Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Wondering if 2 yo may have celiac. Looking for insight

Atflook

Recommended Posts

Atflook Newbie
Atflook
Posted

Hi! I've been lurking for awhile but decided today to jump in and explain our situation as we are desperately looking for answers. My son is 2 and has always been small. He only weighs 26 lbs at 28 months. He has had stomach problems for as long a son I can remember. When he was theee months old he was diagnosed with reflux and I went dairy free to help with that. He really never took to eating and ate mostly breast milk until he was about 19 months old. When he was 23 months, he was waking up and screaming about stomach pain and doctors said he had an immense amount of gas in his stomach and said to try a dairy free diet. Going dairy free REALLY helped with the behavioral issues and he stopped having reflux constantly. Recently however, he has so much gas, is constantly burping. Has huge and VERY LOOSE stools (clumpy like not properly digested), has bouts of vomiting with no other symptoms, is lethargic, chronic abdominal pain and bouts of decreased appetite. My doctor doesn't take me seriously and always has an answer for the throwing up but I feel like this has been going on forever and it must be more. His belly has ALWAYS been distended and I never thought anything of it until being on this thread. I have no idea if it could be celiac? We are just desperate to figure out what to do and feel like no one is taking us seriously...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Victoria1234 Experienced
Victoria1234
Posted
1 hour ago, Atflook said:

Hi! I've been lurking for awhile but decided today to jump in and explain our situation as we are desperately looking for answers. My son is 2 and has always been small. He only weighs 26 lbs at 28 months. He has had stomach problems for as long a son I can remember. When he was theee months old he was diagnosed with reflux and I went dairy free to help with that. He really never took to eating and ate mostly breast milk until he was about 19 months old. When he was 23 months, he was waking up and screaming about stomach pain and doctors said he had an immense amount of gas in his stomach and said to try a dairy free diet. Going dairy free REALLY helped with the behavioral issues and he stopped having reflux constantly. Recently however, he has so much gas, is constantly burping. Has huge and VERY LOOSE stools (clumpy like not properly digested), has bouts of vomiting with no other symptoms, is lethargic, chronic abdominal pain and bouts of decreased appetite. My doctor doesn't take me seriously and always has an answer for the throwing up but I feel like this has been going on forever and it must be more. His belly has ALWAYS been distended and I never thought anything of it until being on this thread. I have no idea if it could be celiac? We are just desperate to figure out what to do and feel like no one is taking us seriously...

The on,y thing I can say is schedule the celiac blood panel asap. We can't tell you if he has it or not as there are 300 or so symptoms, but it sure sounds a lot like it to me.

Keep him on gluten until all the tests are done.

cyclinglady Grand Master
cyclinglady
Posted

Here are the tests:

Open Original Shared Link

Because he is little, insist on the DGP tests as well.   He may be too young for TTG antibodies to show up. 

Here  is more information from Jebby who is a member and is a Neonatal doctor (preemies) who also has celiac disease:

http://www.thepatientceliac.com/2013/04/18/update-on-celiac-disease-screening-in-infants-and-toddlers/

Doctor not working for you?  Get a second opinion.  Then you will find out if your current doctor is competent or not.  

  • 1 month later...
Overwhelmed mother Newbie
Overwhelmed mother
Posted

I had similar issues with my daughter and getting no where with doctors. Alot of the time if they have a reaction to dairy then a gluten free diet will help. I done this for my baby. No dairy no gluten no soy and no eggs as she reach the age of 2 I started to introduce dairy and gluten to see if her body would take it. The pain started again so I took her to a naturopath and he verified she shldnt have dairy gluten soy eggs or corn. Follow your instincts and here is no harm in cutting out gluten even if he can have it. 

Jenniw Newbie
Jenniw
Posted

My son has celiac and was diagnosed  at 3 years old. The symptoms  he had was pale looking diarrhea  and throwing up randomly other wise fine.  But he also had a pot belly which for toddler celiac usually is stomach related issues. I would definitely get celiac blood work done to at least rule it out. But he needs to be eatting gluten to be able to tell. So at least a slice of bread a day. I hope you get the answer you are looking for. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Jmartes71's topic in Dermatitis Herpetiformis
      2

      Skin issues

      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr. https://my.clevelandclinic.org/health/diseases/morgellons-disease
    2. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    3. trents
      - trents replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    4. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      Hello Russ! Thank you so much for your reply. I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal...
    5. Russ H
      - Russ H replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,046
    • Most Online (within 30 mins)
      10,442
    Urquhart
    Newest Member
    Urquhart
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Skin issues

      By Aretaeus Cappadocia · Posted

      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      Celiac flare years after diagnosis

      By trents · Posted

      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      Celiac flare years after diagnosis

      By Russ H · Posted

      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
×
×
  • Create New...