Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wondering if 2 yo may have celiac. Looking for insight

Atflook

Recommended Posts

Atflook Newbie
Atflook
Posted

Hi! I've been lurking for awhile but decided today to jump in and explain our situation as we are desperately looking for answers. My son is 2 and has always been small. He only weighs 26 lbs at 28 months. He has had stomach problems for as long a son I can remember. When he was theee months old he was diagnosed with reflux and I went dairy free to help with that. He really never took to eating and ate mostly breast milk until he was about 19 months old. When he was 23 months, he was waking up and screaming about stomach pain and doctors said he had an immense amount of gas in his stomach and said to try a dairy free diet. Going dairy free REALLY helped with the behavioral issues and he stopped having reflux constantly. Recently however, he has so much gas, is constantly burping. Has huge and VERY LOOSE stools (clumpy like not properly digested), has bouts of vomiting with no other symptoms, is lethargic, chronic abdominal pain and bouts of decreased appetite. My doctor doesn't take me seriously and always has an answer for the throwing up but I feel like this has been going on forever and it must be more. His belly has ALWAYS been distended and I never thought anything of it until being on this thread. I have no idea if it could be celiac? We are just desperate to figure out what to do and feel like no one is taking us seriously...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Victoria1234 Experienced
Victoria1234
Posted
1 hour ago, Atflook said:

Hi! I've been lurking for awhile but decided today to jump in and explain our situation as we are desperately looking for answers. My son is 2 and has always been small. He only weighs 26 lbs at 28 months. He has had stomach problems for as long a son I can remember. When he was theee months old he was diagnosed with reflux and I went dairy free to help with that. He really never took to eating and ate mostly breast milk until he was about 19 months old. When he was 23 months, he was waking up and screaming about stomach pain and doctors said he had an immense amount of gas in his stomach and said to try a dairy free diet. Going dairy free REALLY helped with the behavioral issues and he stopped having reflux constantly. Recently however, he has so much gas, is constantly burping. Has huge and VERY LOOSE stools (clumpy like not properly digested), has bouts of vomiting with no other symptoms, is lethargic, chronic abdominal pain and bouts of decreased appetite. My doctor doesn't take me seriously and always has an answer for the throwing up but I feel like this has been going on forever and it must be more. His belly has ALWAYS been distended and I never thought anything of it until being on this thread. I have no idea if it could be celiac? We are just desperate to figure out what to do and feel like no one is taking us seriously...

The on,y thing I can say is schedule the celiac blood panel asap. We can't tell you if he has it or not as there are 300 or so symptoms, but it sure sounds a lot like it to me.

Keep him on gluten until all the tests are done.

cyclinglady Grand Master
cyclinglady
Posted

Here are the tests:

Open Original Shared Link

Because he is little, insist on the DGP tests as well.   He may be too young for TTG antibodies to show up. 

Here  is more information from Jebby who is a member and is a Neonatal doctor (preemies) who also has celiac disease:

http://www.thepatientceliac.com/2013/04/18/update-on-celiac-disease-screening-in-infants-and-toddlers/

Doctor not working for you?  Get a second opinion.  Then you will find out if your current doctor is competent or not.  

  • 1 month later...
Overwhelmed mother Newbie
Overwhelmed mother
Posted

I had similar issues with my daughter and getting no where with doctors. Alot of the time if they have a reaction to dairy then a gluten free diet will help. I done this for my baby. No dairy no gluten no soy and no eggs as she reach the age of 2 I started to introduce dairy and gluten to see if her body would take it. The pain started again so I took her to a naturopath and he verified she shldnt have dairy gluten soy eggs or corn. Follow your instincts and here is no harm in cutting out gluten even if he can have it. 

Jenniw Newbie
Jenniw
Posted

My son has celiac and was diagnosed  at 3 years old. The symptoms  he had was pale looking diarrhea  and throwing up randomly other wise fine.  But he also had a pot belly which for toddler celiac usually is stomach related issues. I would definitely get celiac blood work done to at least rule it out. But he needs to be eatting gluten to be able to tell. So at least a slice of bread a day. I hope you get the answer you are looking for. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,315
    • Most Online (within 30 mins)
      7,748
    Bosslady18769
    Newest Member
    Bosslady18769
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Skinesa

      By Wheatwacked · Posted

      In what way? Skinese:  You paid for it, might as well try.  They are the usual mix and is gluten free. "Free of milk/casein, eggs, fish, shellfish, tree nuts, peanuts, wheat, gluten, and soybeans. Contains no artificial colors, flavors, or preservatives."   Are you using whole milk yogurt or the no fat yogurt.  The no fat has varius ingrediEnts to mimic fats texture but some people react to the  gums used.   Sibo: Foods that do not contain carbohydrates or fiber do not usually cause problems. This includes meats (beef, pork, lamb, venison); poultry (chicken, turkey, duck); fish and shellfish; eggs; and butter, oils, and hard cheeses. Stonyfield Whole milk yogert, I think, is the only one with lactase for lactose intolerance.  Naturally Fermented Pickles [The Complete Guide] For your skin health you need dietary iodine intake around 500 to 1000 micrograms a day.  I take Liquid Iodine 500 mcg a day.  It is the amount I ate daily in the 1960/s before they stopped using it in bread.  Since 1970 the daily intake of iodine has decrease 50%.  50 mcg/drop in the brand I use.  The dose used to prove Wolff-Chaikoff Effect was upwards of 11 grams The USDA lists the safe range from 125 mcg to 1000 mcg (1 gram).  Japanese say 3000 mcg is safe.  Look at tradition japanese hair, skin, and their childrens intellegence.  They must be doing something more right than us.   
    • Barcino
      Antibodies went up

      By Barcino · Posted

      FASANO DIET - not Dasani. For some reason, it is not allowing me to edit my post. 
    • Scott Adams
      Daughter waiting for appointment

      By Scott Adams · Posted

      Yes, she should be eating lots of gluten daily...4 slices of wheat bread would be ideal for the screenings.
    • Barcino
      Antibodies went up

      By Barcino · Posted

      Hello,  I cant get my daughter's TTG IGA antibodies to drop into the normal range. A bit of the backstory : both my kids were diagnosed in July of 2023. Both were >250 at diagnosis.  My son went from >250 July 2023  to 33 Nov 2023  to 15.7 July 2024. With <15 being negative. He is almost there.  My daughter went >250 July 2023 to 66.3 Dec 2023 to 31.7 July 2024 to now back up to 35.6.  We are a fully gluten free house and we do not eat out AT ALL in any restaurants other than one dedicated gluten-free bakery. We don't eat any oats. She takes anti epileptic drugs / vitamins so we are double checking all medications and supplements. One medication says they should be gluten free but cant guarantee excipients aren't contaminated so we will be changing that one to a different manufacturer.   Feeling a little worried that her levels are worse and we cant get her into the normal range. We are thinking about cutting dairy or doing the Dasani diet. She doesnt eat a crazy amount of processed food and what she has in gluten free certified and not made in shared lines but maybe we should cut it all out until her levels drop? Any other advice? We will check all personal products also, but we believe everything is gluten free. My son is away at school so trying to figure out what she does and eats that he doesnt. Chickpeas (canned), dairy (he doesnt eat much dairy due to acne) and of course her medications.   Thank you for any input you may have.
    • jjiillee
      Daughter waiting for appointment

      By jjiillee · Posted

      She finally has her appointment today. They said in their opinion it’s likely celiac. But repeated the bloodwork today. Her frost bloodwork was weak positive 5.3 (4-10 is a weak positive) Dr wanted her own labs. And they will be calling us to schedule the endoscopy.  They told her to keep Eating gluten. She has been eating is again for the last couple weeks. 
×
×
  • Create New...