Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Else Get Really Cold Feet And Hands?


DonnaD

Recommended Posts

givingthanx Newbie
How low was your Vitamin B12 ? What is it caused by ? If you have peripheral neuropathy caused by low B12 - oral supps probably are not for you. It means you may have a more severe B12 deficiency caused by Pernicious Anaemia or Gastritis or malabsorption and you need B12 shots for that. PN Can start when your B12 drops below 350. I have PA - an autoimmune disease which means I lack Intrinsic Factor in my stomach to absorb B12 from my food. An oral supp would do nothing for me. I need shots every 3 weeks. Due for one now - can feel feet tingles coming back - and that is 18 days since my last injection.

I don't know about the other person, but I haven't had the shooting pains for long. They started in January at the same time I got super sick with celiac-like symptoms for the first time. The pains went away when I went gluten-free. I've been sick twice since then (gluten exposure, I'm sure), and the most recent time my pains reappeared. I'm recovering, but I still have a tad bit of pain here and there and some tingling.

I have a phobia of needles.

Question: Are you familiar with the term "geographic tongue?" I had one for years. It's where your taste buds flatten out in certain places, making your tongue look like a map. My taste buds all grew in when I went gluten-free! Then, when I got sick again, my geographic tongue came back - I lost taste buds again. And now that I'm getting better, my taste buds are back AGAIN !!!!! People seem to be divided on what a geographic tongue is caused by. I saw at least one reference to b12 deficiency as a suggested cause. Some people don't think it signifies anything and is just hereditary.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest BornToRide

Cold hands and feet and the ability to stay warm are usually typical low thyroid problems. Many doctors fail to check comprehensively enough and often miss Hashimoto's thyroditis, a condition often linked to gluten intolerance, perhaps a condition even created by gluten intolerance. They need to run a test that checks for thyroid antibodies, otherwise they miss it. You can have so called "normal" hormone levels and still have symtoms. If your thyroid antibodies are high and you have symptoms, you should be treated regardless.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,807
    • Most Online (within 30 mins)
      7,748

    DEBG123
    Newest Member
    DEBG123
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AuntieAutoimmune
      Great tips, Deb. Thanks.  What a pity that they no longer mark items as gluten-free. And it is even more of a shame that you must bring protein bars instead of the crew helping you with your needs. Are you planning on sailing Royal again? 
    • Scott Adams
      I've not heard of any issues with Primal Kitchen, but it certainly would be worth not using the brand for a while to see if this helps. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Scott Adams
      If you are super sensitive you may want to look for only Certified Gluten-Free Products, as @trents mentioned.
    • Scott Adams
      I'm not sure about low calorie, as puddings are typically a dessert, but we do have this category: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-pudding-recipes/ This one might work if you cut back on the sugar:    
    • DebJ14
      We are off next week on our 9th RCCL cruise since our diagnoses.  I send an email to special_needs@rccl.com before every cruise letting them know that I am both dairy and gluten free and my husband is gluten free.   Unfortunately, with the new menus they introduced in 2023, they removed the gluten-free designation from each item on the menu.  Instead of having a dedicated person take gluten-free orders, it now falls to your regular wait staff.  Some have been great and some not so good.  We had a great cruise in May and hit it off with our head waiter.  She went the extra mile and ordered gluten free desserts that were not on the menu.  My problem arises from other food allergies.  I am allergic to dairy, beef, and several types of fish.  On those days my husband is a happy camper with a steak or salmon, veggies and a baked potato.  I end up not getting enough protein, so I bring protein bars.  I also bring snacks for the room. As long as the food is commercially prepared and unopened, you can bring it. Often the only dessert choices that are gluten free contain dairy, so I am out of luck.  But, if you are just gluten free, they have plenty of choices.  See the head chef in the Windjammer buffet and he will give you a tour of the gluten-free choices.  They usually have 2 gluten free desserts out at lunch and they are labeled gluten free. We have found that it works best to have assigned dining rather than anytime.  That way the waiters learn from the get go what our needs are, and we don't have to explain ourselves every night.  We also get a private table for 2.  I frankly got sick and tired of tablemates telling me a little bit of gluten would not hurt me.
×
×
  • Create New...