Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

News: Celiac.com: PvP Biologics Creates First Therapeutic Enzyme for Celiac Disease


Scott Adams

Recommended Posts

Scott Adams Grand Master

Around 1 percent of the American population is affected by celiac disease. For the ... Most are slow or don't target all of the gluten molecules. ... “The obvious [benefit is that] you don't have to worry about following a gluten-free diet.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Good in theory but I have a feeling they will flop like all of the other enzyme therapies.....like trying to prevent the sticky floor and mess of pouring a glass of juice on the floor by putting down a pile of paper towels...you going to get most of it but some is going to get through some is going to splatter and cause collateral issues......you can not just intercept and try to prevent a reaction to a bloody molecule smaller then a germ, a dang protein, buy trying to eliminate it after it has entered the body......like drinking bleach/antifreeze and trying to puke it all back up....it is in your body your going to get some ill effect maybe not as bad or quick.  

Key is eliminating the gluten before it enters the body, or turning off the bodies response to the protein. THOSE would be what we need, I see more potential in a kind of "gluten vaccine" that might turn off our immune response to gluten. Even is just a temporary measure like say a crispr RNA treatment or a targeted immune suppressant.

I think these doctors might have to experience how even the tiniest CC effects many of us and how before they try coming up with a half baked treatment of dealing with it in the body.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - melthebell replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Persistent isolated high DGP-IGG in child despite gluten-free diet

    2. - Rebeccaj posted a topic in Coping with Celiac Disease
      0

      Help where to apply for jobs !

    3. - Known1 replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Reverse Osmosis (RO) Water

    4. - knitty kitty replied to Rosalie P's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Oat &gluten free eczEMA MOISTURIZER

    5. - Scott Adams replied to Rosalie P's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Oat &gluten free eczEMA MOISTURIZER

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,504
    • Most Online (within 30 mins)
      7,748

    Brailyn
    Newest Member
    Brailyn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • melthebell
      Thanks very much for taking the time to write. I have been reading a lot about this and it definitely is not straight forward. My first port of call is the gene test - probably should have had it done before we left Australia because they don’t run the test in Japan. So I’ve ordered a third party test kit and just swabbed his cheek. Then we start the gluten challenge and see how it goes. 
    • melthebell
      Thank you everyone for t thank you for sharing your story. I’m borderline obsessive in making sure my kids get tested; my parents are convinced undiagnosed celiac in childhood stunted some of my growth and cause tooth enamel issues.  We now embark on a gluten challenge which comes with its own problems and I know diagnosis after being gluten-free can be difficult to secure. But I will absolutely persevere. 
    • Rebeccaj
      Hey guys.  Has anyone ever worked in McDonalds or hungry jacks or kfc with coeliac disease.!? like different packaging to fresh bakery cooked bread? Did they get neurological symptoms.!  Thanks.
    • Known1
      I am honestly not sure.  Initially I was purchasing my RO water via a refill station at the same store for the past several years.  My employer (at the time) also has an RO water filtration system.  Thus while drinking water and coffee at home or work, I was consuming RO water.  I just so happened to switch to a gallon of sealed store bought distilled water at home and instantly felt better.  I know that sounds like an exaggeration, but it is true.  My initial thought was the RO water refill station must have been contaminated, possibly from some sort of cleaning agent. Later I bought completely sealed RO water from a different store.  Again, my stomach started making crazy noises and I felt off.  It took a few days to get through all of the RO water I bought.  I thought it was distilled or spring, but after reading the label a bit closer...nope it was RO water.  Again, as soon as I stopped drinking it my stomach settled and I felt SO much better. I cannot say what it is about RO water that does not agree with me, but there are threads on Reddit and elsewhere on the Internet with plenty of people reporting GI related issues from RO water.  I linked to one in my original post within this thread.  While doing more research, I have discovered that RO water filtration systems should not be used with copper plumbing.  Per Google AI Overview:  Reverse Osmosis (RO) water should not pass through or be stored in copper plumbing because the purified, low-TDS water is highly aggressive and causes corrosion, pitting, and pinhole leaks in copper pipes. RO water leaches copper, resulting in a metallic taste and potential health risks like copper poisoning. Always use polyethylene (plastic) tubing for RO systems. The more I learn about RO water, the more I plan to steer clear.  If it is well know to damage and leach copper...well I'll just leave it at that.
    • knitty kitty
      Welcome to the forum, @Rosalie P, I like tallow balm for my eczema.  Vintage Traditions is my favorite brand.   I find that taking Niacin B3 and Omega Threes also very helpful in healing the skin from the inside out.  Our skin reflects the state of health of our intestines.  One of the first signs I ate something that my intestines didn't like is eczema.  Milk and other dairy products definitely make my skin break out.   Have you been keeping a food journal?  Have you noticed a link between break outs or exacerbation and the food you eat?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.