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Curious about things after healing


Fbmb

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Fbmb Rising Star

Hi everyone! 

Im almost a year out from my diagnosis. Things seem to be going ok, but I wasn't super symptomatic when I was diagnosed (despite having stage 3b damage), so I don't know if I would feel terrible if I ate gluten. I'm obviously not willing to try it! I'm really diligent. 

When I was diagnosed I read tons of articles about how scary this can be if it goes untreated. I have no idea how long I had it before I knew. I was 29 when I was diagnosed. I was at stage 3b so I assume I'd had it for a while.

when does the risk of adverse health issues lessen? I imagine that eventually those risks decrease, but I don't know when. I'm just curious. Finding out about my celiac really scared me. I wasn't afraid of my celiac, but I was afraid of what it had done to my body - or of what having an autoimmune disease means for me. 

Just wanted to hear your thoughts. 


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Ennis-TX Grand Master

Unsure I think it can be better shown in a line graph it really never drops below what a normal persons would be, but the longer your gluten free without mistakes I imagine the line heading down in your chances for other problems. I know my bloat and bloody stool started over a year after going gluten free, (still having cc issues in a shared house when it started) and kept up even on a gluten free diet in my new house I built out just to be a safe house. Then more then a year of bloody stools I finally figured out I had developed ulcerative Colitis. Was also over 2 years into my gluten free diet when I got the corn allergy. I have this year actually lost my sesame seed intolerance. and my histamine issues have lessened in the past few month.

Courtney33 Rookie

I hear ya, I too have wondered the same thing. We are lucky in that our bodies always try to default back to its healthy normal. I tell myself that because I no longer cause inflammation from gluten, that I have no diverted any autoimmune disorders that were heading my way.

I tell myself that because of being celiac, that I eat way better than anyone around me, and this gives me a gold star. Sure I eat half a gluten free chocolate cake in one sitting - but that is still better than whatever those non-celiacs are eating. Consider that osteoporosis is caused by gluten, we have stopped the progress of that now.

Bodies can have heavy metal poisoning, years of chemical exposure, and still recover, because bodies like to recover, are programmed to recover.

I tell myself, and my kids as I got them all genetically tested too, and yes, I was kind enough to pass on the Celiac genes, that having this knowledge has saved major health concerns in the future. My children do not feel major symptoms at the moment, at least none that they are willing to called Celiac (because then they would have to eat like me), but they have the information and will know what to do when the times, and not think that they are crazy, like my doctor tried to do to me 30 years ago.

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    • Ann13
      Not everyone will be allergic to whatever they're using in food. There is another forum re people who are posting they have vocal cord & throat issues after they eat breads & pastas which stopped after they removed those foods from their diets. Same as me...gluten doesn't react as gastrointestinal it reacts orally. Which is why I'm saying ensure all your food isn't what you're having a reaction to.  ...& I used Cornflakes as an example because some gluten free people would assume it's gluten free but if they're allergic to barley they will have a reaction...nothing to do with their inhaler.  You're missing my points a lot & frustrating so I'm done commenting. You really need to ensure your food isn't what's causing the issue. I am checking with symbicort manufacturer to check their ingredients.  Good bye... I'm done with this. 
    • trents
      I certainly agree with all that. However, you also mentioned cornflakes with barley malt but that would obviously not be gluten free since barley is a gluten-containing grain. And the chemicals they spray on grains would affect everyone, not just those with gluten disorders. I'm just trying to figure out what this thread has to do with the main subject this online community is focused on. Is the point of this thread that having a gluten disorder makes someone more susceptible to reacting adversely to inhalers? That could be but it may have nothing to do with the inhaler having gluten. It could have to do with, say, having higher systemic yeast counts because the celiac community generally suffers from gut dysbiosis. So it would be easier for celiacs using inhalers to develop thrush.
    • Ann13
      Re food,  I said the gluten free thing isn't necessarily about gluten itself, but chemical sprays they use on GRAINS which cause allergic throat & vocal cord issues regardless of the inhaler you're using.  Your issue may not be the inhaler but eating gluten free food that still will bother you because they have been sprayed with certain chemicals. Barley & oats cause vocal and throat issues with me as well as gluten free flours. We didn't have gluten issues in the world yrs ago...the food changed somehow or they're using sprays that cause reactions in some people.  Re inhaler: Symbicort is registered as gluten free but companies can change their ingredients at any time so you may want to check with the company who makes it and get an ingredient list.  I don't believe I'm reacting to the inhaler...I believe it's a gluten free pasta I've been eating so I'm taking it out of my diet. I've used the inhaler for over 1 year and no problems up until now so I suspect it's the pasta. 
    • trents
      There could be other reasons you are reacting to the inhalers. There is no concrete evidence to believe they contain gluten. Anecdotal experiences can be misleading do not establish fact.
    • trents
      Are you saying you believe there is gluten in the inhaler products? I mean you talk a lot about reacting to foods that are supposed to be gluten free but this thread is about inhalers. 
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