Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Marian mcdermott


Marian mcdermott

Recommended Posts

Marian mcdermott Newbie

My 8 yr old granddaughter was just diagnosed sunday as type 1 diabetic n about 4 days later was dignosed with CELIAC... My daughter n i do NOT knw where to turn to get extened help for her..its hard trying to get the proper food she needs...we being told there is NO extra food stamps that she can get to her with the proper foods...ANY SUGGESTIONS AND /HELP WOULD BE GREATLY APPRECIATED...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
37 minutes ago, Marian mcdermott said:

My 8 yr old granddaughter was just diagnosed sunday as type 1 diabetic n about 4 days later was dignosed with CELIAC... My daughter n i do NOT knw where to turn to get extened help for her..its hard trying to get the proper food she needs...we being told there is NO extra food stamps that she can get to her with the proper foods...ANY SUGGESTIONS AND /HELP WOULD BE GREATLY APPRECIATED...

Just feed her plain unprocessed foods.  Cookies , pizza and chicken nuggets aren't that good for her.  Try meats, fruits, veggies, etc.  A dietitian might be helpful as you are also dealing with diabetes. 

cyclinglady Grand Master

Here Are two lists of gluten free foods:

Open Original Shared Link

Open Original Shared Link

Eating gluten free need not be expensive if you avoid gluten free processed foods.  Read our Newbie 101 thread located at the top of our “Coping” section of the forum for some valuable tips.  Go to the library to get books about celiac disease and Type 1 diabetes or read celiac websites from celiac non-profits or celiac centers like the University of Chicago.  Consider testing other family members as celiac disease runs in families.  

Do not worry, before you know it, your family will be used to dealing with TD1 and celiac disease.  Your granddaughter will feel much better soon.  

Ennis-TX Grand Master

Whole foods are simple...I know with blood sugar issues that the cheap stuff like rice, poatoes, fruits all have to be eating in moderation. Try going with low glycemic stews and homemade soups in crock pots, you can use disposable liners to prevent contamination if you can not afford a new crockpot. Try going with stuff like omelettes, scrambles, baked chicken (again you can cook it in a foil lined dish so you do not need to get new cook ware), gluten free labeled turkey bacon and bacon, steamed veggies (get what ever you can get on sale) I go with canned spinach in omelettes often as it is cheap, If you can not afford all new pans etc. that you need to keep her from getting sick with gluten contaminated cook ware I suggest Nordicware microwave cookware, cheap and you can get hte steamers, grill plates, omelette makers that way.
Helpful links for learning the ropes and finding some brands of safe foods. PS as a diabetic she is going to want to stay away from gluten free processed foods for the most art as most are loaded with starches, sugars, carbs, whole foods lower carb options......they do make low carb, gluten free breads, baked goods etc....I run a bakery and do these myself but they are insane in prices, so whole food again.
https://www.celiac.com/forums/topic/91878-newbie-info-101/
https://www.celiac.com/forums/topic/120402-gluten-free-food-alternative-list-2018-q1/

 

Marian mcdermott Newbie

Thank you all so much for the response and the support

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,984
    • Most Online (within 30 mins)
      7,748

    henrygreen
    Newest Member
    henrygreen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Okay, it does make sense to continue the gluten challenge as long as you are already in the middle of it. But what will change if you rule it out? I mean, you have concluded that whatever label you want to give the condition, many of your symptoms improved when you went gluten free. Am I correct in that? According to how I understand your posting, the only symptom that hasn't responded to gluten free eating is the bone demineralization. Did I misunderstand? And if you do test positive, what will you do different than you are doing now? You have already been doing for years the main thing you should be doing and that is eating gluten free. Concerning how long you should stay on the gluten challenge, how many weeks are you into it already?
    • WildFlower1
      I mean that I will be re-taking the celiac blood test again while I am currently on the gluten challenge right now, but not sure how many weeks more to keep going, to ensure a false negative does not happen. Thank you.
    • WildFlower1
      Thank you for your help, I am currently in the middle of the gluten challenge. A bit over 6 weeks in. At 4 weeks I got the celiac blood tests and that is when they were negative. So to rule out the false negative, since I’m in the middle of the gluten challenge right now and will never do this again, I wanted to continue consuming gluten to the point to make sure the blood tests are not a false negative - which I did not receive a firm answer for how many weeks total.    My issue is, with these blood tests the doctors say “you are not celiac” and rule it out completely as a potential cause of my issues, when the symptoms scream of it. I want to rule out this 30 year mystery for my own health since I’m in the middle of it right now. Thank you!
    • trents
      I am a male and had developed osteopenia by age 50 which is when I finally got dx with celiac disease. I am sure I had it for at least 13 years before that because it was then I developed idiopathic elevated liver enzymes. I now have a little scoliosis and pronounced kyphosis (upper spine curvature).  All of your symptoms scream of celiac disease, even if the testing you have had done does not. You may be an atypical celiac, meaning the disease is not manifesting itself in your gut but is attacking other body systems. There is such a thing as sero negative celiac disease. But you still have not given me a satisfactory answer to my question of why do you need a differential dx between celiac disease and NCGS when either one would call for complete abstinence from gluten, which you have already been practicing except for short periods when you were undergoing a gluten challenge. Why do you want to put a toxic substance into your body for weeks when, even if it did produce a positive test result for celiac disease, neither you or your doctors would do anything different? Regardless of what doctors are recommending to you, it is your body it is affecting not theirs and they don't seem to have given you any good justification for starting another gluten challenge. Where you live, are doctors kings or something?
    • WildFlower1
      Sorry to put it clearly, at 15, infertility started (tried to word it nicely) meaning menstruation stopped. Which is in correlation to celiac I mean. Thank you. 
×
×
  • Create New...