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9 year old glutened an hour ago - any way to mitigate?


robin2

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robin2 Newbie

Hi All,

My 9 year old was diagnosed with celiac in August and has been gluten-free ever since. We're very careful to read labels. She's learned to read labels. There are a few gluten-free families we know that we've felt safe with her eating their food because they are as anal as I am. Until about an hour ago. My daughter was at a book club meeting and a gluten-free Mom brought cookies. Set them down on the table. All the kids grabbed one and ate it. Suddenly she looks at me and says "wait, these aren't gluten-free!" Meanwhile, my daughter had eaten half the cookie.

This was an hour ago. We got home about 20 minutes later and I gave her some simalese gluten-free CF which I know doesn't stop the full immune reaction, but I'm hoping will help with the digestive aspect. Is there anything else I can do since its so soon after glutening?

Thank you so much!

 

 


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GFinDC Veteran

Lots of water and charcoal tablets.  Some Me + My Gluten Assist from CVS might help a bit.  Pepto Bismol perhaps.  Peppermint tea can help get gas out.

cyclinglady Grand Master

I would skip the  Pepto Bismal.  It has an aspirin derivative that is dangerous for kids - Reyes Syndrome.  It is excellent for adults though.  

Keep her hydrated.  Soups and stews, applesauce, popsicles,  (think soft foods that would be easy to digest).  Lots of hugs, blankets and distractions.  

I hope she feels better fast!  

Scarlettsdad Contributor

Not sure if this applies to your daughter but my daughter reacts after she's gone to sleep -wakes up in intense pain+vomiting.. So, if I suspect she may have been exposed to gluten ( i.e.at school) I would keep her up as late as possible to have the reaction occur while she's awake. It seems to lessen the intensity. For some reason, it's more severe if it takes place while she's sleeping. Besides keeping her up late, lots of water. That's what we do. Hope this helps!

Ennis-TX Grand Master

All the above, go with soft easy foods for awhile, blended soups, smoothies, Avoid acid foods (burn comeing back out), Avoid Diary (gas, bloat, temporary intolerance is common), AVOID Starchy carbs and sugar they will  cause more gas, AVOID spices they will burn. GO with simple creamy soups smoothies with stuff like a full fat coconut milk base, nut butters. Soft cooked like microwaved eggs (mix 2 part egg 1 part nut milk blend with filling zap in microwave) and nut meal porridge are my go too foods after my last gluten issue last month.

robin2 Newbie

THank you so much for such a quick response! She wasn't all that symptomatic prior to going gluten free. Her only symptom was anemia and bloat (looks 6 month pregnant) and when they started digging for a cause, up popped celiac. But, that was before going gluten-free 6 months ago so I have no idea if now that her gut has healed quite a bit if she's going to have any sort of reaction... I'm hopeful it won't be too bad, but her belly has already ballooned up. 

cyclinglady Grand Master

?


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    • trents
      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
    • trents
      Welcome to the forum, @Richardo! We sometimes run across terms like "rice gluten", "corn gluten", and "oat gluten" but they are used informally and, technically, it is incorrect to speak of grains other than wheat, barley and rye as having gluten. Gluten is a protein with a specific structure found only in wheat, barley and rye. Other cereal grains contain proteins that are more or less similar in structure to gluten in some ways but are not actually gluten. Having said that, the proteins found in these other cereal grains are similar enough to gluten to possibly cause cross reactivity in some celiacs. Cross reactivity also happens with non cereal grain foods as well that have a protein structure similar to gluten. A prime example is dairy (the protein "casein"). Another example may be soy. Other foods can also cause cross reactivity for different reasons, such as microbial transglutaminase (aka, "meat glue") used commonly in pressed meat products. Just so you'll know, Dr. Osborne's claims have not received wide acceptance in the celiac community and are looked upon with skepticism by the medical and scientific community. Although he is a board certified nutritionist, his doctorates are actually in chiropractic medicine and pastoral science: https://www.drpeterosborne.com/about/dr-peter-osborne/ I am not sure Osborne has the training and background to address the chemical structure that defines gluten. I would encourage you to do some research on what gluten actually is. I have done this for myself and came away convinced that only wheat, barely and rye actually contain the protein gluten. I do not doubt your claims that you have breakouts of dermatitis herpetiformis from consuming these other grains. I am just contending it is not actually from gluten.
    • Richardo
      I was diagnosed celiac about 15 years ago and followed the usual diet restriction on Wheat, barley and rye and did very well on those restrictions with no problems with dermatitis herpetiformis. 4 years ago I started getting bad rashes on my knees and calves, buttocks, around my waist and my elbows and forearms and hands. It seemed to last about 11/2 to 2 months then clear up for a month and come back  again. I never changed anything in my diet and a dermatologist told me I  must getting  cross contamination, which I knew I wasn't.  Finally after struggling with it all that time, I watched a video by Dr Osborne who sited a study done in England showing that ALL grains (rice, corn etc) contain gluten. I went on a totally grain free diet and have now been 100 percent free of dermatitis herpetiformis for over a year. I tried a test and ate corn flour and it started to come back so I'm off all grains again. Long story I know, but my question is, why is practically EVERY celiac site private or Govt only mentioning the BIG 3 and never mentions other grains as a possible means of contamination? I am free  from a horribly uncomfortable condition now and I know there are others who would be encouraged by this.
    • trents
      Your chest pain could be related to the Sarcoidosis. "When it affects the lungs, wheezing, coughing, shortness of breath, or chest pain may occur." https://en.wikipedia.org/wiki/Sarcoidosis   The bowel incontinence could be caused by surgical damage (or scar tissue) to the cauda equina nerve bundle in the lumbar area of the spine. Or, it could be related to unintentional gluten exposure.
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