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    • Aleda D
      Oh, also, just based on my horrific reactions to them and continued aftereffects, I will never consent to take another PPI, nor another fluoroquinolone-related antibiotic. I am alarmed to read PPIs are sometimes prescribed to infants and children. Even my dog was prescribed Prilosec.    I don’t see how medications that indescriminately kill off digestive flora can actually help with celiac disease and NCGS, as these conditions already block healthy digestion. In my case, I took a PPI daily for about 4 years as prescribed by my GP, developing arthritic symptoms at an alarming rate in my 40s and 50s. I remembered the worst GERD event being when I ate a saltine at 10 AM, breaking the nightly fast. Volcanic GERD. What’s in a saltine? Wheat. I cut out wheat and barley and rye, and eventually oats (still eat certified gluten-free oats though) and have been eliminating gluten and gluten-contaminated foods since 2013. But the most recent PPI treatment for breakthrough GERD scar tissue narrowing my espophagus kicked arthritis and muscle pains into high gear, making me feel 190 years old. I stopped the PPI after a month of suffering. The medicine was much worse than the ailment. So my advice to those with celiac disease and NCGS is to avoid fluoroquinolones and PPIs. Find the cause of the escaping acid and address it. In my case, I regularly need animal derived protein to mop up all the acid I seem to produce. I hate that, because I’m an animal lover, but it is what it is. 
    • allis
      One had hydrolyzed wheat protein and the other had triticum vulgare starch, so both had gluten. After the second time it happened, I went through all of my other products to ensure they were gluten free and they are, so it’s definitely the gluten I’m reacting to. I’m not surprised this is happening now—I had a shaved head for the last 5 years but am now growing it out so I’m using products again when I hadn’t been for awhile! Both products were new. So I should see an allergist to confirm the allergy? Is there a way to confirm the celiac without eating gluten for weeks and weeks?
    • Aleda D
      The nutritional deficiency & supplements advice is priceless. I have suspicions I have celiac disease but absolutely cannot put myself through the gluten challenge process to verify the diagnosis. Compounding the probable celiac disease, I feel, is my disastrous reactions to being prescribed years of prilosec/omeprazole, which I finally took myself off of due to symptoms of nutritional deficiencies, followed by being placed on it by my GI for GERD in stints of 2 months off and on. And I suspect it’s possible that a fluroquiolone antibiotic I took also contributed to existing lifelong malabsorption problems. I have made a lot of stringent diet adjustments (super strict about avoiding gluten contamination and I incorporate fermented things) & exercise regularly (walking, resistance, stretching) plus I take Vitamin D3, B6 and B12, but severe muscle spasms, muscle soreness, deep fatigue, joint inflammation and tendency to infections and brain fog keep dogging me.  I appreciate the supplements and the Omega ratios advice very much!! 
    • cristiana
      I also have experienced this from time to time.  It seems to tie in with episodes of IBS, eating too much fibre but also because I have issues with my pudendal nerve - perhaps some sort of inflammation.  Not fun at all when it strikes.
    • trents
      Do the skin care products that give you a rash list wheat as an ingredient or are you assuming from your reaction that they contain gluten? It is possible that not only do you have celiac disease, which is not an allergy but an autoimmune disorder, but that you also have a wheat allergy.
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