Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor wants me to drink contrast even though it has gluten


HaleyMoon

Recommended Posts

HaleyMoon Rookie

I posted a few weeks ago about being scared to drink the ct scan contrast, I contacted the company who makes it and they told me that it contains gluten.

the doctor said "well you have to drink it or we can't do the test." 

Its like they don't take celaic diease seriously. I've been working hard for months now trying to stay away from gluten I just can't drink that stuff.

im still having stomach pains that's why she ordered a ct scan and says it won't be clear without the contrast

i don't know what I should do everyone is telling me to just "suck it up" you're only going to be a pain for a little while.

Or that it's just "a little gluten" not enough to hurt you. 

I thought any amount of gluten could hurt you I just can't take that chance and I'm all out of ideas because my stomach still hurts eveyday.

 

thanks if anyone read all of this I would really like you're opinions should I just drink it knowing there's gluten in it? Or just find some other way?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Victoria1234 Experienced

I imagine because you have the name and brand of the contrast that you already contacted the imaging center. Did they have any options or suggestions? Possibly another brand they could order for you? It's a reasonable expectation that you should be accommodated for a health reason! And your doc should be fighting FOR you, not telling you to suck it up! Ridiculous!

kareng Grand Master

LIke we told you before - talk to the people that are taking the CT.  They should be able to get one without gluten.  there is more than one choice.  

Cara in Boston Enthusiast

I just had one done last week.  I called the CT place in advance and the first person I spoke to didn't know the answer.  She told me not to worry though, because I could have juice instead if needed.  (This made no sense to me, but whatever).  On the morning of my appointment, I called first and again, someone told me she didn't know the ingredients, but she was sure they had something gluten free.  When I got there they had already flagged my file and they brought me the banana flavored contrast drink.  It was gluten free.  The other options were not.  They took it very seriously.  Still wondering about the "juice" option though.  The banana was pretty gross.

cyclinglady Grand Master

Who is the customer here?  Unless you have government healthcare, you are in charge.   Don’t like your doctor? Shop for another one.  Stand up for your rights!  If you are young/and or sick and find that hard to do, then ask a friend or family member to champion for you.  Take notes, ask questions, research and follow up with concerns or question in writing.  Amazing what a certified nice letter can do!  

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      18

      New Guy Here...

    2. - TerryinCO replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      18

      New Guy Here...

    3. - trents replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      18

      New Guy Here...

    4. - Jordan23 replied to soulcurrent's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      63

      Shortness Of Breath (the "sighs")?

    5. - TerryinCO replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      18

      New Guy Here...


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,550
    • Most Online (within 30 mins)
      7,748

    TexasCeliacNewbie
    Newest Member
    TexasCeliacNewbie
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      So, I would assume it means that if the risk of developing celiac disease in the general population is 1%, people with the DQ2 gene have a 10% risk of developing celiac disease. So, have you or your physician concluded that you have celiac disease?
    • TerryinCO
      Here's the test result I was refering to.  I may not be understanding this correctly.
    • trents
      Thanks for the update @TerryinCO! Would you elaborate what you mean when you say your genetic tests show that you are "10x higher" for developing celiac disease? 10x higher than what? There are two main genes, HLA-DQ2 and HLA-DQ8, that have been identified as providing the potential for developing celiac disease. Since 40% of the population carries one or both of these genes but only 1% of the population actually develops celiac disease, the genetic test cannot be used to diagnose celiac disease, simply to establish the potential for developing it. Gene testing is usually done to rule out celiac disease vs. NCGS (Non Celiac Gluten Sensitivity). In other words, if gluten consumption is definitely causing someone problems but they don't have the genetic potential for developing celiac disease then the diagnosis would be NCGS. We also know that having both DQ2 and DQ8 puts one at higher risk for developing celiac disease than having just one or the other. But I'm not sure I've ever seen it quantified as in "10x higher". Not sure what you mean by this.
    • Jordan23
      I would stop Xanax. It will eat away at your DAO enzymes needed to break down histamine . No energy drinks will do the same. I use to have all reactions in stomach now it's changed and started in my chest , which completely sucks and bummed. Maybe your reacting to high histamine foods. But it's hard to avoid cross contamination.  I would get pea milk made by ripples .it's a blue bottle . Ru getting cross reactions? Corn gets me. If it says gluten free it's probably not. Nibble at new foods and wait for reactions. Could be sudden or take 2 hours but some people think it hits 2 days later no way. Avoid coffee. Stick to free range chicken and steak or fish . Do lentils package by kroger works for me it doesn't even say gluten free but works for me just rinse well. Make big soups with sweet potatoes, cauliflower,  brocoli,  cucumbers, and add lentils or cook lentils separate taste better. If you can do potatoes add those inn huge plus. If you can do dairy yogurt try Noosa or a certified gluten free one. Don't smoke I had to quit creates heat and acid in your stomach which lowers your vitamins to break food down. Your reactions are in your chest . Do smoothies everymorning with apple.  🥒 cucumbers, arugula , oranges or add what you can tolerate with water. Try a peppermint tea certified gluten free that works for you. Watch out for spices like turmeric they add flour fillers to prevent caring. I got hit hard by that.  If you have a huge attack get the pin or eat oranges quick. If quinoa works for you get certified huge plus. I could go on and on . Just nibble first wait and see then continue eating it.  It's hard to find nuts that work for you. Maybe try nuts.com..... enter with caution
    • TerryinCO
      I haven't been on the site for a while and I have some update info.   Genetic tests show I have the Celiac markers and high risk for Celiacs's  (10X it shows).  Immoglobulin A and G are low - just below the 'green' range; immoglobulin M is in the 'green'.  Zinc, Iron, magnesium, ferritin, and b12 are all in the 'green' range. I've been off the PPI for two weeks now and no real problems...minor heart burn and OTC antacids fix that.  So that's good to be off of that for good. I switched to a b complex sub lingual vitamin. I was surprised about the genetic results on Celiac markers. To my knowledge no one in my family had it or were diagnosed with it.  But they could have had and never been diagnosed.  And at 76 this has come up for me. Gluten free diet is going well and I do feel better on it - nothing major in changes - just better. I appreciate all the advice I've gotten on this site - lots of experience knowledge to draw on here. So thank you, all.
×
×
  • Create New...