Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weird recovery symptoms?

SheenaM

Recommended Posts

SheenaM Apprentice
SheenaM
Posted

So I was just diagnosed as "probably" celiac a couple weeks ago at age 30. The probably is because the presentation of my signs and symptoms is a little strange. I have been on a gluten free diet for about 2-3 weeks. I have always had what we thought was chronic eczema which has been getting steadily worse for the last 5 years or so, and it no longer seems to be responding to steroid creams. Suddenly now after starting the gluten-free diet, my feet are itching enough to drive me crazy and have the lowest profile most barely noticible bumps ever. My question is, has anyone had "mild" DH that could be misdiagnosed as eczema? If so, how long did it take to go away after you started the diet? Also, for anyone else diagnosed as an adult, how long did it take before you started seeing real results? I feel like my body is almost going through a weird withdrawal phase. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


notme Experienced
notme
Posted

i had 'withdrawal' symptoms when i first started strictly gluten free.  i drank lots of water, took hot showers and rest, rest rest.   can you take benedryl until your itch clears up?  i still avoid iodine (bc if it's dh, iodine can aggravate it) so, lay off the fish and switch to uniodized salt for awhile, maybe that will help. 

where's squirmy?  she always has the best dh suggestions :) 

welcome to the forum and i hope you get relief soon!

SheenaM Apprentice
SheenaM
Posted
  • Author

Hey Thanks! I did more research and found the iodine thing. I had actually switched to more fruit as a healthy alternative to gluten based snacks and I am one of those people that uses salt on grapefruit >.<  I also just found out that at least one of my meds has wheat in it so I haven't actually been as good as I thought on the diet. Theres a lot of learning to do when you first start. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,407
    • Most Online (within 30 mins)
      7,748
    Hope842
    Newest Member
    Hope842
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • ChrisSeth
      Waiting on Blood test results…

      By ChrisSeth · Posted

      Okay thanks Scott. So based on my results will they order more tests to be done? Kind of confused.
    • Scott Adams
      Waiting on Blood test results…

      By Scott Adams · Posted

      Yes, this sounds right. Let us know when you find out your results.
    • ChrisSeth
      Waiting on Blood test results…

      By ChrisSeth · Posted

      Hi thanks for your response! This is the only other info that’s on my test results for the IgA. The initial testing performed in the Celiac Disease Reflex Panel is the total IgA. If the total IgA is <10 mg/dL, the reflex tests that will be ordered are the Tissue Transglutaminase IgG Antibody and the Deamidated Gliadin Peptide IgG Antibody. If the total IgA is >=10 mg/dL, the reflex test that will be ordered is the Tissue Transglutaminase IgA Antibody. Does that give some insight?  following up with my Dr early next week… thanks again.  And I didn’t eat more gluten than usual during the last 6-8 weeks on purpose. Just a normal diet prior to testing. I had gluten everyday for 6-8 weeks though I’m sure.
    • Scott Adams
      Celiac, Fructose and Lactose

      By Scott Adams · Posted

      Have you tried sheep's milk and goat's milk cheeses? After my diagnosis I could not tolerate cow's milk for ~2 years until my villi healed, but for some reason I did not have issues with sheep milk or goat milk cheeses.  I also had temporary issues with chicken eggs, but could eat duck eggs.
    • Scott Adams
      Waiting on Blood test results…

      By Scott Adams · Posted

      This is not a test for celiac disease, but your total IgA levels. This test is usually done with other celiac disease blood tests to make sure the results are accurate. Did they do a tTg-IgA test as well? Were you eating lots of gluten in the 6-8 weeks leading up to your blood tests? This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...