Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac diagnosed 20 yrs ago - still have questions

JKB

By JKB
in Coping with Celiac Disease

Recommended Posts

JKB Newbie
JKB
Posted

Strangest thing happened yesterday at 2:30p. I accidentally ate a gluten piece of pumpkin cake. Last time I ate gluten accidentally (6 yrs ago) I threw up 10 to 12 times after about three and a half hours. Yesterday...nothing. No throwing up. No diarrhea. 

Is it possible for my body to heal from Celiac disease? I was under the impression that is not possible. 

Any comments about your experiences would be appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
Just now, JKB said:

Strangest thing happened yesterday at 2:30p. I accidentally ate a gluten piece of pumpkin cake. Last time I ate gluten accidentally (6 yrs ago) I threw up 10 to 12 times after about three and a half hours. Yesterday...nothing. No throwing up. No diarrhea. 

Is it possible for my body to heal from Celiac disease? I was under the impression that is not possible. 

Any comments about your experiences would be appreciated.

Your intestines are healed. You still have Celiac.  Repeated gluten exposure will cause the damage again.  

 

Its possible that you are healed enough that a one time exposure isn't too bad.  

Judy3 Contributor
Judy3
Posted

I've noticed over the years that my reactions are not as severe either.. but I try not to consume

  • 4 weeks later...
cap6 Enthusiast
cap6
Posted

As was explained to me - Your gut heals and yes, you probably could eat gluten again and not feel any ill affect, for a while.  However....!  The damage is starting all over again.  Like picking a scab off of a sore.  Sort of a nasty comparison but accurate.  Celiac never goes away.    Google the banana babies.  Very interesting as it fully explains why celiac was once thought to be a childhood disease, 

Jmg Mentor
Jmg
Posted
On 11 December 2017 at 12:23 AM, cap6 said:

As was explained to me - Your gut heals and yes, you probably could eat gluten again and not feel any ill affect, for a while.  However....!  The damage is starting all over again.  Like picking a scab off of a sore.  Sort of a nasty comparison but accurate.  Celiac never goes away.    Google the banana babies.  Very interesting as it fully explains why celiac was once thought to be a childhood disease, 

That is a fascinating read, should be required reading for any scientist really.

There are a lot of posts on here and elsehwhere from people who were told that they would / had 'grown out' of it. I had asthma from late childhood and was told similar. I 'grew out of it' 30 years later when I changed my diet.

cap6 Enthusiast
cap6
Posted

Some time back I met an elderly lady that was one of the banana babies.  She had recently been rediagnosed with celiac.   It is amazing at the strides that have been made in just the 8 years since I was first diagnosed.  Hope for the future that as many won't endlessly suffer. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,998
    • Most Online (within 30 mins)
      7,748
    Maryam Goli
    Newest Member
    Maryam Goli
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Vaccines

      By Scott Adams · Posted

      I just want to mention again that IF thimerosal is used in a flu vaccine the amount of ethylmercury in a single vaccine dose would be extremely small, typically around 25 micrograms (µg) or less. For context, this is much lower than the levels of methylmercury found in some seafood. Ethylmercury is metabolized and excreted from the body much faster than methylmercury. Its half-life in the blood is about 7 days, compared to methylmercury, which can persist for months. The dose of ethylmercury in vaccines is far below the threshold known to cause toxicity so would not require chelation.
    • knitty kitty
      Vaccines

      By knitty kitty · Posted

      If you have poor reactions to vaccines, preservatives, sugar alcohols and metals, you may be deficient in Thiamine Vitamin B1.  Thiamine is needed in the immune response and production of antibodies.  Thiamine can be depleted by vaccines if you are already low to begin with due to the Malabsorption of Celiac Disease.  Thiamine can be destroyed by sulfide preservatives in vaccines, which can result in the body's poor response to vaccines.  Thiamine also chelates metals which allows those metals to be removed in the feces.  Chelation removes thiamine from the body, resulting in a state of thiamine deficiency.  Sugar alcohols need to be processed through the liver using thiamine.  Again, if you're low in thiamine as many Celiac are because of the Malabsorption of celiac disease, vaccines can be a tipping point, resulting in a thiamine deficient state. High doses of Thiamine required to correct thiamine deficiency states are safe and nontoxic.  Thiamine has no toxicity level.  Thiamine and the other B vitamins need to be taken together because they interact together to sustain health.   References: https://pubmed.ncbi.nlm.nih.gov/25542071/ https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/
    • knitty kitty
      Increasing symptoms after going gluten free

      By knitty kitty · Posted

      @Pasballard, Keep in mind those gluten free processed snacks are not required to have vitamins and minerals added to them to replace vitamins lost in processing like gluten containing products.   We need the eight essential B vitamins to turn those carbs into energy to fuel our bodies and make enzymes that sustain life.  Sudden weight gain (or weight loss) can be symptomatic of Thiamine Vitamin B1 deficiency.  Thiamine is the B vitamin with the shortest storage time, and so  thiamine deficiency shows up first with vague symptoms like weight gain or loss, fatigue, not sleeping well, achy or cramping muscles, digestive issues and headaches.   Taking vitamin and mineral supplements helps boost your body's ability to absorb these nutrients which keeps our bodies healthy.  B Complex vitamins and Vitamin D (which regulates inflammation) are usually low in people with Celiac disease.  Talk to your doctor and nutritionist about supplementing.
    • knitty kitty
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By knitty kitty · Posted

      Welcome to the forum, @WildFlower1, Here's an article that explains about the updated gluten challenge guidelines.  Be sure to read the comments below the article. Have you been checked for nutritional deficiencies?  Low iron can affect antibody production, causing false negatives on antibody testing.  Do you currently struggle with low iron?   Low Vitamin D can cause amenorrhea, cessation of menstrual periods.   Correcting nutritional deficiencies is a big part of Celiac disease.  We don't absorb well the eight essential B vitamins and other vitamins and minerals like calcium, resulting in osteopenia, hair loss, infertility, and neurological symptoms.  Unfortunately, doctors are not given much training in nutritional deficiencies and don't recognize the connection with the malabsorption of Celiac disease. We get very frustrated here with doctors ordering us to put a harmful substance in our bodies in order for them to say "that makes you sick".   Duh, we know that already. Do try to increase your consumption of gluten for at least two weeks before retesting.  Eat the chewy kinds of breads.  Cookies and cakes don't have as much gluten in them as those chewy artisan breads and thick pizza crusts. I admire your tenacity at continuing the gluten challenge.  Do keep us posted on your progress.  We'll continue to support you on your journey to diagnosis and recovery.
    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

      I would continue with your gluten challenge for another 2-3 weeks with the increased intake of gluten as outlined above.  You now say if you were confirmed to have celiac disease you would be even more strict about avoiding cross-contamination whereas in your first post you said, "Previously for many years 10+ I have been on a strict gluten free diet." Those statements seem to contradict one another. The celiac community as a whole understands that to be "on a strict gluten free diet" necessarily involves significant attention to cross-contamination. If you have not been strict with regard to CC up to now, it is difficult to say how that may have compromised your recovery and contributed to ongoing symptoms. Yet, even a significant reduction that falls short of gluten free can yield negative test results.
×
×
  • Create New...