Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could I be getting glutened??!


ElianaY

Recommended Posts

ElianaY Newbie

Hello all, my husband works at a pizzeria and of course makes the pizza's which means he comes in contact with flour all day long. Could it be possible that any flour landing on his clothes and then coming home could pose a threat of contamination? Obviously if he puts clothes in with dirty laundry all those items are coming in contact but could I possibly breath in any remaining flour or something to that effect? Am I crazy?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Second hand contact inhaled flour from laundry....umm bit out there but not impossible. I have gotten glutend from walking through a bakery area at a store. If your husbands clothes are like caked in flour with dust flying up when you move then yes I can see this. Thing is flour can stay airborne in a bakery for hours, you inhale it and it gets stick in the mucus in your nose and throat then you swallow and BOOM glutened by trace amounts. If you want to be extra careful try using a dust mask and gloves and do his laundry separate or take to the cleaners. Have you had your numbers checked? If it is as you suspect and your husbands job is exposing you constantly you would see raised antibodies in your blood so a follow up blood panel would still show a high antibody count despite the gluten free diet. 
I actually got a urban pollution mask called tecnomask that I use sometime when heading out.....not just for the crazy random flour but for other allergens and dust issues that makes it easier.

ElianaY Newbie

Oddly enough my numbers came back within range but a recent endoscopy is showing I have vilious atrophy at a marsh 3a score!!! Crazy right?? Ive now gone as far as separating my pots, pans, sponge and all cook wear. Ive separated my food and have my own side of the kitchen. I should have done this from the beginning (palm to forhead) but now Im just super paranoid about everything and am driving my self insane! This evening my mother in law was making a cheese sauce and used flour as a thickener now I am wondering if any of that got airborne and could affect me. My stomach just hurts all the time and I cant quite pinpoint it. I even went as far as checking toothpaste lotions and beauty products, just ready to feel better soon!

cyclinglady Grand Master

Oddly for me, my endoscopy this month revealed healed villi, but my antibodies (DGP IgA) were still elevated.  So, testing for antibodies after diagnosis is not perfect, but it is the less invasive tool in the toolbox right now.  But, the DGP IgA is the only test I have tested positive on.  Has the entire panel been run or just the TTG?  

I would ban flour in my house for sure (wait, it is banned).  We are actually gluten free now that there are two gluten free eaters in the house, but you can make a shared household work.  Get your MIL to use Gluten Free flour or cornstarch (a Southern Favorite) to thicken gravy.  

I would treat your hubby as a hazmat situation (I actually did this when he recently came out from crawling under the house).  Strip immediately, shower and I wash his work clothes separate from our regular clothes.  In my case, I am worried about ground-in dirt, old animal droppings and mold spores.  Yuck!  

On cookie day, I stay out of the kitchen during the holidays and hang with the guys at my SIL’s house.  I bake gluten-free cookies ahead of time and share.  Do I feel guilty?  Heck, no.  A lot of flour can settle and spread around a kitchen.  

So, keep researching on keeping your kitchen safe for you  and consider your own gluten-free diet.  The Fasano gluten-free diet to help jump start your healing at least until you feel better.  Then add gluten-free processed foods back in slowly.  

ElianaY Newbie

Thank you!!! Will definitely be looking into that ?

Ennis-TX Grand Master
7 hours ago, ElianaY said:

Oddly enough my numbers came back within range but a recent endoscopy is showing I have vilious atrophy at a marsh 3a score!!! Crazy right?? Ive now gone as far as separating my pots, pans, sponge and all cook wear. Ive separated my food and have my own side of the kitchen. I should have done this from the beginning (palm to forhead) but now Im just super paranoid about everything and am driving my self insane! This evening my mother in law was making a cheese sauce and used flour as a thickener now I am wondering if any of that got airborne and could affect me. My stomach just hurts all the time and I cant quite pinpoint it. I even went as far as checking toothpaste lotions and beauty products, just ready to feel better soon!

Consider a full on gluten free house....no wonder your getting sick. I could not live in a gluten house, even on a gluten-free diet I kept getting glutened by others and had to move out. Stuff got everywhere, and I would CC my own stuff from the oddest things, like gluten residue on handles, crumbs falling in drawers, that dang couch corner they would spill gluten milk/cereal on and wipe their hands on.....yeah the house was a nightmare for me. Gluten can also be in condiment jars where someone used a spoon/knife to spread on a gluten toast then back in thee jar, butter containers, scratched pots/pans/baking dishes. stiring utensils, toasters etc....if in a shared house you need your own dedicated cookware, gluten needs to be treated like a bio hazard and handled like so. Freezer Paper makes great safe prep area/eating surface and can be tossed after for easy clean up, food service vinyl gloves are a lifesaver, and I found cooking stuff with nordic ware microwave cookware like steamers omelettes makers saved me having to get new appliances and pans for awhile. BTW there is gluten free everything now days...there is no excuse other then the price too not change the house over it is yourr health, I have a comprehensive list of gluten-free alternatives you can view. We do suggest whole foods only diet to boost healing and avoiding processed foods for awhile, new crockpot with liners and doing soup,dishes in it in large batches gluten-free is a great start.
https://www.celiac.com/forums/topic/91878-newbie-info-101/
https://www.celiac.com/forums/topic/120402-gluten-free-food-alternative-list-2018-q1/

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,311
    • Most Online (within 30 mins)
      7,748

    SWilson
    Newest Member
    SWilson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis if your liver enzymes are elevated. But I was checked for all varieties of hepatitis and that wasn't it. Liver enzymes continued to slowly creep up for another 13 years and my PCP tested me for a lot of stuff and it was all negative. He ran out of ideas. By that time, iron stores were dropping as was albumin and total protein. Finally, I took it upon myself to schedule an appointment with a GI doc and the first thing he did was test me for celiac disease. I was positive of course. After three months of gluten free eating the liver enzymes were back in normal range. That was back in about 1992. Your story and mine are more typical than not. I think the average time to diagnosis from the onset of symptoms and initial investigation into causes for symptom is about 10 years. Things are improving as there is more general awareness in the medical community about celiac disease than there used to be years ago. The risk of small bowel lymphoma in the celiac population is 4x that of the general population. That's the bad news is.  The good news is, it's still pretty rare as a whole. Yes, absolutely! You can expect substantial healing even after all these years if you begin to observe a strict gluten free diet. Take heart! But I have one question. What exactly did the paperwork from 15 years ago say about your having celiac disease? Was it a test result? Was it an official diagnosis? Can you share the specifics please? If you have any celiac blood antibody test results could you post them, along with the reference ranges for each test? Did you have an endoscopy/biopsy to confirm the blood test results?
    • Cathijean90
      I’ve just learned that I had been diagnosed with celiac and didn’t even know. I found it on paperwork from 15 years ago. No idea how this was missed by every doctor I’ve seen after the fact. I’m sitting here in tears because I have really awful symptoms that have been pushed off for years onto other medical conditions. My teeth are now ruined from vomiting, I have horrible rashes on my hands, I’ve lost a lot of weight, I’m always in pain, I haven’t had a period in about 8-9 months. I’m so scared. I have children and I saw it can cause cancer, infertility, heart and liver problems😭 I’ve been in my room crying for the last 20minutes praying. This going untreated for so long has me feeling like I’m ruined and it’s going to take me away from my babies. I found this site googling and I don’t know really what has me posting this besides wanting to hear from others that went a long time with symptoms but still didn’t know to quit gluten. I’m quitting today, I won’t touch gluten ever again and I’m making an appointment somewhere to get checked for everything that could be damaged. Is this an automatic sentence for cancer and heart/liver damage after all these symptoms and years? Is there still a good chance that quitting gluten and being proactive from here on out that I’ll be okay? That I could still heal myself and possibly have more children? Has anyone had it left untreated for this amount of time and not had cancer, heart, fertility issues or liver problems that couldn’t be fixed? I’m sure I sound insane but my anxiety is through the roof. I don’t wanna die 😭 I don’t want something taking me from my babies. I’d gladly take anyone’s advice or hear your story of how long you had it before being diagnosed and if you’re still okay? 
    • trents
      Genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out and also to establish the potential to develop celiac disease. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop it. To develop celiac disease when you have the genetic potential also requires some kind of trigger to turn the latent genes "on", as it were. The trigger can be a lot of things and is the big mystery component of the celiac disease puzzle at this point in time with regard to the state of our knowledge.  Your IGA serum score would seem to indicate you are not IGA deficient and your tTG-IGA score looks to be in the normal range but in the future please include the reference ranges for negative vs. positive because different labs used different reference ranges. There is no industry standard.
    • Scott Adams
      Since nearly 40% of the population have the genes for celiac disease, but only ~1% end up getting it, a genetic test will only tell you that it is possible that you could one day get celiac disease, it would not be able to tell whether you currently have it or not.
    • KDeL
      so much to it.  the genetic testing will help if i don’t have it right? If theres no gene found then I definitely don’t have celiac?  I guess genetic testing, plus ruling out h.pylori, plus gluten challenge will be a good way to confirm yes or no for celiac. 
×
×
  • Create New...