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Dyshidrotic Eczema

Dyshidrotic Eczema

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Dyshidrotic Eczema Newbie
Dyshidrotic Eczema
Posted

Twenty-two years ago, I started getting these blister fluid filled bumps on my hands and feet. They would itch and then once they popped they became scaly. I went to the doctor and dermatologist, but no one could tell me what they were. I tried some creams that they'd prescribed, but none of them helped, so I just learned to live with it. I would always hide my feet during a breakout because the sores looked so horrible.

Several weeks ago, I went to the doctor because I was feeling tired all the time. I have this "fog" in my head. It's like... my vision's a little clouded (even though nothing's wrong with my eyes; I've had that checked) and it's hard to concentrate on day to day activities. When it's really bad, I feel like I can't even carry on a conversation. Plus, I was having diarrhea almost everyday.  The doctor ordered routine bloodwork and when looking in my records noticed that I'd frequently had a post nasal drip when I'd gone in for evaluations. All of my bloodwork was normal.

I was ready to give up again when my primary doctor called me to schedule my routine physical. He wanted fasting labs done. Which I did and they were also normal. I decided to go gluten-free after I saw these results online, because when my daughter was going through her issues (that's a whole different story) I went gluten-free with her and the "fog" in my head actually cleared! I was about 2 weeks gluten-free when I saw my doctor and the fatigue, fog and diarrhea had subsided. The only remaining concern was the blister fluid filled bump on my foot. He took a look at it and said he thought he knew what it was!

Dyshidrotic Eczema...He prescribed the strongest topical steroid and said to put it on whenever I feel an episode coming on. That's the thing, I can tell when I'm going to get it. I feel like I'm retaining water the day before... my skin feels tight.

Since the diagnosis, I've been researching Dyshidrotic Eczema and it seems it's linked to allergies. I've seen a lot about nickel related allergies, but I've also seen a lot of people who've experience it posting about celiac disease or a gluten intolerance. I don't think I can even be tested accurately now that I've gone gluten-free. Does anyone have advice on how I should proceed? Has anyone experienced similar things?

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GFinDC Veteran
GFinDC
Posted

Hi, and welcome! :)

Please read up on (DH) dermatitis herpetiformis.  There is a lot of info on DH in the DH section of the forum.  It could be you have DH instead.

Jane87 Explorer
Jane87
Posted
On 17/12/2017 at 6:37 AM, Dyshidrotic Eczema said:

Twenty-two years ago, I started getting these blister fluid filled bumps on my hands and feet. They would itch and then once they popped they became scaly. I went to the doctor and dermatologist, but no one could tell me what they were. I tried some creams that they'd prescribed, but none of them helped, so I just learned to live with it. I would always hide my feet during a breakout because the sores looked so horrible.

Several weeks ago, I went to the doctor because I was feeling tired all the time. I have this "fog" in my head. It's like... my vision's a little clouded (even though nothing's wrong with my eyes; I've had that checked) and it's hard to concentrate on day to day activities. When it's really bad, I feel like I can't even carry on a conversation. Plus, I was having diarrhea almost everyday.  The doctor ordered routine bloodwork and when looking in my records noticed that I'd frequently had a post nasal drip when I'd gone in for evaluations. All of my bloodwork was normal.

I was ready to give up again when my primary doctor called me to schedule my routine physical. He wanted fasting labs done. Which I did and they were also normal. I decided to go gluten-free after I saw these results online, because when my daughter was going through her issues (that's a whole different story) I went gluten-free with her and the "fog" in my head actually cleared! I was about 2 weeks gluten-free when I saw my doctor and the fatigue, fog and diarrhea had subsided. The only remaining concern was the blister fluid filled bump on my foot. He took a look at it and said he thought he knew what it was!

Dyshidrotic Eczema...He prescribed the strongest topical steroid and said to put it on whenever I feel an episode coming on. That's the thing, I can tell when I'm going to get it. I feel like I'm retaining water the day before... my skin feels tight.

Since the diagnosis, I've been researching Dyshidrotic Eczema and it seems it's linked to allergies. I've seen a lot about nickel related allergies, but I've also seen a lot of people who've experience it posting about celiac disease or a gluten intolerance. I don't think I can even be tested accurately now that I've gone gluten-free. Does anyone have advice on how I should proceed? Has anyone experienced similar things?

Hi! Please check out the Dermatitis Herpetiformis forum on this website.  I'm currently in the early stages of being tested/diagnosed. DH is skin presentation of coeliac and some people's can resemble dishydrotic eczema but is often very itchy, bilateral and sometimes painful. I'm not an expert at all so you best head to the DH forum https://www.celiac.com/forums/forum/26-dermatitis-herpetiformis/

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  • Posts

    • Scott Adams
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      By Scott Adams · Posted

      Most toothpastes are naturally gluten-free, but this article may be helpful:  
    • Scott Adams
      I’m terrified it’s too late for me😭

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      Thank you for your response. It has some good information for me to investigate further. In answer to your question about Vit D, yes, and it was normal. I am having the B12 level done today. Additionally, I am going to have a urine to test for iodine, after a correlation with it to dermatitis herpetiformis was mentioned in another post. I had read that in my research as well. I am praying that I don’t have that! The dietary restrictions, esp when combined with eating gluten free are horrendous! Talk about malnutrition! Anyway, one step, one day at a time. I’m trying not to get ahead of myself. Not easy. 
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      Hello, @Itsabit, Your journey sounds very similar to mine.   I'm very concerned about your diet since you say you don't eat a lot of meat, which is the main source of B vitamins.  Nutritional deficiencies go along with Celiac Disease.  Blood tests are not accurate measurements of deficiency states.  The body robs stored vitamins from organs to circulate in the bloodstream to supply the brain and heart.  You can have deficiency symptoms before blood levels change. I have a hypersensitivity to sulfites, so much so that I had to switch my toothpaste to one that doesn't contain Sodium Lauryl Sulfate.  SLS can cause oral irritation as a side effect, too.   My mouth would burn and I avoided certain foods.  Dapsone contains sulfites, as do antibiotics.  Treatment with sulfites can precipitate a Thiamine deficiency disorder because sulfites cut thiamine in two making it useless. https://pubmed.ncbi.nlm.nih.gov/35506963/ https://pmc.ncbi.nlm.nih.gov/articles/PMC10506142/ I have an allergy to nickel, also.  Zinc helps keep other metals in balance in the body.  Zinc is also terribly important to skin health and oral health. https://pubmed.ncbi.nlm.nih.gov/8445075/ https://pmc.ncbi.nlm.nih.gov/articles/PMC11274920/ https://pubmed.ncbi.nlm.nih.gov/1977254/ Thiamine (Vitamin B 1) deficiency disorder symptoms and altered thiamine metabolism can occur after radiation or chemo.   Thiamine and Niacin B 3 are important in nerve conduction.  When I was very malnourished, I had paresthesia that made me feel itchy all over, and made my dermatitis herpetiformis extremely unbearable.  The form of Niacin that causes flushing, Nicotinic Acid (not the same as nicotine in cigarettes) is beneficial because the flushing helps open the small capillaries in the skin which allows the antibodies to be cleared and disposed.  Pellagra can occur in Celiac Disease.   I had it, and my doctor didn't properly diagnose it, either.   I had a rash around my neck, Casal's Necklace, along with a blistering rash on my arms and any skin exposed to the sun.   https://pubmed.ncbi.nlm.nih.gov/8445075/ https://cgp.iiarjournals.org/content/10/4/169 https://pmc.ncbi.nlm.nih.gov/articles/PMC11722086/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6780714/ https://pmc.ncbi.nlm.nih.gov/articles/PMC10229844/ https://pubmed.ncbi.nlm.nih.gov/1977254/ You should be checked for more than just B12 deficiency.  The eight B vitamins work together, and we need more of them when we're trying to heal.  They are water soluble, so the body can easily excrete them if not needed. Have you had your Vitamin D level checked?  Vitamin D regulates the immune system and lowers inflammation.   I hope you can find some benefit from my experiences.  Keep us posted on your progress.   P.S.  When trying not to itch the dermatitis herpetiformis, if you press gently on a large area (press with your whole hand) above the itchy spot, the itchiness goes away.  The bigger area of stimulation drowns out that one jangling dermatitis herpetiformis itchy nerve in the brain. For skin care products, I use tallow balm which is absorbed better into the skin than petroleum products or plant products.  Tallow balm (Vintage Traditions is my favorite) helps my Dermatitis Herpetiformis spots look and feel better quickly.  Tallow soap and olive oil soap is beneficial as well.
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