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Symptoms of celiac or something else?


Platinum

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Platinum Rookie

I'm still trying to figure out this whole "celiac" thing... Since going gluten free parts have gotten better. My appetite has returned (but with a vengeance) and I don't feel so nauseous and haven't had too many other issues digestion. But I've been feeling very fatigued all the time. I can never get enough rest but can never seem to actually relax either. I've had horrible headaches and migraines since starting gluten-free diet. And I've noticed I have souch more pain through out my entire body. My joints feel like they are on fire and my muscles ache constantly. I feel bruised from head to toe. I've had terrible brain fog and can't seem to concentrate on the smallest tasks. Is this normal for everyone? 


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Posterboy Mentor

Platinum,

Magnesium can help your chronic fatigue.

Here is the National Institute of Health's Fact sheet on Magnesium.

Open Original Shared Link

find a Magnesium Citrate or Magnesium Glycinate and your body will think you with increased energy, muscle cramps that disappear as if by by magic and vivid dreaming will replace your fatigue.

quoting from the NIH.

Groups at Risk of Magnesium Inadequacy

"Magnesium inadequacy can occur when intakes fall below the RDA but are above the amount required to prevent overt deficiency. The following groups are more likely than others to be at risk of magnesium inadequacy because they typically consume insufficient amounts or they have medical conditions (or take medications) that reduce magnesium absorption from the gut or increase losses from the body.

People with gastrointestinal diseases

The chronic diarrhea and fat malabsorption resulting from Crohn’s disease, gluten-sensitive enteropathy (celiac disease), and regional enteritis can lead to magnesium depletion over time [Open Original Shared Link]. Resection or bypass of the small intestine, especially the ileum, typically leads to malabsorption and magnesium loss [Open Original Shared Link]."

 It is estimated almost 75% of us are low in it and we don't know it.

we are said to wast away without enough Magnesium. 

Magnesium is needed for animals the way chlorophyll is needed by plants to make energy.

People who have low stomach acid can have trouble absorbing enough Magnesium from their food.

see this thread where some of these things are summarized.

you might also want to have your Vitamin D levels checked.  I was low in  Vitamin D when I received my NCGS/Celiac diagnosis.

I hope this is helpful.

****this is not medical advice I only know it helped me.

  2 Timothy 2:7 "Consider what I say; and the Lord give thee understanding in all things." this included.

Posterboy by the Grace of God,

trents Grand Master

How long have you been gluten free? There can be an adjustment period, sort of withdrawal, after going gluten-free. May we ask your relative age? All of the things you describe have been associated with Celiac disease but usually not all at the same time. Have you been tested for rheumatoid processes and fibromyalgia? 

Platinum Rookie
13 minutes ago, trents said:

How long have you been gluten free? There can be an adjustment period, sort of withdrawal, after going gluten-free. May we ask your relative age? All of the things you describe have been associated with Celiac disease but usually not all at the same time. Have you been tested for rheumatoid processes and fibromyalgia? 

I've been gluten free since December. I was diagnosed with Celiac's in January. I'm 24 and no I haven't yet. I planned on asking my doctor more about it my next visit. But thought maybe I could try to get some answers here first to make sure I'm not worrying for nothing. 

Ennis-TX Grand Master
2 hours ago, Platinum said:

I've been gluten free since December. I was diagnosed with Celiac's in January. I'm 24 and no I haven't yet. I planned on asking my doctor more about it my next visit. But thought maybe I could try to get some answers here first to make sure I'm not worrying for nothing. 

The whole cramps, fatigue, never feeling rested or being able to rest match with magnesium deficiency. Do you have daily bowel movements? Constipation, If yes then use Natural Vitality Calm start with small 1/4tsp dose and slowly up it to the full 2 tsp or you get loose stools then back it back down, dosing to tolerance, a scare and going by grams is useful. If you do not have constipation then use Doctors Best Magnesium the powder is a glycinate just take 1 scoop a day in the evenings you will find you relax and sleep much better and the aches will go away.
Both me and posterboy found our salvation from many issues in magnesium

You might also as mentioned want to get your vitamin D checked but other common issues are full B-vitamins, since they work together you need a complex, this can help with energy and fog. I use Liquid Health Stress & Energy and the Neurological Support from that company 1 tbsp each 3 times a day. Works wonders.

Lovebucket Newbie

Just a thought, after my diagnosis, I found that I had all of the symptoms you are having, along with my body simply being swollen all of the time. I went back for more testing and and allergist confirmed that I have allergies along with Celiacs. As soon as I cleared up my diet the symptoms went away.  This is what I did by the advice of my mother in law who is a nurse: I took a benedryl to see if things got a better for me. If it works for you it is more than likely you have some food allergies that need to be addressed.  As I started my gluten-free diet I found myself eating more dairy, corn, soy , oats than I have ever before, all of which effect me negatively, Milk being an actual allergy, the others are just very harsh on the gut.  

cyclinglady Grand Master
2 hours ago, Lovebucket said:

Just a thought, after my diagnosis, I found that I had all of the symptoms you are having, along with my body simply being swollen all of the time. I went back for more testing and and allergist confirmed that I have allergies along with Celiacs. As soon as I cleared up my diet the symptoms went away.  This is what I did by the advice of my mother in law who is a nurse: I took a benedryl to see if things got a better for me. If it works for you it is more than likely you have some food allergies that need to be addressed.  As I started my gluten-free diet I found myself eating more dairy, corn, soy , oats than I have ever before, all of which effect me negatively, Milk being an actual allergy, the others are just very harsh on the gut.  

Watch the Benedryl.  It crosses the blood brain barrier.  Consider a second generation antihistamine instead. 

Open Original Shared Link

New studies show it may cause dementia which is more concerning to me because I am old! ?


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cyclinglady Grand Master

I would not worry.  Give the gluten free diet a chance to work.  Be sure to get follow-up testing and care.  

Open Original Shared Link

While it is very possible to have more than one autoimmune issue, see if symptoms resolve on the diet.  It might be just celiac-related.   The diet has a very steep learning curve.  Most here take months or a year or so  to heal depending collateral damage.  

 

Lovebucket Newbie

Taking one Benedryl as a precursor is not a problem what so ever. I am well aware of this study and do not take it except for on occasion. I have a prescription for another medication should I accidentally eat something i'm allergic to.

Ennis-TX Grand Master

 

On 2/20/2018 at 10:57 AM, cyclinglady said:

Watch the Benedryl.  It crosses the blood brain barrier.  Consider a second generation antihistamine instead. 

Open Original Shared Link

New studies show it may cause dementia which is more concerning to me because I am old! ?

I found this recently in my search for something in case I have a bad reaction to something again, free of most crap including corn syrup, dyes, gluten, soy, etc. Has some stuff I would rather avoid but sure as hell beats the reactions to allergens. Think it would be safe? Open Original Shared Link

cyclinglady Grand Master
1 hour ago, Ennis_TX said:

 

I found this recently in my search for something in case I have a bad reaction to something again, free of most crap including corn syrup, dyes, gluten, soy, etc. Has some stuff I would rather avoid but sure as hell beats the reactions to allergens. Think it would be safe? Open Original Shared Link

I would suggest consulting with a pharmacist.  Pick a time when they are not so busy (e.g. Sunday afternoon at a hospital) and ask.  They have a huge resource catalog, plus they have years of education!  

 

cyclinglady Grand Master
4 hours ago, Lovebucket said:

Taking one Benedryl as a precursor is not a problem what so ever. I am well aware of this study and do not take it except for on occasion. I have a prescription for another medication should I accidentally eat something i'm allergic to.

Good to know.  Sometimes, I tend to respond not just to the poster, but to others who might read the thread.  Sorry!  

plumbago Experienced

Hello,

I have no idea what it could be, but I had joint pain at some point between 6 mos to two years after diagnosis with celiac disease. I got a battery of allergy tests (via blood) and nothing came back positive. Eventually the pain went away.

Maybe get some inflammation markers tested? That would be my only thought.

Since I've done a lot of reading recently about sugar and inflammation (Gary Taubes, Dr Lustig, Dr Terry Wahls), I tend to think of chronic conditions like celiac disease as just one manifestation, and as Dr Wahls says, at bottom it's all the same thing, be it thyroid, celiac disease, SLE, etc...More information than you are bargaining for, I realize.

Good luck.

Plumbago

plumbago Experienced
12 hours ago, cyclinglady said:

I would suggest consulting with a pharmacist.  Pick a time when they are not so busy (e.g. Sunday afternoon at a hospital) and ask.  They have a huge resource catalog, plus they have years of education!  

 

I love pharmacists!

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    • trents
      The forms that vitamin and mineral supplements come in can be important. Bioavailability (i.e., how well they are absorbed) is often sacrificed for the sake of cost and shelf life. The vitamin or mineral you are targeting is always chemically combined with other elements to make them into a dispensable form (such as a powder, liquid or a pill) and to give them some chemical stability for shelf life.
    • llisa
      Thank you so much! I will look for that.
    • trents
      @llisa, back then when you tried magnesium and it upset your tummy, I'm guessing you were using the most common form of magnesium found on store shelves, namely, magnesium oxide. It has a reputation for having a laxative effect. It is not very well absorbed and so draws a lot of water into the colon, just like the laxative known as milk of magnesia. I'm guessing if you would switch to the "glycinate" form of magnesium you would not have this problem. Magnesium glycinate is absorbed much better. If you can't find magnesium glycinate at your local stores, you can order gluten free brands of it off of Amazon.
    • llisa
      I've tried magnesium before. Twice in 2 years. It really upset my stomach. And that was before this celiac disease diagnosis. (Finally, after 2 years of trying to find out what was wrong with me.) I have no idea how sensitive I am. When my stomach was upset, I'd go to my comfort foods: cream of wheat, cheese and crackers, scrambled eggs and toast...so, making myself worse by trying to feel better.  Just got results of biopsy yesterday, so today is first day of trying no gluten and reading that it can be hiding in vitamins and meds. So, I welcome ALL advice and personal experiences. No advice is too basic. I know nothing. Thank you!
    • trents
      Have you considered also supplementing with magnesium and zinc? We usually recommend these two as well. D3, Calcium and Magnesium all important for bone and nerve health.
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