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I am gluten free extremely sensitive and celiac

Sarabeth1111

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Sarabeth1111 Newbie
Sarabeth1111
Posted

Hello everyone,  please help me. I have recently became celiac and extreme gluten free. I have changed everything because of the misery of rashes and how horrible I have been feeling.  Read an article about using free and clear laundry detergent and I wasn't breaking out in bumps everywhere. However I cleaned my comforter using tide and have been up all night itching like crazy!! How do I deal with this if I ever want to travel??? ? Thanks for the help

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kareng Grand Master
kareng
Posted
1 hour ago, Sarabeth1111 said:

Hello everyone,  please help me. I have recently became celiac and extreme gluten free. I have changed everything because of the misery of rashes and how horrible I have been feeling.  Read an article about using free and clear laundry detergent and I wasn't breaking out in bumps everywhere. However I cleaned my comforter using tide and have been up all night itching like crazy!! How do I deal with this if I ever want to travel??? ? Thanks for the help

 

1 hour ago, Sarabeth1111 said:

Hello everyone,  please help me. I have recently became celiac and extreme gluten free. I have changed everything because of the misery of rashes and how horrible I have been feeling.  Read an article about using free and clear laundry detergent and I wasn't breaking out in bumps everywhere. However I cleaned my comforter using tide and have been up all night itching like crazy!! How do I deal with this if I ever want to travel??? ? Thanks for the help

While this is NOT a gluten/Celiac issue, it happens to my son ( who is not Celiac or gluten sensitive). When he travels, he sleeps in a long sleeve t shirt, sweat pants, socks and either brings a pillow case from home or puts a t shirt over the pillow.  Not every hotel or friends house have sheets that make him itch, but it is best to be prepared.  

cyclinglady Grand Master
cyclinglady
Posted

Use a double rinse always on your wash cycle.   That and gentle detergent  (think Baby Dreft or one developed for allergies).    Use less than half of what the manufacturer recommends.  (It often is ploy to get you to use more detergent, in my opinion.)

Newer washers use less water.  Boo!  You might even need a third rinse on one of the water-saving machines.  You can test just throw in some clean towels without detergent and you can often the residue of soap bubbling up.  That extra rinse really helps!  

And Karen is right that is is not a celiac-related issue.  Many people have allergic-type reactions to detergents.  But I can imagine your reaction is worse when you are already struggling with DH.  

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    • trents
      dermatitis herpetiformis with all grains

      By trents · Posted

      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      dermatitis herpetiformis with all grains

      By Richardo · Posted

      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
    • trents
      dermatitis herpetiformis with all grains

      By trents · Posted

      Welcome to the forum, @Richardo! We sometimes run across terms like "rice gluten", "corn gluten", and "oat gluten" but they are used informally and, technically, it is incorrect to speak of grains other than wheat, barley and rye as having gluten. Gluten is a protein with a specific structure found only in wheat, barley and rye. Other cereal grains contain proteins that are more or less similar in structure to gluten in some ways but are not actually gluten. Having said that, the proteins found in these other cereal grains are similar enough to gluten to possibly cause cross reactivity in some celiacs. Cross reactivity also happens with non cereal grain foods as well that have a protein structure similar to gluten. A prime example is dairy (the protein "casein"). Another example may be soy. Other foods can also cause cross reactivity for different reasons, such as microbial transglutaminase (aka, "meat glue") used commonly in pressed meat products. Just so you'll know, Dr. Osborne's claims have not received wide acceptance in the celiac community and are looked upon with skepticism by the medical and scientific community. Although he is a board certified nutritionist, his doctorates are actually in chiropractic medicine and pastoral science: https://www.drpeterosborne.com/about/dr-peter-osborne/ I am not sure Osborne has the training and background to address the chemical structure that defines gluten. I would encourage you to do some research on what gluten actually is. I have done this for myself and came away convinced that only wheat, barely and rye actually contain the protein gluten. I do not doubt your claims that you have breakouts of dermatitis herpetiformis from consuming these other grains. I am just contending it is not actually from gluten.
    • Richardo
      dermatitis herpetiformis with all grains

      By Richardo · Posted

      I was diagnosed celiac about 15 years ago and followed the usual diet restriction on Wheat, barley and rye and did very well on those restrictions with no problems with dermatitis herpetiformis. 4 years ago I started getting bad rashes on my knees and calves, buttocks, around my waist and my elbows and forearms and hands. It seemed to last about 11/2 to 2 months then clear up for a month and come back  again. I never changed anything in my diet and a dermatologist told me I  must getting  cross contamination, which I knew I wasn't.  Finally after struggling with it all that time, I watched a video by Dr Osborne who sited a study done in England showing that ALL grains (rice, corn etc) contain gluten. I went on a totally grain free diet and have now been 100 percent free of dermatitis herpetiformis for over a year. I tried a test and ate corn flour and it started to come back so I'm off all grains again. Long story I know, but my question is, why is practically EVERY celiac site private or Govt only mentioning the BIG 3 and never mentions other grains as a possible means of contamination? I am free  from a horribly uncomfortable condition now and I know there are others who would be encouraged by this.
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