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My test results


Amber C

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Amber C Newbie

In 2013 I went in to my gasto dr. after continued abdominal pain. He did a Celiac panel b/c I requested it. I had tried a 3 day gluten-free diet prior to my test. My results were:

tTg IGA 35U/ml ref 0-15

 

The dr did not read my test result before doing an endoscopy. All I know is I feel better without gluten so I live gluten-free but i just want to know what these tesults mean

965D5E5B-AC38-40D7-BBD8-7A5578781D2E.webp


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cyclinglady Grand Master
10 hours ago, Amber C said:

In 2013 I went in to my gasto dr. after continued abdominal pain. He did a Celiac panel b/c I requested it. I had tried a 3 day gluten-free diet prior to my test. My results were:

tTg IGA 35U/ml ref 0-15

 

The dr did not read my test result before doing an endoscopy. All I know is I feel better without gluten so I live gluten-free but i just want to know what these tesults meanimageproxy.php?img=&key=1feb3715dcf3f684

965D5E5B-AC38-40D7-BBD8-7A5578781D2E.webp

As the test says, your TTG results indicate that you could have celiac disease and that the next step would be to get an endoscopy to obtain intestinal biopsies.  But it sounds you did not do that or that your biopsy was negative.  

You have been gluten free for years.  Do you suspect that gluten is not an issue for you?   What made you look at the old test result?

 

Amber C Newbie

I had an endoscopy it was negative or didnt show damage to the villi. he didnt read my blood work before performing my endoscopy, and called me back telling me that my blood work was positive but that he was just going to keep my diagnosis of IBS. i have been living gluten-free i just would like to know if his IBS diagnosis is accurate bc i keep hearing that if i eat gluten-free and do not need to i may do myself more harm than good.

Amber C Newbie

And i am now anemic and just want to make sure that my gluten-free lifestyle is necessary and what i need to do

RMJ Mentor

You could try the gluten free diet for six months then have your antibody levels remeasured.  If the  tTG IgA goes down, it would suggest that gluten was causing your body to make that antibody.  Celiac damage can be missed in an endoscopy.

squirmingitch Veteran

I take it you have been gluten free since the test in 2013?

Amber C Newbie

yes but i’m experiencing some fatigue and anemia so i wanted to make sure that i am going the right route


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squirmingitch Veteran

Then are you positive you aren't getting cross contaminated somewhere? I take it the anemia is reflected in blood tests? Read the Newbie 101. It will help you determine if you really are as gluten free as you think you are.

 

cyclinglady Grand Master
On 12/15/2017 at 3:56 PM, Amber C said:

I had an endoscopy it was negative or didnt show damage to the villi. he didnt read my blood work before performing my endoscopy, and called me back telling me that my blood work was positive but that he was just going to keep my diagnosis of IBS. i have been living gluten-free i just would like to know if his IBS diagnosis is accurate bc i keep hearing that if i eat gluten-free and do not need to i may do myself more harm than good.

Well, the gluten free diet will not hurt anyone really.  The problem is that people who go gluten free often trade one bad food for another — like cookies for gluten free cookies.  Neither is really healthy for you.  If you eat a varied diet of meats, fish, poultry, veggies, fruit, nuts, good fats and gluten free grains, you will be fine.  

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    • trents
      Welcome to the forum, @ABP! We can't comment on the test numbers you give as you didn't include the range for negative. Different labs use different units and different ranges. There are no industry standards for this so we need more information. If your daughter doesn't have celiac disease she still could have NCGS (Non Celiac Gluten Sensitivity) which some experts believe can be a precursor to celiac disease and is 10x more common than celiac disease. However, there is no test for it yet but it does share many of the same symptoms with celiac disease. Both require complete abstinence from gluten.  It is seldom the case during testing where all tests are positive, even for those who do have celiac disease. This is no different than when diagnosing other medical conditions and that is why is typical to run numbers of tests that come at things from different angles when seeking to arrive at a diagnosis. It seems like you are at the point, since you have had both blood antibody testing and endoscopy/biopsy done, that you need to trial the gluten free diet. If her symptoms improve then you know all you need to know, whatever you label you want to give it. But given that apparently at least one celiac antibody blood test is positive and she has classic classic celiac symptoms such as slow growth, constipation and bloating, my money would be on celiac disease as opposed to NCGS.
    • ABP
      My nine-year-old daughter has suffered with severe constipation and bloating for years as well as frequent mouth sores, and keratosis Polaris on her arms. She also has recently decreased on her growth curve her % going down gradually.  After seeing a gastroenterologist, her IgG GLIADIN (DEAMIDATED) AB (IGG) was 22.4 while her IGA was normal. Her TISSUE TRANSGLUTAMINASE AB, IGA was 11.9.  Most recently her genetic test for celiac was positive.  After an endoscopy her tissue showed inflammation of the tissue as well as , increased intraepithelial lymphocytes (IELs) but there was no blunting of the change in the villi.    It seems that every result that we get one out of two things positive rather than all leading to an inconclusive diagnosis. While we do have another appointment with the doctor to go over the results. I'm curious based on this information what others think.    I would hate to have her eliminate gluten if not necessary- but also don't want to not remove if it is necessary.    Signed Confused and Concerned Mama
    • Scott Adams
      I guess using "GF" instead of "PL" would have been too easy! 😉
    • trents
      I was wrong, however, about there being no particular health concerns associated with high total IGA: https://www.inspire.com/resources/chronic-disease/understanding-high-iga-levels-causes-impacts/ So maybe the physician's "borderline" remark is relevant to that.
    • trents
      Sometimes that is the case but what is curious to me is the remark by your physician about being "borderline". I assume he was referring to the total IGA score but it just seems like an irrelevant remark when it is on the high side rather than being deficient.
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