Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Have Actual Lab Tests In Hand..

cherie012

Recommended Posts

cherie012 Apprentice
cherie012
Posted

I recieved my son's blood work back today in hand ( not just a phone conversation to tell me...)

The only ones I see of importance are the immunoglobins, all read OK, but none are what I see talked about ( the anti globulins..)

IGG was "normal" at 744mg/dl

IGA was "normal" at 105mg/dl

IGM was "normal" at 56mg/dl

He did have anemia/low iron and some elevated liver enzymes (AST)

He has 2 genes for celiac Dq2 and DQ8 ( if my memory is correct. I know it is 2 of them.)

Now, I cannot find what these values would be if they were"positive" and I guess it may be a moot point since he is reacting well on the gluten-free diet ( resolution of symptoms) He is almost 2... Any advice on where to look?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted

Every lab has different "values" as to what is positive or negative so I dont think it would be possible to tell you what number a positve would have been.

Were these tests specifically for Celiac?

The Celiac panel consists of these 5 tests:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

Were the IgA & IgG tests for anti-gliadin or something else?

cherie012 Apprentice
cherie012
Posted
  • Author

No, the ones I have are just the antibodies, not the Aga,Ema etc.... It is just an immunoglobins panel..... <_<

Rachel--24 Collaborator
Rachel--24
Posted

It doesnt sound like the proper tests were run. The best tests are the tTG and EMA. Also if the IgA and IgG arent specifically for anti-gliadin then they are useless as far as diagnosing Celiac.

Guest nini
Guest nini
Posted

sounds to me like they did the same thing to you that they did to me in regards to my daughter... ran some tests (BUT NOT THE CORRECT TESTS FOR CELIAC) the test results were too vague or inconclusive to even be useful. With my daughter they said, "oh she just has IBS, INCREASE HER WHOLE WHEAT INTAKE"!!!!!! grrrrrrr I still get mad when I think about it. They totally poo pooed me even when I told them that I had been positively and conclusively dx with celiac and that she was showing ALL of the same symptoms that I had as a child. The problem is that too many Dr.s do not know enough about Celiac and are still operating under the mistaken assumption that Celiac can only be dx by a biopsy and that it is very rare. Both of which are not true. The specific blood panel that was mentioned is VERY specific for dx'ing Celiac and very conclusive, but without that, a positive dietary response is JUST AS VALID a test in my honest opinion.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,692
    • Most Online (within 30 mins)
      7,748
    NICODE
    Newest Member
    NICODE
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • growlinhard1
      Colonoscopy with large are of inflammation

      By growlinhard1 · Posted

      Thank you for the response. I didn't think of  the things you presented but they make a ton of good sense. I'm in the USA so no stipend for a formal dx. With the added cost of gluten free food, I wish there was some program to help. I bought a loaf of gluten free bread that cost $7.99 and my usual multi grain is $2.57!  I REALLY felt the doctors taking you more seriously comment. That is a huge issue. I just had fairly extensive blood work done, none of which was testing for celiac, and everything came back normal. I felt completely dismissed by my doctor even though my symptoms remained unchanged. As a matter of fact, Celiac disease wasn't even on my regular doctors radar. I think after studying the symptoms and comparing them with my symptoms that should have been one of his top differential diagnoses. I will follow your advice and wait until after the bx to begin eating gluten free. I'm fairly certain of the diagnosis at this point because 4 days of no gluten has made a difference. I feel somewhat stronger, nowhere near as anxious or irritable, urinating every 2 hours instead of every 30 minutes to an hour and much less nausea.  If anybody has any other words of wisdom, advice, really anything, please let me know..I'm kind of alone in this.
    • knitty kitty
      Not sure if this is Celiac or just a gluten-free intolerance

      By knitty kitty · Posted

      Yes, some people with Celiac do react to quinoa.  I know i do.  Apparently, two different "breeds" of quinoa can stimulate the immune system. Read here... Variable activation of immune response by quinoa (Chenopodium quinoa Willd.) prolamins in celiac disease https://pubmed.ncbi.nlm.nih.gov/22760575/#:~:text=Cultivars Ayacuchana and Pasankalla stimulated,for patients with celiac disease. And some of us react to corn (maize) as well. Maize prolamins could induce a gluten-like cellular immune response in some celiac disease patients https://pubmed.ncbi.nlm.nih.gov/24152750/   P.S. @Brook G have you thought about getting a genetic test done for known Celiac genes?  
    • Brook G
      Not sure if this is Celiac or just a gluten-free intolerance

      By Brook G · Posted

      People who are Celiac don't have a gluten response to Quinoa, but some people who are gluten intolerant do.  I react to quinoa just like I do to gluten.  Freddies/Kroger came out with their own gluten-free Bread and I didn't think to read the ingredients.  I couldn't figure out where I would have gotten gluten in my diet until I read the ingredients in their bread... QUINOA
    • trents
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By trents · Posted

      Thanks for the additional information. I was thinking of asking you if your daughter was taking methylated vitamins since she has the MTHFR gene but you beat me to it. To answer the question you posed in your original post, as I explained, celiac disease does not damage the colon but the lining of the small bowel. If the damage is pronounced enough and the doc doing it is experienced, yes, the damage done to the lining of the small bowel can be spotted with the naked eye.
    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      I could not locate the correct Gary Brecka video where he explains the methylation process and specifically states things about how people with the MTRR homozygous gene mutation are known to suffer from heartburn due to a weakened valve/sphincter where the esophagus and the stomach connect.  My brother had the youtube video sent to him from 10x health which is probably why I cannot locate it.     I will have read up on mast cell activation.  I do not know anything about it.  Tums is my preferred gerd treatment.  I always figured a little extra calcium could not hurt me.  
×
×
  • Create New...