TexasJen Collaborator
TexasJen
Posted

If I had all the symptoms you described, I would get tested!  It sounds like you have been feeling pretty poorly.  

There are a lot of symptoms of celiac so your symptoms could definitely be celiac or NCGS. 

Good luck!

alex1234 Rookie
alex1234
Posted
  • Author

Thank you both for the input! Has anyone else had similar symptoms as I and received either a positive or negative diagnosis? 

Thanks!

cyclinglady Grand Master
cyclinglady
Posted

I only had anemia when I was diagnosed (gallbladder removed years prior) no gut issues.   So, it is impossible to determine a celiac diagnosis based on symptoms because symptoms tend to overlap with many other illnesses.  Some celiacs have NO symptoms at all.  Talk to your GI about getting tested for celiac disease.  

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