Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

vomiting ALL foods with celiac??


sarahapril224

Recommended Posts

sarahapril224 Newbie

I made this account to ask this question and i dont know if this is the right place but please help 

Someone I know was diagnosed about 1 year ago and she’s getting worse I think. 

Everything she eats she vomits whether it’s glutened or not. 

I’m really worried!!

Always feeling pukey which she says is normal but this pukey!!? she cant even take pills

please please PLEASE someone help!! 

edit: she’s taking b12, d3, and a few others that aren’t for main things just like side affects. - sa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
4 hours ago, sarahapril224 said:

I made this account to ask this question and i dont know if this is the right place but please help 

Someone I know was diagnosed about 1 year ago and she’s getting worse I think. 

Everything she eats she vomits whether it’s glutened or not. 

I’m really worried!!

Always feeling pukey which she says is normal but this pukey!!? she cant even take pills

please please PLEASE someone help!! 

edit: she’s taking b12, d3, and a few others that aren’t for main things just like side affects. - sa

That is not normal for Celiac.  She should see a doctor and consider that she might have something in addition to Celiac wrong.

Ennis-TX Grand Master

I would consider something else, many with this disease develop other food intolerance issues. In these cases if we eat said trigger foods our bodies puke it up. Best thing to do if this is the case is a food diary, you keep track of everything you eat. You also need to go on a food elimination diet (please google) and remove all processed foods going to whole foods only eating only 2-4 ingredients a meal including spices, sauces, oils, etc. This way you can very quickly track down triggers.
In some cases it can be something else like the way the food is fixed, or something consumed or drank with a meal causing digesting issues like extra tannin preventing proteins from breaking down, high histamine foods triggering a histamine response, high lectin foods triggering the vomiting via lectin intolerance.
Heck I still can not eat high fatty foods, animal fats, animal meats, and some tough foods without digestive enzymes which could be another issue she could consider. If you lack the enzymes to break down proteins, fats, carbs, etc. Your going to vomit them up hours after the meal since you can not break them down.
There is also a various causes for gastric emptying, where say you eat a meal high in protein, fats, or tough solid foods, or a trigger food (for me garlic, onions, and certain spices) in certain amounts might cause your stomach not to dump to the small intestines, Depending no the issues dietary changes, supplements, surgery can fix this but you need to talk to a doctor about these issues.
Do you need post on intolerance, allergies, and enzyme issues?  I posted in the past and can dig them up for you for relevance sake.

One last thought, many celiacs do not quite get the whole 100% gluten free thing and think eating out, the occasional gluten, or shared environment with gluten eaters is safe. Trace amounts of gluten still getting into the system can trigger reactions also.

PS one other thought, constipation, is very common with this disease, if your low on magnesium and do not go daily with a BM you can get backed up....with no where else to go meals can be puked up as they can not go down. I used to have this issue with extreme issues. And found drinking a hot beverage with magnesium citrate, (Natural Vitality Calm) a hour or two before a meal will get my system moving. This fixed my morning vomiting issues I started having years ago where it seemed my tract bogged down at night and could not handle breakfast in the mornings.

kenlove Rising Star

has to make sure  she is really 100% gluten free and NO CHEATING.

I threw up every day for 6 months  until they  figured out it was  celiac. Three days  after that I was ok again.  

 

sarahapril224 Newbie
13 hours ago, Ennis_TX said:

I would consider something else, many with this disease develop other food intolerance issues. In these cases if we eat said trigger foods our bodies puke it up. Best thing to do if this is the case is a food diary, you keep track of everything you eat. You also need to go on a food elimination diet (please google) and remove all processed foods going to whole foods only eating only 2-4 ingredients a meal including spices, sauces, oils, etc. This way you can very quickly track down triggers.
In some cases it can be something else like the way the food is fixed, or something consumed or drank with a meal causing digesting issues like extra tannin preventing proteins from breaking down, high histamine foods triggering a histamine response, high lectin foods triggering the vomiting via lectin intolerance.
Heck I still can not eat high fatty foods, animal fats, animal meats, and some tough foods without digestive enzymes which could be another issue she could consider. If you lack the enzymes to break down proteins, fats, carbs, etc. Your going to vomit them up hours after the meal since you can not break them down.
There is also a various causes for gastric emptying, where say you eat a meal high in protein, fats, or tough solid foods, or a trigger food (for me garlic, onions, and certain spices) in certain amounts might cause your stomach not to dump to the small intestines, Depending no the issues dietary changes, supplements, surgery can fix this but you need to talk to a doctor about these issues.
Do you need post on intolerance, allergies, and enzyme issues?  I posted in the past and can dig them up for you for relevance sake.

One last thought, many celiacs do not quite get the whole 100% gluten free thing and think eating out, the occasional gluten, or shared environment with gluten eaters is safe. Trace amounts of gluten still getting into the system can trigger reactions also.

PS one other thought, constipation, is very common with this disease, if your low on magnesium and do not go daily with a BM you can get backed up....with no where else to go meals can be puked up as they can not go down. I used to have this issue with extreme issues. And found drinking a hot beverage with magnesium citrate, (Natural Vitality Calm) a hour or two before a meal will get my system moving. This fixed my morning vomiting issues I started having years ago where it seemed my tract bogged down at night and could not handle breakfast in the mornings.

you mentioned the environment thing.. she’s with family members in the house and they still all eat gluten. but when making her food hands are washed, and all foods are kept seperately. she doesn’t FEEL glutened, just always pukey and sometimes even puking. more like dry heaving? i guess

cyclinglady Grand Master

She should rule out active celiac disease (gluten in her diet) with a follow-up antibodies test.  This should be done a few months after the initial diagnosis and then yearly with her GI.  

Open Original Shared Link

If her antibodies tests have returned to the normal range, her doctor can look for something else as the cause if her current vomiting.  

Ennis-TX Grand Master
7 hours ago, sarahapril224 said:

you mentioned the environment thing.. she’s with family members in the house and they still all eat gluten. but when making her food hands are washed, and all foods are kept seperately. she doesn’t FEEL glutened, just always pukey and sometimes even puking. more like dry heaving? i guess

Some can live in a shared environment if proper steps are taken, like having dedicated gluten free cookware, dedicated area for fixing gluten free foods, avoiding using fresh flour like etc. Others like me and some others here, had to move out as relatives could not comprehend sensitivity and constant mistakes made us constantly sick til we had to move to a dedicated gluten-free home/kitchen.  Shared condiment jars with double dipped spoons/knife used on gluten foods, touching gluten foods with hands or utensils then touching gluten free food, scratched pots/pans, shared toasters, crumbs on prep counters, air borne flour. are all common issues with CC.

You mention no symptoms...puking is one...there are over 300 symptoms to this disease and it manifest differently in everyone. Level of exposure, sensitivity, etc. also effects our reactions and it constantly changes. Funny thing is, one crumb can set off a antibody reaction for weeks, up to months. Initial reactions normally last a day to a few weeks, but damage and others symptoms can take longer as the antibody reactions go down. This disease, your body mistakes the gluten protein (smaller then a germ) for something dangerous to the body and produces antibodies and goes on a rampage, It will normally attack our intestines, but can and will attack other areas. This causes the internal damage and leads to many other possibilities for complications. And your body will keep producing antibodies even after the gluten is gone to make sure it is. Gluten being a protein, not a germ is not destroyed by soap, antibacterial soap, or bleach. Think of it like trying to destroy blood where a CSI tech can not find it with their lab kit -_-. On the same note you can decontaminate something with a 500F oven self cleaning cycle.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ccrew99 Apprentice

I ended up with gastroparesis which causes delayed gastric emptying. Look into this as well. I ended up severely sick with this , not sure if celiac caused this but I have both. Chronic nausea and vomiting. Can not take any medications/supplements bc they do not leave my stomach quickly enough and build up toxicity very quickly.  There is a test that can be done for this done by GI. You have to eat something while being x-rayed/scanned, takes about 4 hours. 

cyclinglady Grand Master
3 hours ago, ccrew99 said:

I ended up with gastroparesis which causes delayed gastric emptying. Look into this as well. I ended up severely sick with this , not sure if celiac caused this but I have both. Chronic nausea and vomiting. Can not take any medications/supplements bc they do not leave my stomach quickly enough and build up toxicity very quickly.  There is a test that can be done for this done by GI. You have to eat something while being x-rayed/scanned, takes about 4 hours. 

Excellent suggestion!  ?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,096
    • Most Online (within 30 mins)
      7,748

    John.B
    Newest Member
    John.B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Welcome to the forum, and thank you for sharing your story! It sounds like you’ve been through an incredible journey with your health, and it’s no wonder you’re starting to piece things together and wonder about celiac disease. Your experiences—from childhood through adulthood—paint a picture of symptoms that are often associated with celiac disease, though they can overlap with other conditions as well. The recurring sinus infections, being underweight as a child, chronic gastrointestinal issues, nutrient-related symptoms like cramps, and the persistent fatigue and brain fog are all things that many people with undiagnosed celiac report. Your reactions to gluten also stand out. The improvement in symptoms when you reduce or remove gluten, followed by the resurgence of pain and other problems when you reintroduce it, is a common experience for those with celiac or gluten intolerance. While your frustrations and trials with elimination diets might not have given you concrete answers yet, they’ve provided valuable clues. It’s also worth noting that celiac disease doesn’t always present in the classic way. Many people, like yourself, may not experience severe gastrointestinal distress but instead have “atypical” or extraintestinal symptoms like joint pain, menstrual irregularities, fatigue, and more. It’s a condition that can go undiagnosed for years, especially when symptoms are subtle, sporadic, or mistakenly attributed to other issues. The fact that you’ve sought alternative approaches to feel better shows just how determined you’ve been to find relief, even without a definitive diagnosis. Given your history and how your body responds to gluten, it would be worth exploring celiac disease further with a medical professional. Before removing gluten completely, it’s important to get tested while you’re still eating it, as going gluten-free beforehand can affect the accuracy of the results. A blood test for celiac antibodies (like tTG-IgA) is usually the first step, and if positive, an endoscopy may follow to confirm the diagnosis. If the testing process feels daunting, keep in mind that getting answers could give you clarity and help guide your health decisions going forward. Whatever the outcome, you’ve already made significant strides in identifying triggers and managing your symptoms. Your awareness and persistence are key, and this community is here to support you as you continue to seek answers. This article might be helpful. It breaks down each type of blood test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • More2Learn
      Hi, I am new!  (Although I've used this forum as a reference over the past couple of years.) I'm just looking for some initial reactions to if I actually might possibly have Celiac Disease, or if I'm reaching here.  I have had lifelong health issues and not once has a doctor suggested I look into celiac. I always thought it was basically an extreme allergy that needed an EpiPen, and I know that's not me.  However, I stumbled upon some symptoms, realized I was wrong, and after some research I'm almost shocked at what I have found.  It seems like anything I've ever struggled with has a potential correlation to this disease!  I'm in my 40's, now.  Here is my journey to date... Issues as a Kid: tons of allergies, and had sinus infections all the time... however I didn't have hayfever-like allergies and the scratch tests didn't register much, it was more that when I was exposed to allergens (like say I spent hours with a cat) I was certain to get a sinus infection and it lasted months. was extremely skinny and everyone always said I was anorexic (I wasn't) always getting sick and the illnesses hang on for a long time always cold (my favorite thing to do is sit in front of a space heater or be out in 90 degree weather) intermittent bad constipation (still happens but not as severe) horrible toe cramps that would wake me up in the middle of the night As I got older (teenage/college years): acid reflux diagnosis learned that beer made me EXTREMELY sick, cannot tolerate it horrible issues with menstrual cycle - I wasn't regular, had awful cramps and PMS, sometimes cannot function the first couple of days night terrors/sleep walking more stomach issues - I learned I couldn't have black coffee.  I often had issues especially when traveling.  For example I finally noticed a pattern that I could never, ever eat at a hotel buffet spread - it would always make me sick afterwards. More recent problems: always tired periodic pain on right side that can be so painful I can't stand up straight. Have had all kinds of scans and doctors always say I'm fine.  I was so sure I had gallstones or my liver was failing but... nope. chest pain brain fog not diagnosed but many, many ADHD symptoms lots of inflammation, am overweight now toe cramps evolved into leg/calf cramps None of my symptoms from any era of my life ever really resolved, except I went from being skinny to ~20/30 pounds overweight, and as I got older I got less outright sinus infections.  Largely due to the pain in my right side and the fact that I always, always seem to pick up every illness, especially when traveling, I started pursuing alternative medicine paths... I did the Pritikin lifestyle, I tried an elimination diet, I followed the Root Cause Protocol, I did a Leptin reset.  A lot of these paths recommend removing gluten, and in the past year or so some of my symptoms have gone away!  Specifically less issues with toe cramps, sometimes the side pain would go away for a long time, and my acid reflux got much better.  But, because I was never diagnosed with any specific intolerance, I wasn't militant about the gluten - I had cut out dairy, soy, all kinds of things.  So I would say cross-contamination is ok, or make an exception at a group outing. Then one day, I just got frustrated and ate some normal slices of pizza... and my side pain came back!  I started doing research and now I'm here and wondering... could I have actually had this my whole life??!? Thoughts and observations welcome.           
    • Wheatwacked
      "grass-fed" meat by definition cannot contain wheat as it means the animal is only fed grass  organic meat can be fed wheat feed
    • Scott Adams
      Your symptoms would not be typical celiac disease symptoms, but still could be related due to possible nutrient deficiencies.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Scott Adams
      This is a difficult situation, and one that your employer may not take seriously. It's possible that they don't have a way to accommodate your issues, but I don't know much about your work environment. Obviously moving you to another work area would be ideal, but would or could they do that? If not, you might be stuck having to wear a K95-type mask at work to avoid breathing any particles, but they still could end up on your skin. Another alternative is searching for a new job.
×
×
  • Create New...