help with test results.

[g-wheels]

to start off i have had about 11 of the symptoms of the gluten allergy for about 10 years .

i had no idea what was causing it till i had a relative come over and they told use they

could not eat gluten . i did not even know what it was . they explained and got me to researching .

so i ordered a test through quest diagnostic for a gluten test the results i got from there blood test only had this :

 

  Quote

ALLERGEN GLUTEN IGG                    RESULT = 15.6      FLAG=HIGH    REF RANGE= <2.0 MCG/ML

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i started a gluten free diet and started feeling much better after about a week .

after 2 week i decided to see my doctor .

I ASKED MY DOCTOR ABOUT THE RESULTS AND THEY SAID IT DID NOT MEAN ANYTHING AT ALL .

doctor asked me to eat gluten again for a week and come back for a test since i was gluten free for 2 weeks .

so the doctor orders a celiac panel so they called it .

the test results was like this

  Quote

IgA mg/dL  = 343

Endomysial IgA = Negitive

TTG IgA U/mL =  <2

Expand Quote  

i also notice that on my regular blood test that

Total Cholesterol mg/dL = 103

Triglycerides mg/dL = 248

i have read somewhere that the high triglycerides can be caused by gluten also .

so now my doctor says that i dont have

 

gluten sensitivity

Gluten alergy

or Celiac...

 

should i find another doctor ?

 

[cyclinglady]

  On 12/22/2017 at 6:31 PM, gurusonwheels said:

to start off i have had about 11 of the symptoms of the gluten allergy for about 10 years .

i had no idea what was causing it till i had a relative come over and they told use they

could not eat gluten . i did not even know what it was . they explained and got me to researching .

so i ordered a test through quest diagnostic for a gluten test the results i got from there blood test only had this :

 

i started a gluten free diet and started feeling much better after about a week .

after 2 week i decided to see my doctor .

I ASKED MY DOCTOR ABOUT THE RESULTS AND THEY SAID IT DID NOT MEAN ANYTHING AT ALL .

doctor asked me to eat gluten again for a week and come back for a test since i was gluten free for 2 weeks .

so the doctor orders a celiac panel so they called it .

the test results was like this

i also notice that on my regular blood test that

Total Cholesterol mg/dL = 103

Triglycerides mg/dL = 248

i have read somewhere that the high triglycerides can be caused by gluten also .

so now my doctor says that i dont have

 

gluten sensitivity

Gluten alergy

or Celiac...

 

should i find another doctor ?

 

Expand Quote  

Welcome!

Lesson learned, try not to diagnose yourself (or order labs) until you have a clear understanding of what you are doing.  I went on Quest and could not even find the initial test you took (though I might have missed it).  What Quest Diagnostics did say is that that you should work with a doctor and if the screening TTg and EMA are negative, you should consider getting  the DGP.  

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So, I would ask your doctor (based on what Quest stated) that since you had a negative TTG and EMA could he/she run the DGP IGG and DGP IgA.   The tests your doctor gave you are good but do not catch all celiacs.  It is worth the extra $100 (or so) to find out.  Why am I pushing the DGP IgA?  It is the ONLY celiac test I test positive on even on follow-up testing to check for dietary compliance.  

And there is more.  I had super low total cholesterol and all my doctors over the years applauded me.  But low is just as bad a high!  It may mean you are not absorbing good dietary fats which is another sign of celiac disease or disorders affecting malabsorption.  Your triglycerides are super high.  I am not a doctor, but I would bet your diet is full of sugars (sodas, fruit juice, desserts, etc.)  I could be wrong....so let me know!   Did your doctor check you for fatty liver or measure your blood glucose?  

So, see if your doctor will work with you or get another one.  And...research and become a good advocate for your health!  

Good luck and take care!  

 

[frieze]

if you were really good on the gluten free diet, a week back on gluten was not enough.  8-12 weeks is the recommendation.  and, get the whole panel done.