Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How to cope


Aisling Eldridge

Recommended Posts

Aisling Eldridge Rookie

Hi I’m 13 and I am finding this so difficult, I was diagnosed when I was 8 so near on six years ago now and I still find it incredibly hard to cope especially round friends ext. but one of my really close friends has it too but what can I do cause I can’t simply forget about it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Welcome to the board. Celiac can be tough to deal with especially socially. Can you tell us more about what you are having difficulty with so we can try and help?  Feel free to ask any questions needed and do feel free to vent a bit. It is good that you have a freind with celiac but it is good to get input from others who have struggled and perhaps come out the other side.

Ennis-TX Grand Master

I have a large food list I composed of various options including the standard, instant noodle options, pizza roll, hot pockets, breaded nuggets, instant burritoes, pizza, etc. Could just keep them in stock in your house, invite friends over and provide the snacks instead of eating out or at their house. Bars, and instant microwave meals make great options with visiting friends.

What are your exact concerns and we can see how to address them.....there are some benefits with friends...like amusement parks having to allow you to bring in your own food for medical reasons so you can save them money on outings. -_- I find myself having to host for others so I can have trusted food options....

  • 2 weeks later...
Isabel Z Rookie

Hey I’m around the same age! I get it and feel the same way. I was diagnosed only over a year ago and my celiacs very hard to deal with at social events. But what ever you do, don’t cheat the diet! The consequences will come back. I’m here to chat if anyone needs support

Gail W Newbie

I get how you feel, I was diagnosed almost 5 years ago and still find challenges to overcome especially when traveling with my friends.  I get the feeling that sometimes it can seem to overshadow your life, but for me it has really shown me who some of my closest friends are as well.   My friends always find it funny and joke that I eat my way thru school classes, because I ALWAYS have ‘me proof’ snacks on me to eat so I’m never hungry when I’m away from home for longer than I thought, or can’t get food while we’re on the go!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,540
    • Most Online (within 30 mins)
      7,748

    Bobbie Repp
    Newest Member
    Bobbie Repp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Sergiu2020
      Good point. I will go to the pharmacy to ask who is the provider of this Augmentin and i'll contact them. The problem is i need to know about it very fast cuz i am already delaying the antibiotics administration. My little girl is not afraid of injections but i cannot say she likes them. It's normal. We did choose the syrup solutions because it was the easiest. Of course where there are flavors added...the mighty gluten may be present or not. Thanks a lot for your time and for the reply! 👏
    • trents
      You can always just double up or triple up on whatever gluten free chewable multivitamin product you may already be using. That should cover the bases. Celiacs need the same vitamins and minerals as non celiacs, just in higher doses to compensate for less efficient absorption. Are you wanting to boost any particular vitamins or minerals? I seriously doubt you will find a vitamin product specifically designed for celiac kids. There just isn't a big enough market for such a product to provide the incentive for a company to invest in such a product line.
    • knitty kitty
      Hi, @Sicilygirl, I had lost a great amount of weight, felt depressed, and had no appetite early on.  I found that taking Thiamine in the form Benfotiamine extremely helpful.   Doctors routinely check B12 and Vitamin D, but they fail to test for deficiencies in other B vitamins like Thiamine, because blood tests for other vitamins are not accurate measures of deficiencies.   Low Thiamine can result in depression, anxiety, unintentional weight loss, loss of appetite, and  emotional lability (quickly changing emotions and moods), and gastrointestinal symptoms (gastrointestinal Beriberi).  These symptoms of low thiamine can be easily brushed aside and contributed to other things.  The best way to tell if one is low in thiamine us to take it and look for health improvement.  Thiamine is safe and nontoxic even in high doses.  No harm, no foul for trying it.   I took a B 50 Complex along with 300 mg Benfotiamine twice a day with the first two meals of the day.  A one a day multivitamin does not provide sufficient amounts to overcome the  malabsorption of celiac disease and correct low vitamin levels stored inside cells.  The eight B vitamins are water soluble, so any extra or unabsorbed is easily excreted in urine.  The eight B vitamins work together.  Thiamine interacts with each of the other B vitamins.  If there's not sufficient thiamine, the other B vitamins are not utilized and not stored inside cells.  Thiamine is needed for iron absorption.  Thiamine is needed to activate Vitamin D. We need more Thiamine when we are physically stressed by illness, emotionally stressed, and physically active.  Coping with Celiac covers all three.  Thiamine stored inside cells can become depleted within three days to three weeks.  Symptoms can change depending on how much thiamine is absorbed from your diet.  A twenty percent increase in dietary thiamine results in an eighty percent increase in brain activity, so symptoms can wax and wane mysteriously.  The brain just thinking can use as much thiamine as leg muscles use running a marathon.  Mitochondria become sick and die without sufficient Thiamine.     Doctors aren't required to take many nutrition courses in their training period.  (Twenty hours of nutrition education out of seven years at medical schools funded by pharmaceutical companies.  Vitamins cannot be patented, so doctors cannot make money by prescribing vitamins like they make money by prescribing pharmaceutical drugs.).    I started feeling better within a very short period of time after taking Benfotiamine and a B Complex.  I also took magnesium, because thiamine and magnesium make life sustaining enzymes together.   Giving the body the vitamins and minerals it needs to function will increase your health.
    • Sandi20
      Something more. Not just gluten free, more encapsulating the nutrients celiacs need more of.  
    • trents
      One avenue you can pursue is to contact the manufacturer of the Augmentin syrup in question and ask that question. The dispensing pharmacy will likely be able to give your the name of the manufacturer and some contact information, though that approach would likely take some time to yield the information you need. My gut feeling (excuse the pun) is that it is pretty unlikely this med will have gluten-containing ingredients. Perhaps another option would be to ask for the drug to be administered IM via injection. I know that scares children but when I was a kid that's how they usually gave antibiotics. I don't think there were so many antibiotics available in pill form back in the 1950s. 
×
×
  • Create New...