Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wondering if 2 yo may have celiac. Looking for insight

Atflook

Recommended Posts

Atflook Newbie
Atflook
Posted

Hi! I've been lurking for awhile but decided today to jump in and explain our situation as we are desperately looking for answers. My son is 2 and has always been small. He only weighs 26 lbs at 28 months. He has had stomach problems for as long a son I can remember. When he was theee months old he was diagnosed with reflux and I went dairy free to help with that. He really never took to eating and ate mostly breast milk until he was about 19 months old. When he was 23 months, he was waking up and screaming about stomach pain and doctors said he had an immense amount of gas in his stomach and said to try a dairy free diet. Going dairy free REALLY helped with the behavioral issues and he stopped having reflux constantly. Recently however, he has so much gas, is constantly burping. Has huge and VERY LOOSE stools (clumpy like not properly digested), has bouts of vomiting with no other symptoms, is lethargic, chronic abdominal pain and bouts of decreased appetite. My doctor doesn't take me seriously and always has an answer for the throwing up but I feel like this has been going on forever and it must be more. His belly has ALWAYS been distended and I never thought anything of it until being on this thread. I have no idea if it could be celiac? We are just desperate to figure out what to do and feel like no one is taking us seriously...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Victoria1234 Experienced
Victoria1234
Posted
1 hour ago, Atflook said:

Hi! I've been lurking for awhile but decided today to jump in and explain our situation as we are desperately looking for answers. My son is 2 and has always been small. He only weighs 26 lbs at 28 months. He has had stomach problems for as long a son I can remember. When he was theee months old he was diagnosed with reflux and I went dairy free to help with that. He really never took to eating and ate mostly breast milk until he was about 19 months old. When he was 23 months, he was waking up and screaming about stomach pain and doctors said he had an immense amount of gas in his stomach and said to try a dairy free diet. Going dairy free REALLY helped with the behavioral issues and he stopped having reflux constantly. Recently however, he has so much gas, is constantly burping. Has huge and VERY LOOSE stools (clumpy like not properly digested), has bouts of vomiting with no other symptoms, is lethargic, chronic abdominal pain and bouts of decreased appetite. My doctor doesn't take me seriously and always has an answer for the throwing up but I feel like this has been going on forever and it must be more. His belly has ALWAYS been distended and I never thought anything of it until being on this thread. I have no idea if it could be celiac? We are just desperate to figure out what to do and feel like no one is taking us seriously...

The on,y thing I can say is schedule the celiac blood panel asap. We can't tell you if he has it or not as there are 300 or so symptoms, but it sure sounds a lot like it to me.

Keep him on gluten until all the tests are done.

cyclinglady Grand Master
cyclinglady
Posted

Here are the tests:

Open Original Shared Link

Because he is little, insist on the DGP tests as well.   He may be too young for TTG antibodies to show up. 

Here  is more information from Jebby who is a member and is a Neonatal doctor (preemies) who also has celiac disease:

http://www.thepatientceliac.com/2013/04/18/update-on-celiac-disease-screening-in-infants-and-toddlers/

Doctor not working for you?  Get a second opinion.  Then you will find out if your current doctor is competent or not.  

  • 1 month later...
Overwhelmed mother Newbie
Overwhelmed mother
Posted

I had similar issues with my daughter and getting no where with doctors. Alot of the time if they have a reaction to dairy then a gluten free diet will help. I done this for my baby. No dairy no gluten no soy and no eggs as she reach the age of 2 I started to introduce dairy and gluten to see if her body would take it. The pain started again so I took her to a naturopath and he verified she shldnt have dairy gluten soy eggs or corn. Follow your instincts and here is no harm in cutting out gluten even if he can have it. 

Jenniw Newbie
Jenniw
Posted

My son has celiac and was diagnosed  at 3 years old. The symptoms  he had was pale looking diarrhea  and throwing up randomly other wise fine.  But he also had a pot belly which for toddler celiac usually is stomach related issues. I would definitely get celiac blood work done to at least rule it out. But he needs to be eatting gluten to be able to tell. So at least a slice of bread a day. I hope you get the answer you are looking for. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Test interpretations

      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated...
    2. MicG
      - MicG posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Test interpretations

      Test results as follows: Deamidated Gliadin Abs, lgA 40 H (normal range 0-19) Deamidated Gliadin Abs, IgG 4 (0-19) t-Transglutaminase (tTG) IgA <2 (0-3) t-Transglutaminase (tTG) IgG <2 (0-5) Endomysial Antibody IgA Negative (Negative) Immunoglobulin A, Qn, Serum 535 H (87-352) Do I have celiac?
    3. catnapt
      - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      how long does it take for the genetic blood test for celiac to come back?

      how long does it take for the genetic blood test for celiac to come back? I saw the GI today, she was great. She says I def have an issue with gluten and that my symptoms align more with celiac disease than NCGS, so she's doing the genetic testing, Ordered a test for SIBO but said that's just to cover all bases, she doesn't think I have that. If the blood...
    4. DebD5
      - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

      Interestingly enough, while I hear you. I completely disagree. Gluten has not been 100% removed. There’s still trace amounts under the regulated amount per millions allowed. I gave only figured out in the last year, while reading chats on this site, of other celiacs still having issues and how they figured it out. If enough companies allow slight amounts o...
    5. Scott Adams
      - Scott Adams commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

      I understand why that feels frustrating, because the labeling can definitely seem confusing. In the case of products like King Arthur’s gluten-free bread flour that contain gluten-free wheat starch, the wheat starch has been specially processed to remove the gluten proteins that trigger celiac disease. Because it originates from wheat, U.S. labeling laws s...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,653
    • Most Online (within 30 mins)
      7,748
    daweesa
    Newest Member
    daweesa
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Test interpretations

      By trents · Posted

      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
    • MicG
      Test interpretations

      By MicG · Posted

      Test results as follows: Deamidated Gliadin Abs, lgA 40 H (normal range 0-19) Deamidated Gliadin Abs, IgG 4 (0-19) t-Transglutaminase (tTG) IgA <2 (0-3) t-Transglutaminase (tTG) IgG <2 (0-5) Endomysial Antibody IgA Negative (Negative) Immunoglobulin A, Qn, Serum 535 H (87-352) Do I have celiac?
    • catnapt
      how long does it take for the genetic blood test for celiac to come back?

      By catnapt · Posted

      how long does it take for the genetic blood test for celiac to come back? I saw the GI today, she was great. She says I def have an issue with gluten and that my symptoms align more with celiac disease than NCGS, so she's doing the genetic testing, Ordered a test for SIBO but said that's just to cover all bases, she doesn't think I have that. If the blood work comes back negative for the genes, then I will cancel the endoscopy. If positive, I will try the 2 week gluten challenge and get the endoscopy done. If I can't manage the gluten challenge (I had HORRIBLE symptoms last time and quit after 12 days) then we'll just assume it's celiac disease and go from there. She says she does a full nutrient panel on all her pts every year, that was nice to hear.I'm on so many supplements it would be nice to only have to get the ones I truly need! so yeh, really anxious about the test results for the genes!! I have an identical twin sister so I'd need to tell her if it's positive, she'd prob want to get tested too. *interesting note: when I said if the blood work comes back that I don't have the genes, then I'm in the clear - she said, well,,,,,,not necessarily. But she didn't want to go into as we had a lot to go over. I did make a  mental note of that comment and will ask her when I see her next time.   she was very thorough! I was impressed! she even checked- up on some lab work I had done that my Endo ordered. I like her, I am looking forward to seeing her again. I think I'll get some good advice and info from her she also complimented me on my diet.   said it was a very gut friendly and healthy diet 
    • Scott Adams
      Second chance

      By Scott Adams · Posted

      I'm not sure why "colonoscopy" keeps coming up for you, again it would be an endoscopy to diagnose celiac disease, but it seems that Kaiser should still have your records. If you were diagnosed by them in the 1990's using a blood test and endoscopy, then you definitely have celiac disease, and hopefully you've been gluten-free since that time. You should be able to contact Kaiser for those records.
    • Russ H
      Concerning GP advice

      By Russ H · Posted

      This sounds like a GP who is ignorant regarding coeliac disease. The risk with consuming gluten for several days is that it triggers the coeliac immune response, leading to raised auto-antibodies and active disease for several months. People may not even be aware of symptoms during this process, but it is causing damage to the body. As trents has said, the gut lining normally recovers on a strict gluten-free diet, and this happens much faster in children than in adults.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.