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Look like DH? Bilateral Itchy Bumpy Elbows


Jane87

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Yaya25 Newbie
On 11/29/2017 at 6:45 AM, Jane87 said:

Hello wise people!

I'm looking for some advice from those in the know. I have a reoccurring elbow rash (bilateral) that comes and goes. First episode about 10 yrs ago at age 20.

It presents as skin coloured bumps that are really itchy on both outer elbows. Over the course of 1 to 2 weeks the bumps may turn pinker and then dry out.

I saw a Dr in the early days and was told it wasn't psoriasis and was possibly caused by leaning on my elbows. ?

After another flare up last week (first in months) I saw a Nurse, who has referred me for a Dr review in a few weeks (earliest available appointment).

In the last 3 years I have also had flare ups of; itchy bumpy fingers, itchy lower back with tiny blister/bumps that turn red and extremely itchy calves with no rash. 

My mum is gluten intolerant with skin & stomach symptoms and has hypothyroidism.

I have attached pics of my elbows from this week, and older pictures of my fingers and back rash.

Any thoughts and comments will be greatly appreciated. Does this look like DH?

PhotoGrid_1511964833749.webp

PhotoGrid_1512065525148.webp

Hi Jane, I know this was written 2 years ago, but do you have an update on your diagnosis? Did you find out the cause of your rashes? Because I HAVE THE EXACT SAME THING! 

  • 1 month later...

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Lea1702 Newbie
On 7/6/2019 at 5:31 PM, Yaya25 said:

Hi Jane, I know this was written 2 years ago, but do you have an update on your diagnosis? Did you find out the cause of your rashes? Because I HAVE THE EXACT SAME THING! 

Hello, I see your post is more recent than the OP in 2017, did you find out anything about this? My daughter has this exact rash. Comes and goes for the last 3 years. Elbows mostly and sometimes knees. She's 6. I have ceoliac in my family, but not us that I know of. Interested to find out more. Thanks.

GFinDC Veteran

Hi Lea,

Jane hasn't been on the forum for a few years.  She also isn't following this thread so she won't know you posted a question for her.

There is lots of info on DH in the forum though.  You might get more response by starting a new thread.

  • 2 weeks later...
Medicmicki67 Newbie
On 9/6/2019 at 7:27 AM, GFinDC said:

Hi Lea,

Jane hasn't been on the forum for a few years.  She also isn't following this thread so she won't know you posted a question for her.

There is lots of info on DH in the forum though.  You might get more response by starting a new thread.

I have the same thing, but no autoimmune or celiac. I find that rubbing handsanitizer on my elbows, up to 4 times a day for about a week usually makes it go away.

  • 1 year later...
Margarita Apprentice

My DH was misdiagnosed as dermatitis Until recently when I put 2 and 2 together and figured out I probably was a Celiac. I confirmed it with the gastroenterologist and the DH never shows up unless I get glutened. So when I see yours I think it's DH.

20210506_071721.webp

20210506_071718.webp

GFinDC Veteran

Welcome to the forum Margarita! :)

Please take a look through the DH (dermatitis herpetiformis) sub-forum for more info on DH.  You may find some helpful info in there.

Margarita Apprentice
2 minutes ago, GFinDC said:

Welcome to the forum Margarita! :)

Please take a look through the DH (dermatitis herpetiformis) sub-forum for more info on DH.  You may find some helpful info in there.

Thank you so much for the warm welcome! I still don't really know anything about forums and sub forums but i'm sure I'll figure it out. I was actually wondering how people have their diagnosis attached under their comments? Could you please help me with that?


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GFinDC Veteran
1 hour ago, Margarita said:

Thank you so much for the warm welcome! I still don't really know anything about forums and sub forums but i'm sure I'll figure it out. I was actually wondering how people have their diagnosis attached under their comments? Could you please help me with that?

Hi Margarita,

It used to be a person could add a signature under their profile.  If you click the down arrow next to your profile picture at top right of the page, and click "settings" you can find the signature option in the left side list.

If you click the "Forums" link in the top blue bar/banner, it will take you to a list of forum sub sections.  Scrolling down that list you can find the technical help sub forum.

https://www.celiac.com/forums/forum/44-boardforum-technical-help/

Thread on setting signature:

https://www.celiac.com/forums/topic/122913-change-signature-information/

 

Margarita Apprentice
21 hours ago, GFinDC said:

Hi Margarita,

It used to be a person could add a signature under their profile.  If you click the down arrow next to your profile picture at top right of the page, and click "settings" you can find the signature option in the left side list.

If you click the "Forums" link in the top blue bar/banner, it will take you to a list of forum sub sections.  Scrolling down that list you can find the technical help sub forum.

https://www.celiac.com/forums/forum/44-boardforum-technical-help/

Thread on setting signature:

https://www.celiac.com/forums/topic/122913-change-signature-information/

 

Thank you for your help!

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    • trents
      You are welcome! We frequently get similar comments. Knowledge about celiac disease in the medical community at large is, unfortunately, still significantly lacking. Sometimes docs give what are obviously bum steers or just fail to give any steering at all and leave their patients just hanging out there on a limb. GI docs seem to have better knowledge but typically fail to be helpful when it comes to things like assisting their patients in grasping how to get started on gluten free eating. The other thing that, to me at least, seems to be coming to the forefront are the "tweener" cases where someone seems to be on the cusp of developing celiac disease but kind of crossing back and forth over that line. Their testing is inconsistent and inconclusive and their symptoms may come and go. We like to think in definite categorical terms but real life isn't always that way.
    • Rogol72
      Hey @Morgan Tiernan, Sounds just like my experience. I was diagnosed with dermatitis herpetiformis over 10 years ago. It appeared suddenly as a very itchy rash which looked like Eczema. When a steroid cream didn't clear it up, my Dermatologist (who had come across it before) suspected dermatitis herpetiformis and performed a skin biopsy which came back positive for dermatitis herpetiformis. The important thing is to get a definitive diagnosis of dermatitis herpetiformis. What you've described sounds like classic dermatitis herpetiformis though. Hopefully, your Dermatologist has come across dermatitis herpetiformis before and performs the skin biopsy correctly as trents mentioned. I've had the blisters on the knees, hips, forearms/elbows or anywhere that pressure is applied to the skin ... from clothing or otherwise. They itch like nothing on earth, and yes salt from sweat or soaps/shower gels will irritate a lot. I've been on Dapsone and it is very very effective at eliminating the dermatitis herpetiformis itch, and improved my quality of life in the early stages of getting on top of dermatitis herpetiformis while I adjusted to the gluten-free diet. But it does have various side effects as trents said. It can effect the red blood cells, lowering hemoglobin and can cause anemia, and requires regular blood monitoring whilst on it. You would need to consider it carefully with your Dermatologist if you do have dermatitis herpetiformis. Here's a very informative webinar from Coeliac Canada discussing everything dermatitis herpetiformis related.  https://www.youtube.com/watch?v=PAdmsNiyfOw I've also found this recent interview with a Dermatologist about dermatitis herpetiformis to be educational.  https://www.youtube.com/watch?v=rZnLeKutgUY Keep the chin up and keep advocating for yourself for a proper diagnosis. Though it sounds like you're on top of that already. Are you in the UK or Ireland? I'm curious because your surname is Irish. 
    • Philly224
      Thanks again everyone! Twenty mins on here way more helpful than both Dr's combined 😅
    • trents
    • trents
      I would go for four weeks to ensure a valid test, if you can tolerate it, that is.
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