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Danarae

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Danarae Newbie

Hello,

I've just been diagnosed with celiac.  I have gone gluten free, but am wondering what protocol to use to heal the damage to my gut?  Any suggestions on what might work.

 

Thank you!


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kareng Grand Master
5 minutes ago, Danarae said:

Hello,

I've just been diagnosed with celiac.  I have gone gluten free, but am wondering what protocol to use to heal the damage to my gut?  Any suggestions on what might work.

 

Thank you!

You can supplement if you want to.  IF you are low on iron or vitamin D - then some vitamins might be helpful.  

The treatment for Celiac disease is a strict gluten free diet.  Some people need to cut out lactose for a few months, too.  The villi that are damaged in Celiac are the part that helps you digest lactose.  So, until they are healed, it might help to skip milk , cream, etc.  

 

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Jmg Mentor
On 1/23/2018 at 6:34 PM, Danarae said:

Hello,

I've just been diagnosed with celiac.  I have gone gluten free, but am wondering what protocol to use to heal the damage to my gut?  Any suggestions on what might work.

 

Thank you!

Hi and welcome :)

Gluten bread etc is fortified with b vitamins, iron etc. So if you take that out of the diet you may want to replace, ideally with foods but supplements can help.

I also take Vit D (we dont see much sunshine here in the UK) and magnesium, zinc and calcium which seems to really help me mentally. 

For healing the gut you may want to check out paleo sites for info on making bone broth. Also consider probiotics and this page has some foods to try and incorporate:

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Good luck!

Matt

Ennis-TX Grand Master

I know many need magnesium and the full spectrum of b-vitamins niacin, iron, D, C and folate can be others. IF your asking for a targeted celiac vitamins/shake Pioneer Labs specializes in a celiac shake and vitamins. Personally I use Liquid Health for most of mine as I like the liquid in a drink concept over adding more to the handfuls of pills I take. The Stress & Energy and Neurological Support 1 tbsp each 3 times a day does me great, and I use their vitamin D as I need it. All sublingual liquids, I also rotate between Doctores Best Magnesium and Natural Vitality Calm Magnesium and dose to tolerance. I take other stuff but for other issues, IE I take Marshmallow and Slippery elm for my Ulcerative Colitis, I take vitamin C since I can personally not eat fruit, I take a collagen and joint supplement since I can not consume meats, Pancreatic enzymes since I have issues with enzyme production, but again these are all just things I take to fix other issues.

selectivefocus Enthusiast
On 1/23/2018 at 1:34 PM, Danarae said:

Hello,

I've just been diagnosed with celiac.  I have gone gluten free, but am wondering what protocol to use to heal the damage to my gut?  Any suggestions on what might work.

 

Thank you!

Eat whole food as much as possible and get a sublingual vitamin d supplement. Life extension and superior source are excellent. If you are anemic, red meat is your friend. Basically, even though it's easier to transition by purchasing all the processed gluten free packaged foods, you need whole foods to heal. I eat a lot of meat, veggies, and butter, and my hair and nails came back within 6 or 7 months. You also might find you have additional food intolerances over time. Over all, whole foods, natural ingredients, and listen to your body.

plumbago Experienced

I recommend getting labs drawn to know the various vitamin and mineral levels before you start supplementing. Eat gluten free food that agrees with you, initially. The advice to eat veggies and fruit and whole foods is of course good, but you also have to know what works for you and your stomach in general.

Ask -- how damaged is my gut? Did you have an endoscopy with biopsy?

Danarae Newbie

I did not have an endoscopy. I heard the results can be spotty 


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Danarae Newbie

I know my gut is very damaged. Other test results show severe SUBI and severe Candida. I have tons of food sensitivities. My diet had been whole food for a coupkevyeRs now. No dairy, grains, soy or processed whatso dver

cyclinglady Grand Master
18 hours ago, Danarae said:

I know my gut is very damaged. Other test results show severe SUBI and severe Candida. I have tons of food sensitivities. My diet had been whole food for a coupkevyeRs now. No dairy, grains, soy or processed whatso dver

If you have been grain free for a long time, you were lucky to get a positive in the celiac panel.  Gluten must have been in your diet all along.  Be sure to check all labels.  

You might consider getting an endoscopy or a pill camera.    I recently had a follow-up endoscopy.  My celiac antibodies were elevated and I was on a pretty strict gluten-free diet.  I was experiencing GI symptoms.  Discovered that my intestines were healed.  Had gastritis instead most likely from my Hashimoto’s Thyroiditis.  No H.Pylori, SIBO, etc.  My niece was diagnosed with Crohn’s using the pill camera after all other tests were negative.  

It helped to really verify the condition of my small intestine as my blood tests were misleading.  

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    • trents
      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
    • trents
      Welcome to the forum, @Richardo! We sometimes run across terms like "rice gluten", "corn gluten", and "oat gluten" but they are used informally and, technically, it is incorrect to speak of grains other than wheat, barley and rye as having gluten. Gluten is a protein with a specific structure found only in wheat, barley and rye. Other cereal grains contain proteins that are more or less similar in structure to gluten in some ways but are not actually gluten. Having said that, the proteins found in these other cereal grains are similar enough to gluten to possibly cause cross reactivity in some celiacs. Cross reactivity also happens with non cereal grain foods as well that have a protein structure similar to gluten. A prime example is dairy (the protein "casein"). Another example may be soy. Other foods can also cause cross reactivity for different reasons, such as microbial transglutaminase (aka, "meat glue") used commonly in pressed meat products. Just so you'll know, Dr. Osborne's claims have not received wide acceptance in the celiac community and are looked upon with skepticism by the medical and scientific community. Although he is a board certified nutritionist, his doctorates are actually in chiropractic medicine and pastoral science: https://www.drpeterosborne.com/about/dr-peter-osborne/ I am not sure Osborne has the training and background to address the chemical structure that defines gluten. I would encourage you to do some research on what gluten actually is. I have done this for myself and came away convinced that only wheat, barely and rye actually contain the protein gluten. I do not doubt your claims that you have breakouts of dermatitis herpetiformis from consuming these other grains. I am just contending it is not actually from gluten.
    • Richardo
      I was diagnosed celiac about 15 years ago and followed the usual diet restriction on Wheat, barley and rye and did very well on those restrictions with no problems with dermatitis herpetiformis. 4 years ago I started getting bad rashes on my knees and calves, buttocks, around my waist and my elbows and forearms and hands. It seemed to last about 11/2 to 2 months then clear up for a month and come back  again. I never changed anything in my diet and a dermatologist told me I  must getting  cross contamination, which I knew I wasn't.  Finally after struggling with it all that time, I watched a video by Dr Osborne who sited a study done in England showing that ALL grains (rice, corn etc) contain gluten. I went on a totally grain free diet and have now been 100 percent free of dermatitis herpetiformis for over a year. I tried a test and ate corn flour and it started to come back so I'm off all grains again. Long story I know, but my question is, why is practically EVERY celiac site private or Govt only mentioning the BIG 3 and never mentions other grains as a possible means of contamination? I am free  from a horribly uncomfortable condition now and I know there are others who would be encouraged by this.
    • trents
      Your chest pain could be related to the Sarcoidosis. "When it affects the lungs, wheezing, coughing, shortness of breath, or chest pain may occur." https://en.wikipedia.org/wiki/Sarcoidosis   The bowel incontinence could be caused by surgical damage (or scar tissue) to the cauda equina nerve bundle in the lumbar area of the spine. Or, it could be related to unintentional gluten exposure.
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