Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

16 year old


Janwill

Recommended Posts

Janwill Rookie

Hi was diagnosed in June 2017 and as well as celiac I am under a psychologist for severe anxiety. I not been to school for 7 weeks and things are getting worse. 

I don't want to move and anxious and get panic attacks if left alone. So far they refusing medication as say it's early days. 

Hate feeling I am ill all the time and feel going to fail my exams due to be not been able to attend school.

Anyone been through this and advise me as fed up.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jmg Mentor
15 minutes ago, Janwill said:

Hi was diagnosed in June 2017 and as well as celiac I am under a psychologist for severe anxiety. I not been to school for 7 weeks and things are getting worse. 

I don't want to move and anxious and get panic attacks if left alone. So far they refusing medication as say it's early days. 

Hate feeling I am ill all the time and feel going to fail my exams due to be not been able to attend school.

Anyone been through this and advise me as fed up.

Hi,

i wrote this this to your mum I think a couple of months ago,

Have you tried completely removing dairy from your diet? I know the last thing you want to hear is that you may have to give up yet more food, but it may be holding you back and causing at least some of the anxiety you are suffering? 

Hopefully others will have some advice also. Sending you best wishes from here in  the north west

matt

Splishsplashy Rookie

Hi! I am 18 now and was diagnosed with celiac four years ago now. Celiac is very hard to deal with especially when you're first diagnosed with it, but know it gets easier! I also had a hard time dealing with anxiety and I know it's not easy at all. First step is to contact all your teachers and possibly your counselor to make sure they can help you stay on top of all your work. It will feel very  hard to catch up once you are able to come back but you can do it! Most teachers will work out a plan with you so that you can get the help you need and not fall behind, there is a plan where you can continue doing work outside of school (I can't remember the name of it but someone at your school should), don't be afraid to see tutors, do a home tutoring program or go to a summer school program if you need to! And honestly as bad as it sounds, it is okay to have to take a grade again if that ends up what needs to be done. Next, it's great that you're seeing a psychologist, but if you continue seeing them and you feel it is making you feel worse (when I went to one I ended up feeling way worse and like I should be feeling worse than I was and stuff) find a new one or take a break all together. Thirdly anxiety does not affect everyone the same but for me I have to find ways to distract myself and get back to normal patterns. It is so hard to go back to school and make yourself do things you would normally do but it is soooooo important. Doing things like being around people and moving around can help boost endorphins so for me that really helps. Even just calling to talk to a friend or something can help lead to a turn around. Taking time to try and "meditate" can help. Doing things like finding music that relaxes you, praying or using yoga breaths can you calm yourself. Some people even find things like reading, singing, dancing, painting or other forms of art can help. Even simply taking time to do thing you find enjoyable can really help. Try writing in a journal to see if you can find what triggers your anxiety and focus on learning how to cope with it, for me I got sick almost every Sunday and missed school on Monday and could not figure out why until I was able to track I was thinking about school the next day and getting sick at the same time with the same symptoms. Once I knew that I could learn to work around it. Always remember it's okay to have anxiety it's not a willpower to get over it, it's more a coping mechanism to work with and around it. Another thing that works for some people is essential oils. Try buying a few like lavender, rose or frankincense - they are surprisingly easy to find, most whole foods stores sell them. They can be dabbed on areas like the neck and back and put on your hands where you form a small circular cup with the other and take deep breaths of it or a diffuser can be bought, some can even be put into water or tea. Looking up ways to battle anxiety can be helpful there are all sorts of ideas out there and you can find what works for you. Remember you can do this! You can get through this! There are tons of people who love and support you and want you to get better! Don't push yourself too hard but keep trying, and keep trying your best. Even if your best feels like the worst you will get through this and you can do this. I hope this helped you some!

Ennis-TX Grand Master

Many times with celiac disease the anxiety is intensified by nutrient deficiencies in things that effect our nerves, brain and mental well being. Common ones are the full B-vitamin spectrum, vitamin D and magnesium.  Look for stuff like Natural Vitality Magnesium Calm, start with small doses 1/4tsp and work it up over a few weeks to the full dose. Liquid Heath makes a sublingual vitamin D and 2 mixes i SWEAR by, Stress & Energy and Neurological Support I take 1tbsp each 3 times a day.....never giving those up lol.

Wheatwacked Veteran

Hi Janwill. I am sorry for your loss. You are lucky to have discovered that you cannot eat wheat now. Better than suffering for years with misdiagnoses and the damage the wrong treatment can cause. Once you get over mourning your loss you will find life is better. For starters you will likely avoid diabetes and obesity. That is good, yes? Wheat consumption causes all sorts of metabolic deficiencies with their individual complications. For your anxiety: I have been sad or depressed for ever until I started D. I and several people I know got great results from vitamin D3 at 10,000 iu a day. While the dietary recommendation is a minimum of 400 a day, that is the limit below which you are susceptible to rickets and bone loss. Less researched and understood is the role vitamin D plays in immunology and mood. The acceptable blood level for D3 is from 30 to 120. Some researchers estimate that 80% of the US population is low, but doctors are taught not to treat it until below 30 for some reason. It takes a while to get your bucket of D filled. You fill up D by eating organ meats and getting sunlight. Organ meat creeps me out, and sunshine, well, skin cancer. Besides I prefer to stay in. It took me a year at 10,000 a day to get to the point where I can stop taking it everyday, A friend, seeing his psychiatrist after a few months on 10,000 iu, had his Seriquil reduced. After taking 10k a day for a year his blood work came in at 70. I was on Buspirone for anxiety which worked well for me but no longer need it. I am now off it. They call it the sunshine medicine because we get it mostly from sunshine, but our lives now are avoiding sun. "In fact, 20% of our tests revealed 25-hydroxyvitamin D levels below 30 ng/mL, a number that even conventional doctors recognize as insufficient. When you realize that almost all people we tested were taking at least some supplemental vitamin D, you can understand the magnitude of the epidemic of vitamin D deficiency that exists in the general population."Open Original Shared Link.

As far as overdosing on D, it does not seem likely. One research study gave a single dose of 125,000 iu to a group of  kidney transplant patients and tracked their recovery over a year. There was no difference with the control group in terms of rejection.

You may also want to look into supplementing Iodine for healing and energy (why are so many celiacs taking Thyroid hormones?),one sheet of sushi seaweed a day is good and don't ignore the fact that you may be iron deficiency anemic.  I was pleasantly surprised how fast and well Geritol worked.

 

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,052
    • Most Online (within 30 mins)
      7,748

    Kathleen JJ
    Newest Member
    Kathleen JJ
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.1k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kathleen JJ
      And yes, of course it's better to know and we will adjust.  It's just, he's 7 and in our house we can control what he gets. But he plays soccer 3 times a week and in the changing room the boys share candies. I can and will tell him not to accept them any more, but "mistakes" will be made.   I'm really burdened by the potential social impact for him. He so loves to go to a restaurant as a family - I'll guess that's finished. Going to birthday parties at another kids house? I am reading about Coeliacs and apparently the fact that something as much as TOUCHED something with wheat is enough, even if he doesn't feel the symptoms - how can we control that bar from keeping him locked up?    And the worst worry of all: how do you tell a little boy to do all of this to not have symptoms that he does not have. If he'd been having horrible diarrhea or feeling really tired, we could tell him 'see, you feel so much better now, that kind of food was just not good for your body', but now, what will our argument be? For clarity: of course we will put him on the diet, I am not saying I don't believe in the necessity of that, it is just that it will be quite a stretch to 'sell' it to him 😞
    • StaciField
      I’m 41. You have helped me achieve the goals of finding a way of getting nutrients into my body so I will see how it works for me. Thank you so much.
    • Kathleen JJ
      Thank you for your reaction. The reference values are both "<10", although I found a medical paper from Netherlands (I'm Belgian) who use the same values and there the see a positive daignosis as twice more then 200 and a positive biopsie. I didn't see how to change this in my original message, sorry...
    • cristiana
      Hi Kathleen Welcome to the forum. I am based in the UK so I am just picking this post up before our US based moderators appear.  I think they will want to know the lab values of both of the figures you have provided us with (min/max reading) as they tend to vary - could you post those for us, please? We see a lot of coeliacs who also have helicobacter pylori on this forum.  I am not sure how that would reflect in the blood results so I will leave this to be answered by my more experienced colleagues @trents or @Scott Adams. Obviously, you won't really know for sure where things stand until you have your meeting with the consultant.  I am sorry that you have to wait, but it will be worth knowing one way or another.  Apart from his recent gastric issues, it is fantastic to know that your son is otherwise a picture of health.  But it is worth bearing in mind that undiagnosed coeliac disease can cause health issues in the longer term, so far better to know now if he does turn out to have coeliac disease and adapt your son's diet accordingly, before other health issues have a chance to appear. Cristiana  
    • Kathleen JJ
      Hi all, I'm very new at this and 'this' has been quite a rollercoaster ride.   Last august my 7 year old son suddenly had these colic like pain attacks that would come a few times per day/night during 10 days. Because they were that bad and because our older daughter had her appendix taken out at 7, we ended up at ER twice to have him checked out. On both accounts blood was taken, on one account an ultrasound was made, showing swollen lymph nodes around the stomach, and the working theory was it was a violent reaction to a viral infection (even though he was not nauseous nor had diarrhea or anything like that). After 10 days it stopped as suddenly as it came on.   On October 1d my daughter started vomiting in the middle of the night, had a fever, and my son also threw up once (no fever). We kept them home from school, daughter kept on vomiting, fever stayed, son was perfectly healthy during the day, although he only ate yoghurt to be safe. The plan was to let him go to school the day after. In the night prior to his school return however, he woke up at 1, screaming with pain, begging to go to ER, which we did - the pain from august had returned.   Again bloodwork, but nothing found. It ended up only being that one pain attack, but because they were that bad, we went to the pediatrician the week after to have him checked up more thoroughly. He is a very energetic, sporty boy and he showed off his six pack with great pride to the doctor. She said he looked as an example of health, but did a more extended search because as the last blood test his liver values had been ever so slightly raised and she wanted to see how they'd do after a month.    So on November 8 we had his blood drawn again. His liver values had returned to normal, which did confirm the working theory that his pains were viral-infection triggered.   However, to everyone's (including the doctor) surprise, he also had these values: Transglutaminase IgA + >128 U/mL Gliadine IgG + 123.0 U/mL    I take it these are quite high. So last Tuesday he got his gastroscopy done, we'll have the result around the 25d we hope.  Whilst going for taking samples of the bowel, the gastro enterologist did notice some nodes in his stomach that present like a reaction to a Helicobacter pylori type infection, which would very much explain the type of pains he had.   We are still very much in shock by the Ceoliakie diagnosis (I know, it still needs to be confirmed by the biopsy, but with those numbers we kind of expect it) as he has no symptoms at all. The doctor said 'once he goes on a gluten free diet you'll see him blossom into an energetic, more happy boy' and we're like: but he is bouncing around singing and joking all day, I really can't imagine him being MORE energetic and happy - meaning, he's welcome to be that of course, but this is not a tired, withdrawn kid.   And even if the biopsy gets back negative (unlikely), what could these numbers have meant then? Could the Helicobacter pylori have an influence on this?   I have so many questions but are only eligible for a consult on December 6d so my data driven mind is going crazy having so little information or knowing so little about what everything means...   Kind regards, Kathleen  
×
×
  • Create New...