Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is it celiac????

Sarah K.

Recommended Posts

Sarah K. Newbie
Sarah K.
Posted

April 2013: Started feeling bad like a flip of a switch during the beginning of my 3rd pregnancy 

august 2015: negative biopsy and TtG blood test 

July 2017: negative TtG, IGA, EMA, etc 

October 2017: positive DGP (50)

november 2017: HLA DQ8 positive

do I have it or not?????

I've been gluten free since October and while my bathroom situation is better I am still extremely crampy  

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jmg Mentor
Jmg
Posted

Hi Sarah and welcome :)

 

1 hour ago, Sarah K. said:

do I have it or not?????

 

You had a positive test, were you not given an endoscopy appointment? That's the usual next step in diagnosis?

Did you discuss going gluten free with your doctor? 

Sarah K. Newbie
Sarah K.
Posted
  • Author

I had a negative endoscopy already. I wonder if they missed it?

cyclinglady Grand Master
cyclinglady
Posted
3 hours ago, Sarah K. said:

April 2013: Started feeling bad like a flip of a switch during the beginning of my 3rd pregnancy 

august 2015: negative biopsy and TtG blood test 

July 2017: negative TtG, IGA, EMA, etc 

October 2017: positive DGP (50)

november 2017: HLA DQ8 positive

do I have it or not?????

I've been gluten free since October and while my bathroom situation is better I am still extremely crampy  

 

Which DGP was positive?  The IgA or IgG version?  What do you mean your IgA was negative?  This is usually an Immunoglobulin A test.  When used in conjunction with celiac disease testing, it acts as a control test.  Some celiacs are IgA deficient and therefore only IgG tests should be used.  How many biopsies were taken and where?  Do you have the GI and pathologist’s Reports?  The surface area of the small intestine is larger than a tennis court.  Easy to miss damaged areas.  Was the GI’s scope able to see intestinal villi?  Did you get photos?  Was H.Pylori ruled out?  Stomach issues?  

Celiac disease usually takes a year or longer to heal because of collateral damage, the difficulty in learning the gluten-free diet, avoiding cross contamination, etc.  Three months in is such a short time, though some heal that fast!  

What did your doctor advise?  

Jmg Mentor
Jmg
Posted
46 minutes ago, Sarah K. said:

I had a negative endoscopy already. I wonder if they missed it?

Well, you have a positive test, so assuming you do have it, you are still in the early days of the diet, expect to continue to see improvements ffor anywhere from 6-12 months after you first exclude gluten.

i found the first couple of months quite ropey, good days and bad days. The general curve was up but it wasn't always plain sailing...

You may want to look at what your eating, many suffer with dairy for instance and feel better after they cut it out . its also easy to slip up on the diet or get cross contamination. Check the stickies newbie thread on this forum for some good tips that may help with that. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,082
    • Most Online (within 30 mins)
      7,748
    kgmullineux
    Newest Member
    kgmullineux
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac or Addison's complications? Can someone share their experience?

      By Scott Adams · Posted

      This article might be helpful. See this section of the article: Many People Can Be Diagnosed Using Only Blood Tests and No Biopsy    
    • Scott Adams
      Celiac pain relief

      By Scott Adams · Posted

      Yes, ginger tea is an ancient Chinese medicinal treatment for stomach issues and inflammation.
    • DebJ14
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By DebJ14 · Posted

      Good luck to you.  I would not get past that first slice of bread.  I would be vomiting and have diarrhea within 30 minutes and it would continue for hours and I would feel like I was hit by a truck for days.  My functional medicine doctor told me to stop taking Calcium and to significantly up my Vitamin D, add K2, lots of Magnesium, some boron and collagen.  This was all recommended after taking the Spectracell test for nutrient deficiencies.  Started doing this at 54 when diagnosed and at 72 no issues with the old bones.   
    • Recently diagnosed
      Gluten-Free House Swaps

      By Recently diagnosed · Posted

      I live in Ottawa Canada and would be interested in a swap with someone who also has a gluten-free house. I’d love to swap out in winter for somewhere warm.
    • trents
      Celiac or Addison's complications? Can someone share their experience?

      By trents · Posted

      @KRipple, thank you for the lab results from your husband's celiac disease blood antibody testing. The lab result you share would seem to be the tTG-IGA (Tissue Transglutaminase IGA) and the test result is in excess of 10x normal. This is significant as there is an increasing tendency for physicians to grant a celiac disease diagnosis on the basis of antibody testing alone when the scores on that particular test exceed 10x normal. This trend started in the UK during the COVID pandemic when there was tremendous pressure on the medical system over there and it has spread to the USA. The tTG-IGA is the centerpiece of celiac disease blood antibody testing. All this to say that some doctors would grant a celiac disease diagnosis on your husband's bloodwork alone and not feel a need to go forward with an endoscopy with biopsy. This is something you and your husband might wish to take up with his physicians. In view of his many health issues it might be wise to avoid any further damage to his small bowel lining by the continuing consumption of gluten and also to allow healing of such to progress. The lining of the small bowel is the place where essentially all of our nutrition is absorbed. This is why celiac disease, when it is not addressed with a gluten free diet for many years, typically results in additional health problems that are tied to nutritional deficiencies. The millions and millions of tiny finger-like projections that make up the nutrient absorbing surface of the small bowel lining are worn down by the constant inflammation from gluten consumption. In celiac disease, the immune system has been tricked into labeling gluten as an invader. As these finger-like projections are worn down, the efficiency of nutrient absorption becomes more and more compromised. We call this villous atrophy.   
×
×
  • Create New...