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How many times your child go to poop a day?


vickyloveaimee

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vickyloveaimee Explorer

My child has poop three times a day, celiac test so far inclusive,just want to ask how many times your child goes to poop?


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cyclinglady Grand Master

Some celiacs are chronically constipated, others are just have  “normal” bowel movement and others have diarrhea.   If I recall, your child had a positive on the DGP IgA (exactly how I tested).   Are they going to retest?  

desirun Explorer

Agree with Cycling Lady. My friend's daughter with Celiac is chronically constipated and takes Miralax daily. My daughter was diagnosed 9 weeks ago. She initially had diarrhea 5-6 times a day. Now that she is gluten free, she has 1-3 formed BM's a day. 

One thing I've really learned is the symptoms vary so very much from person to person.  

vickyloveaimee Explorer

Cycling lady 

good memory! I do bring my daughter to consult celiac doctor at university of Chicago ,we may repeat one more time of celiac panel to decide do scope or not,doctor also told me only gliandian Iga positive it’s usually not what they look, so I’m postpone scope for now, thanks for your reply , wish you good health and I wish  my daughter will not have truly celiac .

cyclinglady Grand Master

I hope it works out for you.  No one wants a sick child.  My heart goes out to her.  

Again, I have NEVER had a positive in the TTG or EMA tests.  I have had the test run at least four times in either  a follow-up visit or after a severe glutening.  Only my DGP IgA is ever elevated.  I have researched like crazy.  I know everyone thinks the TTG is the best, but the reality is not everyone is the same and there is no “one size fits all” approach when diagnosing celiac disease.  

Because your daughter has tested out this way, consider getting the biopsies if her DGP IgA is still elevated.  If my initial GI had not ordered the entire panel, my diagnosis would have been missed.  As it stands, I had anemia, still have Osteoporosis, and another autoimmune issue that will never resolve.  Please keep this in mind as she ages. 

I wish you the best!  

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      Hi @sillyyak52, I empathize with you. I would suggest showing them pictures of "dermatitis herpetiformis" which is a complication of undiagnosed/untreated Coeliac Disease. You can find them on Google images. It's pretty alarming to see and it may be the wake up call they need to visually understand what gluten can really do to the body. In this case the skin ... The Coeliac rash that won't go away without a strict gluten free diet and Dapsone treatment (a toxic antibiotic). I'd also look at @glutenhatesmyguts on youtube  ... a funny educational take on Coeliac Disease ... the clips titled as follows may help ... "Celiac Disease Explained | Why Gluten REALLY Hates My Guts!" and "Story time: I almost ..." This person is on Tiktok also and has a category "Coeliac & gluten-free Info ". There's plenty of Coeliacs on Tiktok and IG posting frequently and advocating for themselves about the need to be strict and what happens when they get glutened.    Celiac Canada also has good resources on YT, both long and short educational clips  ... @CCACeliac . Do you know any Coeliacs in your area who could help you explain the need to be so strict? Some Coeliacs have mild symptoms while others have awful reactions to just a few crumbs. Or maybe the nurse could put you in contact with some other Coeliacs or a support group to help you with your family. Hope this helps you. And keep advocating for yourself no matter what.
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