Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg Omg Omg!

cherie012

Recommended Posts

cherie012 Apprentice
cherie012
Posted

OK. I know the whole BM topic is kind of gross, but..you all will totally understand, I hope..... He had his first EVER in his life NORMAL BM!!!!! OMG OMG I am SOOOOOOOOOO happy!!!!! Oh happy day!!!! I think this is it! This is the key! No meds! I told the DR we already began a food trial, and our results so far..... Oh I hope this continues! Maybe he'll gain and grow now.... :D:lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

LoL! :-)

Congratulations!

Smunkeemom Enthusiast
Smunkeemom
Posted

Oh I remember the first normal BM that Annika had after her start on the gluten-free diet. I thought about recording it in her baby book LOL

Congrats, it's a great feeling when you know your kid is feeling better. It makes you feel like all this work (figureing out the diet) really is worth it.

:D

dlp252 Apprentice
dlp252
Posted

Where else but here would everyone TOTALLY understand! :) Congratulations!

VydorScope Proficient
VydorScope
Posted

Woot! COngrats! Yea, prbly everyone here can relate LOL what a world we live in , eh?

traveljunkie Rookie
traveljunkie
Posted

:) Yeah!!! It's so wierd wierd how we get excited about poop! :P Keep on with the diet, it seems to be the answer!!

Charlene

Guest nini
Guest nini
Posted

YAYYYYYYY!! Doing the happy poopy dance!!!! :lol::lol::lol::lol:

I do remember the first time my daughter had a solid bm after going gluten free! I thought it was a MIRACLE!!!!!

yeah, where else would people TOTALLY understand! Congrats!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cherie012 Apprentice
cherie012
Posted
  • Author

Ya know, I was SO happy, I called my family ( poor people LOL) DH, and wrote the ped GI... I am ESTATIC. I mean, that is a BIG first around here. sounds SO silly, but man! We can do this. It seems to be helping... :huh: Thank you all SOOOOO much for tolerating my insessant questioning, LOL. You all helped seal the deal for me to start gluten-free first......

:D:D

taweavmo3 Enthusiast
taweavmo3
Posted

Oh yeah, we all TOTALLY get how excited you must be! I'm so glad you are already seeing results...that makes any challenges you face completely worth it!

What's funny, is that I'm so used to talking about BM's, I forget sometimes that others are still quite embarrassed to talk about it. So, I'll be spouting off about Ben's diarrhea, or whatever......and I'll get the strangest looks from some people. Even my dad, he hates it when I even say the word diarrhea. I don't even think twice about it anymore, it's part of our normal daily conversation these days when it comes to talking about the kids!

Rachel--24 Collaborator
Rachel--24
Posted

Thats great news! Wasnt it just a couple days ago the doctor was suggesting meds? Sounds like your child is responding very quickly to the diet change so I'm sure you have your answer now. :)

cherie012 Apprentice
cherie012
Posted
  • Author
Thats great news! Wasnt it just a couple days ago the doctor was suggesting meds? Sounds like your child is responding very quickly to the diet change so I'm sure you have your answer now. :)

I had put him on the diet myself last week~ it wasn't hard because he's small, and the main thing I had to do was replace his snack foods~ generally dry cherios or puffed wheat, or crackers with other things. we beefed up his fresh fruit and veggie intake as well instead of the other snacks he was using, and put rice cereals in place of the wheat, rice crackers in place of the others. There wasn't an immediate change~ but it tapered down to same ol same ol but 2 times one day, to one, and today was "normal" His dr said saturday on the phone he wanted to do drugs first, because he didn't want to restrict his diet ( I already had resticted it, but wasn't really hopeful after my conversation with him that it would work at all, since it had been a few days and still no change.)

Judyin Philly Enthusiast
Judyin Philly
Posted
OK. I know the whole BM topic is kind of gross, but..you all will totally understand, I hope..... He had his first EVER in his life NORMAL BM!!!!! OMG OMG I am SOOOOOOOOOO happy!!!!! Oh happy day!!!! I think this is it! This is the key! No meds! I told the DR we already began a food trial, and our results so far..... Oh I hope this continues! Maybe he'll gain and grow now.... :D:lol:

Congrats....It must be awful to see your child go through this...I know how i felt about my first formed BM 20 weeks ago after 10 years.....what a wonderful season blessing.

judy in philly

mytummyhurts Contributor
mytummyhurts
Posted
His dr said saturday on the phone he wanted to do drugs first, because he didn't want to restrict his diet

That's really weird to me...he's concerned about your child not being able to eat a few things that could possibly be causing serious damage...but he's okay with putting a bunch of chemicals in him? :huh:

cherie012 Apprentice
cherie012
Posted
  • Author
That's really weird to me...he's concerned about your child not being able to eat a few things that could possibly be causing serious damage...but he's okay with putting a bunch of chemicals in him? :huh:

It was odd to us, too. He wanted to put him on steroids, and a ulcerative colitis med that has nasty side effects~ some are brain injury in children under 2..... Blood issues, etc. It had to be taken with folic acid... He wanted to see if that helped ebfore doing diet changes.. :huh:

We tend to do lots of japanese style foods in this house, so eliminating gluten for the kids isn't that bad ( say, as it is for me who is a total bread/baked good/fast food addict, lol). the main culprits of gluten here were breakfast cereals that were eaten as snacks, crackers, breaded chicken etc... the kids don't care much for bread/sandwiches.

Smunkeemom Enthusiast
Smunkeemom
Posted
What's funny, is that I'm so used to talking about BM's, I forget sometimes that others are still quite embarrassed to talk about it. So, I'll be spouting off about Ben's diarrhea, or whatever......and I'll get the strangest looks from some people. Even my dad, he hates it when I even say the word diarrhea. I don't even think twice about it anymore, it's part of our normal daily conversation these days when it comes to talking about the kids!

yeah. I get into that too. My husband has Crohns and my kids have celiac, and I have some type of IBS so we talk about poop at our house a lot.

"How are you today?"

"okay, my crohns is bothering me"

"solid, or rhea?"

"water rhea"

"I will go get the immodium"

it's a natural conversation for us, when other people figure that out they are less embarassed, but it's difficult to remember that other families aren't so open about thier bathroom stuff.

:P

e&j0304 Enthusiast
e&j0304
Posted

I'm so happy for your little guy!

That's wonderful news. Drs. are so quick to drug people and I really feel that it is most time unwarrented.

I wish your little boy the best of luck with his new diet. We have seen amazing results with it ourselves.

Take care!

Shannon

Guest nini
Guest nini
Posted

I just wanted to mention, since you said that Cheerios had been one of his fave snacks, that Glutino is now making several flavors of a gluten free cereal that is very much like Cheerios! I like the Honey Nut version!

katerinvon Rookie
katerinvon
Posted
I had put him on the diet myself last week~ it wasn't hard because he's small, and the main thing I had to do was replace his snack foods~ generally dry cherios or puffed wheat, or crackers with other things. we beefed up his fresh fruit and veggie intake as well instead of the other snacks he was using, and put rice cereals in place of the wheat, rice crackers in place of the others. There wasn't an immediate change~ but it tapered down to same ol same ol but 2 times one day, to one, and today was "normal" His dr said saturday on the phone he wanted to do drugs first, because he didn't want to restrict his diet ( I already had resticted it, but wasn't really hopeful after my conversation with him that it would work at all, since it had been a few days and still no change.)

Congrats, and good for you to be willing to try something else. I've been a nurse for ten years, and I know that doctors don't have all the answers. No one could possibly be educated in every detail of everything that can go wrong with the human body. And, like everyone else, some are more open to suggestion than others.

My daughter is undiagnosed, on the diet, and durring her last really bad episode, the Dr. (not our regular one) told us not to worry, it's probably just a virus, and gave us an antifungal for her raw bum, even after my husband explained her history. (Sigh)

Thankfully, we have the resourses, time, energy, and motivation to search out all the tiny details of something that affects our children. Try doing that for 30-50 people with 30-50 problems every day, and you can see why our Drs won't always go that extra mile. (Again, sigh)

Good luck and much happiness in your gluten free travels. :)

Karen

jenvan Collaborator
jenvan
Posted

Small victories! Woo hoo!!

cherie012 Apprentice
cherie012
Posted
  • Author

Karen, I am a RN too, but not GI, LOL. I am very new to this realm, starting with the birth of my son... I know they don't have all of the answers, but sometimes feel strange not taking thier advise, when generally it is sound. But, he is having positive results, no matter what the tests may or maynot say. It could be coincidental, but I doubt it. I will keep on going for awhile, and then trial him to see what happens. If it comes back, then we know, right?

Thanks to all!

katerinvon Rookie
katerinvon
Posted
Karen, I am a RN too, but not GI, LOL. I am very new to this realm, starting with the birth of my son... I know they don't have all of the answers, but sometimes feel strange not taking thier advise, when generally it is sound. But, he is having positive results, no matter what the tests may or maynot say. It could be coincidental, but I doubt it. I will keep on going for awhile, and then trial him to see what happens. If it comes back, then we know, right?

Thanks to all!

I'm not a GI specialist, either. Ask me about wounds, I'll tell you about wounds! (My daughter's rash ulcers looked like stage II-III decubetis ulcers!)

I agree, too, that we should not give up on our Drs, just not take everything they have to say as gosple. :) At least research what he tells you so you understand what is going on. :) Education is our best defence!

Karen

jerseyangel Proficient
jerseyangel
Posted

So happy to hear you put him on the diet yourself and are seeing positive results. I was so hoping he wouldn't have to go on the harsh steroids--Dr. gave them to me when they still thought my symptoms were a result of recurring sinus infections. (Said that the mucus draining down my throat was causing the nausea, etc.) That was years ago, and it did give me relief for a while, but by the time the disease came roaring back, a lot of damage had been done. I had injections of Decadron, and I feel that that contributed to my high blood pressure now. A lot of the side effects of steroids don't show up for years.

ianm Apprentice
ianm
Posted

Nothing makes your day like a good dump. :lol: It is rather disturbing that the doctor was quick to put a child on heavy duty drugs and not consider a dietary change first.

junieb Rookie
junieb
Posted

LOL!!!! I had the same feeling when dd just last month, at 7y, had the same thing!! I couldn't believe there was just 1 big poop in the toilet. I didn't realize how gross it always was until I saw this 1st normal one.....36 hours after eating her last bite of gluten. And, the horrible foul smell is no longer there! Her belly is noticably less distended now and the nightly stomachaches are almost gone. She is not as tired as she was and people who don't really know her situation have recently commented that she looks like she has grown during the past month. This is all so wild. Congrats!

mommida Enthusiast
mommida
Posted

I am so happy for you guys! Get ready to go shopping for the coming growth spurt!

Laura

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,832
    • Most Online (within 30 mins)
      7,748
    Cindessa
    Newest Member
    Cindessa
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • BIg Nodge
      Opinions on my test results/symptoms

      By BIg Nodge · Posted

      Hi, I have recently embarked on the gluten-free journey. I have what to me seems like a somewhat confusing set of test results and symptoms. I have been impressed by the accumulated knowledge and thoughtfulness as I browse this forum, so I figured I'd make a post to see if anyone can offer any insight. I know there are many posts like this from new users, so I have tried to do my baseline research first and not ask super obvious questions.  I'm 43, overall very healthy. No history of gluten sensitivity or really any of the classic GI symptoms. About three years ago I started to experience intermittent bouts of fatigue, chills/cold intolerance, and shortness of breath/air hunger (sometimes feels like a hollowness in my chest, hard to describe). The symptoms over time have become fairly significant, though not debilitating, I am able to exercise regularly and am fairly physically active, continue to perform well at work. But for example I have gone from someone who consistently ran hot, was always cranking the a/c, to someone who wears a down vest inside at work in winter and get chills if the a/c even blows on me in summer. I get tired and lose energy even when getting decent amounts of sleep, and have to have my wife take over on long drives that I could previously handle with no problems. More generally when I am experiencing these symptoms they seem to crowd out space in my mind for focusing on my family, my hobbies/activities etc, I sort of withdraw into myself.   I happened to be experiencing these symptoms during an annual physical with my PCP a few years ago, he observed post nasal drip and suggested it was allergies and that I treat it with claritin. At first it seemed to respond to claritin (though not zyrtex), but over time I became unsatisfied with that answer. There didn't seem to be any seasonal rhyme or reason to my symptoms, and I felt like I was on an endless loop of taking claritin, then stopping, not being sure if it was even making a difference. I did eventually get allergy tests and found modest allergies to dust and pollen, which didn't feel like a smoking gun.  I then started seeing a natural medicine doctor who was much more willing to explore my symptoms via testing. The first thing that came back abnormal was elevated thyroid peroxidase antibodies/TPOs, 137 IU/mL vs a reference range of <9. At the same time my thyroid panel showed normal thyroid hormone levels. So it appears my immune system is attacking my thyroid even though it is working fine. I got a thyroid ultrasound at the time, it was clear, but with some abnormalities such that they suggested I get is scanned again in a year. These are certainly risk factors for a thyroid autoimmune disease, though my thyroid seems to be working fine for now.  From here my doctor considered celiac due to the murky thyroid/celiac links, so we did a panel. Results were as follows: TT IGA <1 U/ml, TT IGG <1 U/ml, deamidated gliadin IGA 24.6 U/ml, deamidated gliadin IGG <1 U/ml, IGAs 170 mg/dL. Readings greater than 15 considered high by my lab for the first four, my IGAs are within reference range. So basically just the deamidated IGA popped, but my IGAs are normal. I also notice on the tests that my thyroglobulin was high, 86.7 ng/ml vs a range of 2.8 - 40.9.  My doctor suggested that it certainly wasn't conclusive for celiac, but it was possible, and likely that I have some sort of gluten sensitivity. She suggested going gluten free and seeing how I felt as opposed to doing a biopsy. The best theory I can come up with is perhaps I am a silent celiac or just have a gluten sensitivity that doesn't produce immediate GI symptoms, but is still doing damage and over time has caused leaky gut. So now gluten is getting into my blood, and my immune system is attacking it but also mistakingly attacking my thyroid.  So that's what I did, went gluten free in October. It's been about four months, and I am really not feeling any difference. I still get the same symptoms that come and go. My bowel movements may be a bit more regular, but it was never a major issue before so I would consider that a minor improvement. I know that it can take a while to see improvements, and I am going to remain gluten-free and see how I feel. But I am definitely questioning whether I really understand what is going on, and am open to any thoughts or suggestions from the forum. Sometimes I wish I just went ahead with the biopsy before going gluten-free. While I would certainly be down to start drinking IPAs again ahead of a biopsy, you know, for science, I feel like at this point I would be throwing away four months of work and am better off staying the course and seeing what happens. But I'm really not sure.  I know there is a lot of thyroid knowledge on these boards, along with the celiac expertise, so I'm curious if this resonates with anyone's experience. And I'm interested in what sort of timelines people have experienced in terms of feeling improvements for some of these non-GI symptoms like chills, SOB, brain fog etc. Thanks in advance. 
    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      Does it taste like black licorice?  It said it was chewable.  I do not like that flavor.     Since the burn at the back of my throat is there everyday, I usually only take something when it is unbearable and keeping me from ADL especially sleep.  
    • Scott Adams
      Nandos improper preparion celiac childrens food

      By Scott Adams · Posted

      Your concerns about Nando's cross-contamination practices are valid and important for the celiac community. It's disappointing that Nando's does not have stricter protocols for children's portions, especially given the risk of cross-contact with gluten-containing items like garlic bread. Cooking gluten-free items on shared surfaces, even if cleaned, is not safe for individuals with celiac disease, as even trace amounts of gluten can cause harm. While the adult butterfly chicken may be a safer option, the inconsistency in practices for children's meals is concerning. It's frustrating that Nando's headquarters did not take responsibility, but sharing your experience raises awareness and may encourage them to improve their protocols. Consider reaching out to celiac advocacy organizations to amplify your concerns and push for better standards. Always double-check with staff and emphasize the importance of avoiding cross-contamination when dining out.
    • Scott Adams
      Mucus discharge

      By Scott Adams · Posted

      I had this symptom when I was diagnosed. Are you sure that your diet is 100% gluten-free?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):      
    • Scott Adams
      Confused with test results

      By Scott Adams · Posted

      Based on your results, it seems unlikely that you have celiac disease. A negative endoscopy and the absence of HLA-DQ2/DQ8 genes (the primary genetic markers for celiac) strongly suggest you do not have the condition. However, the elevated TTG-IgA (22) could indicate a temporary immune response or another issue, such as a different autoimmune disorder, intestinal infection, or even a lab anomaly. The presence of DQA1*05 alone is not diagnostic for celiac. Meeting with an allergist and GI specialist is a good next step to explore other potential causes for the high antibodies, such as non-celiac gluten sensitivity or other immune-related conditions. Keep a detailed food and symptom diary to help guide further testing and discussions with your doctors. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...