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Possible DH ...gluten free for 5 years!

Metoo

By Metoo
in Dermatitis Herpetiformis

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Metoo Enthusiast
Metoo
Posted

So I had a biopsy today for DH....they odd part is I have been gluten free for 5+ years!  About 2 months ago I broke out in a terribly itchy rash that has spread to both my the elbows, my lower back, knees and one hip.

 

i don't understand the only thing I can think of is I share a toaster with my kids and I was eating nuts that were packaged in a facility with wheat and eggs/sausage from cafeteria I had relaxed a little ....but I also take communion on Sundays...but I have for years.

i went gluten free because of a rash on my hands that my derm said was excema.  (I had to be very strict no communion host even  for about 6 months for it to clear) This time he is convinced it's DH. 

Is there any possibility I will test positive if it is DH?  This is so frustrating, I don't know what I am going to do I have already cracked down on no contamination and cleaner foods...but it's still spreading getting new spots. 

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kareng Grand Master
kareng
Posted

I guess that it is possible that it could be DH...you aren't gluten free.  Why did you decide to go "gluten light"? If you were actually diagnosed with Celiac,"  gluten light " is not good enough.

ravenwoodglass Mentor
ravenwoodglass
Posted

Folks with DH often have to be quite strict with the gluten free lifestyle. You need to get your own toaster and tighten up on avoiding CC.  If you are Catholic you will have to forgo the host. God will understand. If your religion allows you can bring in a gluten free cracker or bread.  You are keeping your antibodies active and that is not a good thing. It will eventually impact more than just your skin. If you haven't read it in a while it would be a good idea to read the Newbie thread at the top of the Coping section.  I hope you heal again quickly but it can take some time for the antibodies to clear the skin.

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