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Feeling confused about the problem

kimkelb89

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kimkelb89 Newbie
kimkelb89
Posted

Hello,

I'm hoping some of you can provide me with some insight here. I don't always react to gluten but I do enough of the time to give me pause.

Several years ago I had migraine headaches almost daily. I went on a diet for weight loss but it turned out that the migraines went away within 3 days. I looked at the ingredients of the diet products and the only thing I could figure was that all the products were gluten-free/almost gluten-free.

After being on the diet for a week and a half, I ate one slice of white bread. Half an hour later, I felt like someone took a sledgehammer to my head.

I went gluten free for 2 months. Tried to reintroduce it and it didn't work. Tried again after 2 months and for some reason, I didn't have a reaction again. And the migraines never returned.

Fast forward to now and I've been eating gluten since then. I had gastro issues on and off for years (gas, diarrhea, stomach pain, nausea) but they got much worse this past year. So I looked up the symptoms of gluten intolerance and celiac and I have all of them. The only one that didn't fit for celiac was that I've always been heavy, although I've read some people can still be heavy and have celiac.

Other symptoms I've had include stomach pain, fogginess, vomiting, constipation. I also have severe depression which I read can be linked to gluten either because of celiac or even IBS. I read that in studies they found that people with depression and IBS get better not eating gluten anymore, even if they don't have celiac. 

I went gluten free again for about 2 weeks. Two days ago, I ate a few mini donuts and couldn't eat all day after that. The pain in my stomach was horrible, just under my breasts. Yesterday, after eating half a frozen dinner that was a breaded product, I threw up twice and crawled into bed for several hours. My head was foggy and I felt like I was drugged. My limbs felt heavy. I had knee pain really bad. No injury there but the ligaments are tight and sore sometimes. Just never that bad before.

At lunch today, I ate three bites of a turkey sandwich. I almost threw up. I stopped eating it. For dinner, I ate cheesy bread from dominos. The only reaction was my knee started to hurt again but not nearly as bad as yesterday.

I see my doc for bloodwork in a few weeks and want to ask for the celiac test.

I ate gluten products 4 times over the last 2 week, once being today. Yesterday was the worst reaction. I was trying to narrow it down and everything that has caused a bad reaction has gluten. I've been eating dairy, eggs, and nuts but subtracted just gluten and had no problems. When I reintroduce bread products and stuff with gluten, I feel awful. But it doesn't happen every time.

It seems that when I reintroduce gluten it gets bad for a day or so. Then the symptoms ease up and I feel "normal." But I know that continuing to eat stuff with gluten in it will bring back the problems in the long term. Am I right in thinking that my body is literally trying to readjust from my abstinence from it and that's why I didn't react with dinner? Could it be something else that I'm eating that's the problem but am eliminating it and not realizing it when I go gluten free?

I know you guys aren't doctors. But tbh, I don't always trust doctors. Doctors have screwed me over in the past. I had a back condition that took over 2 years to treat due to several misdiagnoses and one doc almost killed me with a medicine interaction that she had every reason to catch. So I want to go into the doc appointment with as much info as possible. Thanks for taking the time to read all this. Sorry it's so longwinded but I don't really know anyone who can help.

 


 
 
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Bellelovegood416 Newbie
Bellelovegood416
Posted

I would definitely get tested but, for the test to come back right you have to be eating gluten for 12 weeks sometimes longer. Its called the gluten challenge. So sorry for what you have been dealing with I get it. 

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