Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor wants me to drink contrast even though it has gluten


HaleyMoon

Recommended Posts

HaleyMoon Rookie

I posted a few weeks ago about being scared to drink the ct scan contrast, I contacted the company who makes it and they told me that it contains gluten.

the doctor said "well you have to drink it or we can't do the test." 

Its like they don't take celaic diease seriously. I've been working hard for months now trying to stay away from gluten I just can't drink that stuff.

im still having stomach pains that's why she ordered a ct scan and says it won't be clear without the contrast

i don't know what I should do everyone is telling me to just "suck it up" you're only going to be a pain for a little while.

Or that it's just "a little gluten" not enough to hurt you. 

I thought any amount of gluten could hurt you I just can't take that chance and I'm all out of ideas because my stomach still hurts eveyday.

 

thanks if anyone read all of this I would really like you're opinions should I just drink it knowing there's gluten in it? Or just find some other way?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Victoria1234 Experienced

I imagine because you have the name and brand of the contrast that you already contacted the imaging center. Did they have any options or suggestions? Possibly another brand they could order for you? It's a reasonable expectation that you should be accommodated for a health reason! And your doc should be fighting FOR you, not telling you to suck it up! Ridiculous!

Link to comment
Share on other sites
kareng Grand Master

LIke we told you before - talk to the people that are taking the CT.  They should be able to get one without gluten.  there is more than one choice.  

Link to comment
Share on other sites
Cara in Boston Enthusiast

I just had one done last week.  I called the CT place in advance and the first person I spoke to didn't know the answer.  She told me not to worry though, because I could have juice instead if needed.  (This made no sense to me, but whatever).  On the morning of my appointment, I called first and again, someone told me she didn't know the ingredients, but she was sure they had something gluten free.  When I got there they had already flagged my file and they brought me the banana flavored contrast drink.  It was gluten free.  The other options were not.  They took it very seriously.  Still wondering about the "juice" option though.  The banana was pretty gross.

Link to comment
Share on other sites
cyclinglady Grand Master

Who is the customer here?  Unless you have government healthcare, you are in charge.   Don’t like your doctor? Shop for another one.  Stand up for your rights!  If you are young/and or sick and find that hard to do, then ask a friend or family member to champion for you.  Take notes, ask questions, research and follow up with concerns or question in writing.  Amazing what a certified nice letter can do!  

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,767
    • Most Online (within 30 mins)
      7,748

    Pasquale De Blasio
    Newest Member
    Pasquale De Blasio
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • julie falco
    • Dhruv
      @trents I absolutely understand the perspective of getting off completely from wheat,  but sometimes situation may occur that you won't have choice to eat other than wheat,  my son travels a lot, since they travel in team, it's not easy to go out and find him a gluten free every single time! I have seen, even in NJ I m struggling to find out gluten free stuff, in this country we don't get fresh food in stores, other day i saw gluten free bread so hard that will never feel to eat it! Once in while means once in a while, when there is no absolute option. Here all goes by book, there is no enough scientific research done yet on eating gluten with celiac,  everyone has there own narrative,  only it being said don't eat wheat, but Noone has come up with the experience. And moreover my sons diagnosis is yet to define, whether he has celiac or NCGS. last time his endoscopy came negative hence doctor did not bother to tell us. I hope this time it will be the same case. We are figuring out why his billirubin is high, may be that could be the reason his igg iga test is high, will get check on all and come to the conclusion. My son and us is absolutely fine not eating gluten, but one can't guarantee that every time they will get the gluten free food other than home. I also don't trust under the table of "gluten free products" have see people still have same iga igg count even after following the diet. This is all learnings, will keep him under observation and go through the regular testing to find out how his body reacts to what.  I may sound like a fool, but medical is scam in US, hence i would consult doctors in India. 14 years ago they have announced i had a breast cancer, which was not, since then I don't trust medical system here.
    • Scott Adams
      Here are two older articles we've done on this topic which might be helpful:  
    • Rogol72
      I've been to Italy recently for a wedding and it was excellent. I made my own gluten-free sandwiches/pannini to take on the flights.  Spain is good and you can get good gluten-free breads in the supermarkets there. The UK and Ireland are very good also. Australia would be good since Coeliac Disease is fairly common there ...1 in 70 as opposed to 1 in 100 in other countries. You have to advocate for yourself in restaurants when eating out. I've read about several Coeliacs being cross contaminated from preordered gluten-free meals on airlines. Personally, I wouldn't trust a gluten-free meal on an airline especially long haul. Try the hashtag celiactravel on tiktok and instagram. Loads of Coeliacs posting about their experiences with plenty travel tips. The Atly app has a list of gluten-free friendly restaurants worldwide.
    • Pat Denman
      "Do not follow after the crowd to do what is bad." Bible. The world is full of crazy people who have little love for their neighbor. Eat what is best for you and ignore their recommendations. 
×
×
  • Create New...