Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Supplements

Danarae

Recommended Posts

Danarae Newbie
Danarae
Posted

Hello,

I've just been diagnosed with celiac.  I have gone gluten free, but am wondering what protocol to use to heal the damage to my gut?  Any suggestions on what might work.

 

Thank you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
5 minutes ago, Danarae said:

Hello,

I've just been diagnosed with celiac.  I have gone gluten free, but am wondering what protocol to use to heal the damage to my gut?  Any suggestions on what might work.

 

Thank you!

You can supplement if you want to.  IF you are low on iron or vitamin D - then some vitamins might be helpful.  

The treatment for Celiac disease is a strict gluten free diet.  Some people need to cut out lactose for a few months, too.  The villi that are damaged in Celiac are the part that helps you digest lactose.  So, until they are healed, it might help to skip milk , cream, etc.  

 

Open Original Shared Link

 

Jmg Mentor
Jmg
Posted
On 1/23/2018 at 6:34 PM, Danarae said:

Hello,

I've just been diagnosed with celiac.  I have gone gluten free, but am wondering what protocol to use to heal the damage to my gut?  Any suggestions on what might work.

 

Thank you!

Hi and welcome :)

Gluten bread etc is fortified with b vitamins, iron etc. So if you take that out of the diet you may want to replace, ideally with foods but supplements can help.

I also take Vit D (we dont see much sunshine here in the UK) and magnesium, zinc and calcium which seems to really help me mentally. 

For healing the gut you may want to check out paleo sites for info on making bone broth. Also consider probiotics and this page has some foods to try and incorporate:

Open Original Shared Link

Good luck!

Matt

Ennis-TX Grand Master
Ennis-TX
Posted

I know many need magnesium and the full spectrum of b-vitamins niacin, iron, D, C and folate can be others. IF your asking for a targeted celiac vitamins/shake Pioneer Labs specializes in a celiac shake and vitamins. Personally I use Liquid Health for most of mine as I like the liquid in a drink concept over adding more to the handfuls of pills I take. The Stress & Energy and Neurological Support 1 tbsp each 3 times a day does me great, and I use their vitamin D as I need it. All sublingual liquids, I also rotate between Doctores Best Magnesium and Natural Vitality Calm Magnesium and dose to tolerance. I take other stuff but for other issues, IE I take Marshmallow and Slippery elm for my Ulcerative Colitis, I take vitamin C since I can personally not eat fruit, I take a collagen and joint supplement since I can not consume meats, Pancreatic enzymes since I have issues with enzyme production, but again these are all just things I take to fix other issues.

selectivefocus Enthusiast
selectivefocus
Posted
On 1/23/2018 at 1:34 PM, Danarae said:

Hello,

I've just been diagnosed with celiac.  I have gone gluten free, but am wondering what protocol to use to heal the damage to my gut?  Any suggestions on what might work.

 

Thank you!

Eat whole food as much as possible and get a sublingual vitamin d supplement. Life extension and superior source are excellent. If you are anemic, red meat is your friend. Basically, even though it's easier to transition by purchasing all the processed gluten free packaged foods, you need whole foods to heal. I eat a lot of meat, veggies, and butter, and my hair and nails came back within 6 or 7 months. You also might find you have additional food intolerances over time. Over all, whole foods, natural ingredients, and listen to your body.

plumbago Experienced
plumbago
Posted

I recommend getting labs drawn to know the various vitamin and mineral levels before you start supplementing. Eat gluten free food that agrees with you, initially. The advice to eat veggies and fruit and whole foods is of course good, but you also have to know what works for you and your stomach in general.

Ask -- how damaged is my gut? Did you have an endoscopy with biopsy?

Danarae Newbie
Danarae
Posted
  • Author

I did not have an endoscopy. I heard the results can be spotty 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Danarae Newbie
Danarae
Posted
  • Author

I know my gut is very damaged. Other test results show severe SUBI and severe Candida. I have tons of food sensitivities. My diet had been whole food for a coupkevyeRs now. No dairy, grains, soy or processed whatso dver

cyclinglady Grand Master
cyclinglady
Posted
18 hours ago, Danarae said:

I know my gut is very damaged. Other test results show severe SUBI and severe Candida. I have tons of food sensitivities. My diet had been whole food for a coupkevyeRs now. No dairy, grains, soy or processed whatso dver

If you have been grain free for a long time, you were lucky to get a positive in the celiac panel.  Gluten must have been in your diet all along.  Be sure to check all labels.  

You might consider getting an endoscopy or a pill camera.    I recently had a follow-up endoscopy.  My celiac antibodies were elevated and I was on a pretty strict gluten-free diet.  I was experiencing GI symptoms.  Discovered that my intestines were healed.  Had gastritis instead most likely from my Hashimoto’s Thyroiditis.  No H.Pylori, SIBO, etc.  My niece was diagnosed with Crohn’s using the pill camera after all other tests were negative.  

It helped to really verify the condition of my small intestine as my blood tests were misleading.  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,943
    • Most Online (within 30 mins)
      7,748
    Luz Kuehn
    Newest Member
    Luz Kuehn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • ognam
      Glutening symptom? oily stool

      By ognam · Posted

      Has anyone had Steatorrhea (oily/fatty poop) as a temporary glutening symptom or should I be concerned I've introduced chronic gluten somewhere (like in meds)? I haven't gotten Steatorrhea since before I went gluten free. However, I moved in the past few weeks and haven't been as careful - I've eaten at restauraunts with cross contamination but only experienced minor symptoms like headache. The past week, I ate only gluten free food at home except I went to Red Robin and got fries (told them gluten-free; allergy). The next day I had Steatorrhea and the day after that.   I know it's a symptom of malabsorption so I was wondering if it was the kind of thing that could be caused by one event or if it was due to a more chronic issue. Of course I will speak to a GI but I recently moved and need to find one.   Thank you for any info
    • plumbago
      Anyone else with very high HDL?

      By plumbago · Posted

      A relative has opened another door for me on this issue -- the possibility of menopause raising HDL. Most studies suggest that menopause decreases HDL-C, however, one study found that often it's increased. "Surprisingly, HDL cholesterol was higher (p < 0.001) in postmenopausal women by 11%. Further, the number of women who had low HDL cholesterol was higher in pre vs. postmenopausal women. The range of ages were 26–49 years for pre-menopausal and 51–74 years for postmenopausal women. "This interesting finding has also been observed by other investigators. It is possible that the observed increase in HDL-C in postmenopausal women could be due to a protective mechanism to counterbalance the deleterious effects of biomarkers associated with menopause. However, further studies are needed to confirm this theory. And to the point raised earlier about functionality: "...some patients with elevated HDL-C concentrations could remain at risk for coronary events if HDL is not functional and some authors have suggested that this could be the case for menopausal women." Postmenopausal Women Have Higher HDL and Decreased Incidence of Low HDL than Premenopausal Women with Metabolic Syndrome. By no means to I think this is definitive, rather food for thought.
    • ognam
      Increasing symptoms after going gluten free

      By ognam · Posted

      Yes, lots of delicious things have barley malt. It also doesn't include rye. And there are a number of grains commonly cross contaminated such as oats.   Additionally, wheat allergies are different from gluten allergies as wheat allergies are a reaction to a wheat protein. So something *could* contain wheat gluten without causing a wheat allergic response (though realistically,  I don't know how likely that is to occur)
    • trents
      Increasing symptoms after going gluten free

      By trents · Posted

      Although it is true that FDA regulations don't require gluten to be included in allergy info, it does require wheat and ingredients made from wheat to be listed. Of course, that doesn't preclude gluten from barley being found in a product.
    • ognam
      Increasing symptoms after going gluten free

      By ognam · Posted

      I had a lot of weird/random symptoms for a few months after going gluten free. But eventually they evened out and I felt SO MUCH BETTER. The person above wrote a very detailed message that looks helpful. I'd add don't forget to check for gluten in places like medicine. Advil liquigels, for example, have gluten. It's very frustrating trying to figure out if things are gluten free as us law doesn't require it to be declared. The only labeling rule is that if the product says gluten free, it must have less than 20ppm gluten.
×
×
  • Create New...