Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor wants me to drink contrast even though it has gluten


HaleyMoon

Recommended Posts

HaleyMoon Rookie

I posted a few weeks ago about being scared to drink the ct scan contrast, I contacted the company who makes it and they told me that it contains gluten.

the doctor said "well you have to drink it or we can't do the test." 

Its like they don't take celaic diease seriously. I've been working hard for months now trying to stay away from gluten I just can't drink that stuff.

im still having stomach pains that's why she ordered a ct scan and says it won't be clear without the contrast

i don't know what I should do everyone is telling me to just "suck it up" you're only going to be a pain for a little while.

Or that it's just "a little gluten" not enough to hurt you. 

I thought any amount of gluten could hurt you I just can't take that chance and I'm all out of ideas because my stomach still hurts eveyday.

 

thanks if anyone read all of this I would really like you're opinions should I just drink it knowing there's gluten in it? Or just find some other way?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Victoria1234 Experienced

I imagine because you have the name and brand of the contrast that you already contacted the imaging center. Did they have any options or suggestions? Possibly another brand they could order for you? It's a reasonable expectation that you should be accommodated for a health reason! And your doc should be fighting FOR you, not telling you to suck it up! Ridiculous!

kareng Grand Master

LIke we told you before - talk to the people that are taking the CT.  They should be able to get one without gluten.  there is more than one choice.  

Cara in Boston Enthusiast

I just had one done last week.  I called the CT place in advance and the first person I spoke to didn't know the answer.  She told me not to worry though, because I could have juice instead if needed.  (This made no sense to me, but whatever).  On the morning of my appointment, I called first and again, someone told me she didn't know the ingredients, but she was sure they had something gluten free.  When I got there they had already flagged my file and they brought me the banana flavored contrast drink.  It was gluten free.  The other options were not.  They took it very seriously.  Still wondering about the "juice" option though.  The banana was pretty gross.

cyclinglady Grand Master

Who is the customer here?  Unless you have government healthcare, you are in charge.   Don’t like your doctor? Shop for another one.  Stand up for your rights!  If you are young/and or sick and find that hard to do, then ask a friend or family member to champion for you.  Take notes, ask questions, research and follow up with concerns or question in writing.  Amazing what a certified nice letter can do!  

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,209
    • Most Online (within 30 mins)
      7,748

    Sharon Camden
    Newest Member
    Sharon Camden
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
    • trents
      Jason, I have a bone to pick with your terminology. There is "gluten intolerance" which I believe is synonymous with celiac disease and then there is "gluten sensitivity" which comes from Non Celiac Gluten Sensitivity or NCGS for short. It is true, however, that there is still a lot of inconsistency in the use of these terms.
    • Liquid lunch
      I can’t say this will work for everyone but for me the difference is incredible so might be worth trying. I’ve never been diagnosed celiac but via an elimination diet I realised I can’t eat any lectins, gluten soy and oats are particularly problematic. If I eat them I’m in bed for a week, then heavy bleeding and extreme pain for another, followed by a third week of bleeding on and off. My skin was a mess and it snowed when I brushed my hair. Since taking reishi and cordyceps mushroom tincture I can’t believe the difference, I’ve had a lot of help from this site so I want to return the favour. I took the tincture for my guts but the most apparent effect is that I feel like my brain works again, I can’t begin to describe how wonderful it is to be able to achieve basic things, I’ve barely been able to organise getting out of bed for so long, it feels like I haven’t been hit over the head with a mallet for the first time in years. Then I glutened myself, not necessarily gluten as so many things wipe me out but definitely ate something I shouldn’t have, I took a treble dose of the tincture and almost immediately felt much better so continued with the increased dose and three days (not weeks) later was back to feeling great, no bleeding involved. My skin is better than I can remember it ever being, I feel great 😊. I spend £1.50 a day on these but it’s worth every penny, I hope this helps someone else out there reading this. I wish I’d known about them 20 years ago. best wishes everyone 🍄 
    • Scott Adams
      Given your history of a high TTG (167) that decreased to 16 on a gluten-free diet, along with genetic confirmation of celiac disease, it’s likely the negative biopsy is a false negative due to not eating gluten before the endoscopy. Gluten is necessary to trigger the intestinal damage seen in celiac disease, and avoiding it can lead to healing and a normal biopsy despite ongoing immune activity (reflected in your still-elevated TTG). The inflammation observed during the endoscopy (“diffuse moderately erythematous mucosa”) could be residual damage, mild ongoing inflammation, or another condition like peptic duodenitis, but it’s consistent with celiac disease in context. Continued positive blood markers suggest ongoing gluten exposure, possibly from cross-contamination or hidden sources. Strict adherence to a gluten-free diet and follow-up testing are key to managing symptoms and reducing inflammation. Discuss these findings with your doctor to confirm the diagnosis and refine your dietary approach. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Yes, it sounds like great progress, but what was the time frame between the two endoscopies? 
×
×
  • Create New...