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CMCM Rising Star

I've been gluten free (trying) since the day after Thanksgiving. Although I don't intentionally eat anything with gluten, I'm sure I've gotten some thru additives or some such. I'm also trying to work out what other sensitivities I may have. Dairy, for example, has always seemed to bother me. I don't know if that is all on its own, or as a result of untreated gluten sensitivity/celiac. I also cut dairy out at the same time as gluten.

Yesterday, missing my cappuccinos with milk, I tried using soy milk. By the end of the day I had gas, so maybe soy just doesn't agree with me either. I was never one to eat soy much, so this was an unusual experience for me with the soy.

Tonight I ate out....steak and veggies only, but the sauce may have had some flour/gluten, I didn't ask. Now, 4 hours after dinner I feel horribly nauseated. Is this a common reaction to gluten? This has happened before....not all the time, but occasionally....usually a few hours after eating I'd get terrible nausea for an hour or more. On other occasions I woke up in the middle of the night with terrible nausea, a good 8 hours after eating. I don't know what to make of all this. I'm beginning to think I can't eat much of anything any more. I'm pretty much decided to do the Enterolab testing, but now I'm wondering if I should also test for soy, dairy, egg???


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MySuicidalTurtle Enthusiast

You really need to make sure you are 100% gluten-free because a little bt of gluten is just as bad as a lot. Ask before you eat things so that you don't get sick! If you are getting tested test for everything just so you knwo what to avoid. Good luck!

kabowman Explorer

Find out the gluten first - I went on a strict meat and veggies diet for a week or two, after I had fully eliminated the gluten for over a month and then started to notice the symptoms that came wihen eating other foods, then started to add stuff back in--no sauces or condiments until you identify which ones you can eat. If you really think there are other intolerances, this will help identify those but really, make sure about the gluten first if you really suspect it, like your soy. If I suspected anything, I would then eliminate that for a week then try just that again and watch my reactions.

Also, make sure there is no cross contamination, using clean, non-contaminated skillets and utensils, and keep your stuff separate (if there are othe people in the house); for example, I have my own jelly, spreads, sauces, etc. so there is no risk of anyone dropping crumbs into something I might eat.

My reactions to most of my intolerances are similar except for yeast - that one messes with my mind too and literally knocks me out cold for several hours and then I am groggy for days.

darkangel Rookie
Dairy, for example, has always seemed to bother me. I don't know if that is all on its own, or as a result of untreated gluten sensitivity/celiac. I also cut dairy out at the same time as gluten.

People who are sensitive to gluten often have problems with casein, too... the protein in dairy.

jerseyangel Proficient

All the advice above and I would stress that you need to make sure all the gluten is out of your diet and any product you use on your body. The sauce on the steak should have raised a red flag, for example. I know it's a pain at the beginning, but you have to check out everything that goes into your mouth. The nausea, in my experience, is definately a reaction to the gluten. Actually, I find as I am healing, nausea is more of a problem with an accidental glutening than D. You may want to hold off on the soy and dairy until you get the gluten out completely and are over the gluten effects. Rice milk is a decent sub. at least until you can figure out whats what. Just remember, you're not alone-- :)

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    • trents
      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
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