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Wondering if 2 yo may have celiac. Looking for insight

Atflook

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Atflook Newbie
Atflook
Posted

Hi! I've been lurking for awhile but decided today to jump in and explain our situation as we are desperately looking for answers. My son is 2 and has always been small. He only weighs 26 lbs at 28 months. He has had stomach problems for as long a son I can remember. When he was theee months old he was diagnosed with reflux and I went dairy free to help with that. He really never took to eating and ate mostly breast milk until he was about 19 months old. When he was 23 months, he was waking up and screaming about stomach pain and doctors said he had an immense amount of gas in his stomach and said to try a dairy free diet. Going dairy free REALLY helped with the behavioral issues and he stopped having reflux constantly. Recently however, he has so much gas, is constantly burping. Has huge and VERY LOOSE stools (clumpy like not properly digested), has bouts of vomiting with no other symptoms, is lethargic, chronic abdominal pain and bouts of decreased appetite. My doctor doesn't take me seriously and always has an answer for the throwing up but I feel like this has been going on forever and it must be more. His belly has ALWAYS been distended and I never thought anything of it until being on this thread. I have no idea if it could be celiac? We are just desperate to figure out what to do and feel like no one is taking us seriously...

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Victoria1234 Experienced
Victoria1234
Posted
1 hour ago, Atflook said:

Hi! I've been lurking for awhile but decided today to jump in and explain our situation as we are desperately looking for answers. My son is 2 and has always been small. He only weighs 26 lbs at 28 months. He has had stomach problems for as long a son I can remember. When he was theee months old he was diagnosed with reflux and I went dairy free to help with that. He really never took to eating and ate mostly breast milk until he was about 19 months old. When he was 23 months, he was waking up and screaming about stomach pain and doctors said he had an immense amount of gas in his stomach and said to try a dairy free diet. Going dairy free REALLY helped with the behavioral issues and he stopped having reflux constantly. Recently however, he has so much gas, is constantly burping. Has huge and VERY LOOSE stools (clumpy like not properly digested), has bouts of vomiting with no other symptoms, is lethargic, chronic abdominal pain and bouts of decreased appetite. My doctor doesn't take me seriously and always has an answer for the throwing up but I feel like this has been going on forever and it must be more. His belly has ALWAYS been distended and I never thought anything of it until being on this thread. I have no idea if it could be celiac? We are just desperate to figure out what to do and feel like no one is taking us seriously...

The on,y thing I can say is schedule the celiac blood panel asap. We can't tell you if he has it or not as there are 300 or so symptoms, but it sure sounds a lot like it to me.

Keep him on gluten until all the tests are done.

cyclinglady Grand Master
cyclinglady
Posted

Here are the tests:

Open Original Shared Link

Because he is little, insist on the DGP tests as well.   He may be too young for TTG antibodies to show up. 

Here  is more information from Jebby who is a member and is a Neonatal doctor (preemies) who also has celiac disease:

http://www.thepatientceliac.com/2013/04/18/update-on-celiac-disease-screening-in-infants-and-toddlers/

Doctor not working for you?  Get a second opinion.  Then you will find out if your current doctor is competent or not.  

  • 1 month later...
Overwhelmed mother Newbie
Overwhelmed mother
Posted

I had similar issues with my daughter and getting no where with doctors. Alot of the time if they have a reaction to dairy then a gluten free diet will help. I done this for my baby. No dairy no gluten no soy and no eggs as she reach the age of 2 I started to introduce dairy and gluten to see if her body would take it. The pain started again so I took her to a naturopath and he verified she shldnt have dairy gluten soy eggs or corn. Follow your instincts and here is no harm in cutting out gluten even if he can have it. 

Jenniw Newbie
Jenniw
Posted

My son has celiac and was diagnosed  at 3 years old. The symptoms  he had was pale looking diarrhea  and throwing up randomly other wise fine.  But he also had a pot belly which for toddler celiac usually is stomach related issues. I would definitely get celiac blood work done to at least rule it out. But he needs to be eatting gluten to be able to tell. So at least a slice of bread a day. I hope you get the answer you are looking for. 

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      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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