Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac? or something else?

alex1234

Recommended Posts

alex1234 Rookie
alex1234
Posted

I have had a multitude of symptoms for an extended period that have seemed to get worse throughout the past year including: constant fatigue, severe migraine, inability to concentrate, "brainfog," unmotivated, poor mood, diarrhea/constipation, hemorrhoids, etc... for about 6 months I eaten very little gluten. When I eat no gluten for about 1 week, nearly all of these symptoms go away until I eat bread or oatmeal or other gluteny foods. I had a blood test for IgA, TTG, IgG, and TTG IgG Quantitative; all of which returned a negative Celiac diagnosis. BUT, I hadn't eaten gluten for about 2-3 months before this test. I also had an ultrasound which showed a prominent gall bladder and have bilirubin levels at 2.6 with a standard range of  .2-1.3.

I am seeing a GI next week seeking answers to try to feel normal again. Do you think I may have Celiac, or is it worth testing? Testing would likely mean going on a gluten challenge... Any insight would be very helpful!

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Please let your GI know that you had been gluten free for months prior to your blood draw.  You may decide to undertake a gluten challenge or maybe he/she will order a biopsy without the blood tests.  

Do you have celiac disease?  Who knows?  There are over 200 symptoms that often overlap with other illnesses.  The only way to know for sure is to get tested.  And...ask for the complete panel this time.  But gallbladder issues are common.  I has a non-functioning gallbladder. I bet I would still have a GB if my celiac disease had been diagnosed earlier.  

Open Original Shared Link

Open Original Shared Link

I wish you well.  

Link to comment
Share on other sites
TexasJen Collaborator
TexasJen
Posted

If I had all the symptoms you described, I would get tested!  It sounds like you have been feeling pretty poorly.  

There are a lot of symptoms of celiac so your symptoms could definitely be celiac or NCGS. 

Good luck!

Link to comment
Share on other sites
alex1234 Rookie
alex1234
  • Author
Posted

Thank you both for the input! Has anyone else had similar symptoms as I and received either a positive or negative diagnosis? 

Thanks!

Link to comment
Share on other sites
cyclinglady Grand Master
cyclinglady
Posted

I only had anemia when I was diagnosed (gallbladder removed years prior) no gut issues.   So, it is impossible to determine a celiac diagnosis based on symptoms because symptoms tend to overlap with many other illnesses.  Some celiacs have NO symptoms at all.  Talk to your GI about getting tested for celiac disease.  

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,804
    • Most Online (within 30 mins)
      7,748
    Hannah27
    Newest Member
    Hannah27
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      69k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Implications of glutening after repairing villi

      By RMJ · Posted

      It will not undo all of the healing.  If it did, diagnosis of celiac disease would be much easier!  To have enough damage to see on an endoscopy requires several weeks of gluten ingestion. 
    • Jean Shifrin
      Implications of glutening after repairing villi

      By Jean Shifrin · Posted

      HI, I am new to this and am still in 'repair' mode, which I know will take time. But I'm wondering if anyone knows what happens if you ingest gluten after you have made a lot of progress in repairing your villi. Does anyone know if you just have a short-term issue? Or does an accidental ingestion of gluten derail all the work you've done and set you back to square one? Thanks.
    • Scott Adams
      Is McDonald's Safe for Gluten-Free Orders?

      By Scott Adams · Posted

      Hydrolyzed wheat is wheat protein that has been broken down into smaller components through a chemical or enzymatic process called hydrolysis. This ingredient can be found in various products, including cosmetics, personal care items, and some food products. For people with celiac disease, hydrolyzed wheat is generally not safe to consume because it still contains gluten proteins, even in its broken-down form. Though hydrolysis reduces the size of these proteins, it doesn’t fully remove the components that trigger an autoimmune response in people with celiac disease. In food products, hydrolyzed wheat protein still poses a risk and should be avoided. With regard to the McDonald's French fries, the total amount of hydrolyzed wheat in the flavoring is small, and the amount that ends up in an order of fries is even smaller, and likely below 20ppm. McDonald’s states that the fries are gluten-free by ingredient and free from cross-contact with gluten-containing foods in their dedicated fryers. Third-party tests and statements by McDonald's confirm gluten levels are below the FDA threshold for gluten-free labeling (20 parts per million or less). So, while McDonald’s USA fries may be gluten-free based on testing, some people with celiac disease still approach them cautiously due to the past concerns and individual sensitivities.
    • trents
      Is McDonald's Safe for Gluten-Free Orders?

      By trents · Posted

      Here is an excerpt from this article: https://pmc.ncbi.nlm.nih.gov/articles/PMC82695:   Studies have shown that various peptidases of fungal, plant, animal, or bacterial origin are able to hydrolyze gluten into harmless peptides. According to SDS‐PAGE pattern, proteolytic enzymes hydrolyze gliadins (Heredia‐Sandoval et al., 2016; Scherf et al., 2018; Socha et al., 2019; Wei et al., 2018, 2020). Bacterial peptidase (Krishnareddy & Green, 2017), fungal peptidase (Koning et al., 2005), and prolyl endopeptidases (PEPs) (Amador et al., 2019; Janssen et al., 2015; Kerpes et al., 2016; Mamo & Assefa, 2018) thoroughly degrade gliadin fractions to decrease gluten concentration and influence celiac disease. Aspergillus niger derived PEP (AN‐PEP) were assessed in clinical cases for their impact on modifying immune responses to gluten in celiac patients (Lähdeaho et al., 2014). Guerdrum and Bamforth (2012) reported that PEP addition in brewing technology decreased the prolamin and all of the identified immunopathogenic gluten epitopes in beer production (Akeroyd et al., 2016). On the contrary, many of the recent investigations which employed enzyme‐linked immunosorbent assay (ELISA), mass spectrometry, and Western blot analysis reported that PEP did not thoroughly destroy the whole gluten proteins (Allred et al., 2017; Colgrave et al., 2017; Fiedler et al., 2018; Panda et al., 2015), which indicates that beers treated with PEP are not safe for celiac disease patients. Anecdotally, this excerpt supports what we hear from the celiac community on this forum with regard to "gluten free" hydrolyzed wheat products and that is that some still react to them while many don't.
    • Scott Adams
      Anybody else have a similar experience...theories welcome as its something which i dont really understand.....

      By Scott Adams · Posted

      There aren't good studies that have been done on celiac disease remission, and I'm going from a distant memory of an older post here, but the longest remission that Dr. Stefano Guandalini from the University of Chicago Celiac Disease Center has witnessed was ~10 years, then the symptoms of celiac disease and the damage came back. The real issue though, is that you still could increase your risk of various related diseases and disorders by eating gluten, but again, celiac disease remission has not been studies enough to know what health risks you might face.
×
×
  • Create New...