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Do i have celiacs disease or something else?


XaK

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XaK Newbie

Some of my history

First off I will go through a bit about me.  When I was born I had Tetralogy of Fallot with four operations done some valve patches and some overgrowth removal. in 1994. I was also diagnosed with Aspergers sense like 3 years old or less. I also was once diagnosed with asthma but grew out of it? 

Medication history

20 years fluvoxamine quit cold turkey once then got back on it again then taper off of it in that time frame of 2 weeks of 50 mg - former and this year

Then was told to take Zoloft started at 25 mg for a week then went to 50 mg for a week then tappered off at 20 mg this year

Ive also taken naproxen at the same time for headaches which i read on a website can cause upper gi bleeding which i know you shouldnt diagnose yourself 

 

Note 2 mods  i read celiac can cause bone problems. and all these i experience

 

Copied and pasted i just hand wrote on my about me from my profile 

About Me

Was born with a Broken heart had Tetralogy of Fallot several valve patches and overgrowth removal in 1994.

Was told I had asthma apparently I outgrew that

Was diagnosed with Aspergers Syndrome to young to even remember when

Was severely bullied from elementary - high school; Several times i fought the bullies back and got suspended. :) Yet they didn't...

Obese for as long as i can remember I can always lose weight but i always am fat can't seem to lose the fat itself ever. (Is it Celiacs?)

Sense September 2017 been feeling really bad

Unexplained rash on my upper arms non itchy red bumps and little bumps that rise a bit

Also have a screwed up hip somehow and i mean really screwed up hip causing tingling or is that the Celiac disease? 

Been to like 20 doctors sense september all say nothing is wrong even 2 ER visits. and many chiropractor visits to come and been to gastro

Always feel tingly especially in leg oh and my hip is screwed up and no one knows how i mean i used to leg press 500 lbs but no bone fractures or signs of bone cancer etc asked the chirpractor

Been having restroom problems GI doctor said nothing felt wrong and simply prescribed me probiotics which i have yet to buy as i went 2 days ago work full time and am busy.

My stomach makes growling noises like all the time.

My mom dad and sister have GERD and grandma have ibs my mom and sister have tonsil stones not sure if i have either of those though i feel like something is stuck in my throat 24 7. near the tonsil area. though recently i gargled salt water and it lessened.

Ive had like 6 + blood tests several CBC tests and and one Lymes disease test and all negative. Couple of times i had low blood pressure i do get anxious and worried though but thats understandable when going to doctors etc.

Also went to another GP recently been having ear pressure problems in my right ear and when i hold nose and breath i hear heatbeat also hear droning sound all day in that ear not tinnitus. ETD maybe? allergy related dont know. i know i used to get bad seasonal allergies.

I have to take a lot of poops sometimes i cant tell if its a poop or a fart sometimes i think its going to a poop and its just a fart or reversed dont worry i always make it on time.

i also get like neck throat or some type of convulsions where my ear fills up when pressure every now in than on right side GP said to take flucasatine to see if that helps but worried about its side effects which can cause hyper sensitvity which i already have and read it causes people to loose sense of taste and smell

all this started sense september though and i was on a vacation that did not go well with me even blacked out twice only for like 2 seconds though on a house boat trip in utah lake powell and was a monsoon in the dessert + 110 degrees like every day maybe bumps caused from that did feel like skin was boiling

Could all this be stress and anxiety related from this and caused PTSD i always keep saying ive felt bad sense this vacation i dont think i think about it though i did have a couple of nightmares about it google Monsoon in utah lakepowell several peoples houseboats flipped and lady lost her arm. 

Its either mostly stressed and anxiety related or Celiacs disease l6Z99un.webp

5WHh5my.webp


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Ennis-TX Grand Master

Growing up I was always bullied fellow asperger guy here, often describe myself as a mild sheldon cooper. Anyway The fat thing...yeah I had that til my 20s after I did some stupid stuff and my celiac changed symptoms and I just started loosing weight. I was always tired and to be any kind of active had to chug energy drinks in highschool. The leg tingling, burning sensation (does it seem to crawl and move across your back and arms leaving little red dots with the feeling your skin is on fire?) I found was related to magnesium deficiency and cleared up with supplementing in addition to the gluten free diet. Thing with the magnesium is you need to find the right form for you. If you have constipation then Magnesium Citrate Via Natural Vitality Calm small 1/4tsp (1-2grams) starting and up it 1/4 tsp at a time til full dose over a week and then adjust to tolerance (IE you get loose stools then back down) If you have loose stools already go with Doctors Best Magnesium Gylicinate and dose as they say. Gluten free and supplementing will resolve these.

To your main question do you have celiac.....maybe they have to do a blood test and a endoscope with biopsies to be sure. The disease has hundreds of symptoms and is a bit different with everyone. Keep eating gluten for now as you have to for the testing readup on what kind of blood test to ask for etc here Open Original Shared Link
 

Oh on a side note, us asppies have common issues with gluten and dairy anyway making our problems worse....always have it talked about at summits and seminars on autism you would probably benefit giving up both no matter what after the testing is done.

XaK Newbie
On 3/3/2018 at 9:39 AM, Ennis_TX said:

Growing up I was always bullied fellow asperger guy here, often describe myself as a mild sheldon cooper. Anyway The fat thing...yeah I had that til my 20s after I did some stupid stuff and my celiac changed symptoms and I just started loosing weight. I was always tired and to be any kind of active had to chug energy drinks in highschool. The leg tingling, burning sensation (does it seem to crawl and move across your back and arms leaving little red dots with the feeling your skin is on fire?) I found was related to magnesium deficiency and cleared up with supplementing in addition to the gluten free diet. Thing with the magnesium is you need to find the right form for you. If you have constipation then Magnesium Citrate Via Natural Vitality Calm small 1/4tsp (1-2grams) starting and up it 1/4 tsp at a time til full dose over a week and then adjust to tolerance (IE you get loose stools then back down) If you have loose stools already go with Doctors Best Magnesium Gylicinate and dose as they say. Gluten free and supplementing will resolve these.

To your main question do you have celiac.....maybe they have to do a blood test and a endoscope with biopsies to be sure. The disease has hundreds of symptoms and is a bit different with everyone. Keep eating gluten for now as you have to for the testing readup on what kind of blood test to ask for etc here Open Original Shared Link
 

Oh on a side note, us asppies have common issues with gluten and dairy anyway making our problems worse....always have it talked about at summits and seminars on autism you would probably benefit giving up both no matter what after the testing is done.

Hey thanks for responding sorry for late response work full time and been suffering i do feel like my skin is n fire and tingling all over i do have little red bumps do you have instant messengers like kik snapchat telegram would like to chat. especially as a fellow aspie.

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    • Scott Adams
      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
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    • trents
      I agree. Doesn't look like you have celiac disease. Your elevated DGP-IGG must be due to something else. And it was within normal at that after your gluten challenge so it is erratic and doesn't seem to be tied to gluten consumption.
    • Jack Common
      Hello! I want to share my situation. I had symptoms like some food intolerance, diarrhea, bloating, belching one year ago. I thought I could have celiac disease so I did the blood tests. The results were ambiguous for me so I saw the doctor and he said I needed to do tests to check whether I had any parasites as well. It turned out I had giardiasis. After treating it my symptoms didn't disappear immediately. And I decided to start a gluten free diet despite my doctor said I didn't have it. After some time symptoms disappeared but that time it wasn't unclear whether I'd had them because of eliminating gluten or that parasite. The symptoms for both are very similar. Giardiasis also damages the small intestine. The only way to check this was to start eating bread again as I thought. Now about my results.   These are my first test results (almost a year ago) when I had symptoms: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months. Symptoms disappeared. And I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   Nowadays I didn't have any symptoms except tiredness but I think it's just work. I think it was this parasite because two years ago, for example, and before I didn't have these symptoms and I always ate gluten food. But I'm still not sure especially because the Deamidated gliadin peptide IgG results are sometimes high. What do you think? @Scott Adams
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