Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diverticulitis or Celiac Flare


ktyler44

Recommended Posts

ktyler44 Contributor

I am so confused and don't know which way to turn now. This is rather lengthy, but please bear with me to get to my dilemma. Several years ago when I was having flares of stomach pain, my doctor originally thought maybe it was diverticulitis but no test was run at that time. I didn't think the symptoms matched up to that and took myself off gluten for awhile. All of my symptoms seemed to improve (I had other symptoms)  but without a diagnosis, I wasn't sure. So I asked the doctor about doing a blood test for Celiac. I was told to go back on gluten for the test but I was only back on it for a week or two when he did the test. Of course it came back negative. He had wanted me to have a screening colonoscopy anyway, so I asked him to do an endoscopy and biopsy at the same time. He did, but I found out afterwards that he only took one specimen and checked for H. pylori, not Celiac. The colonoscopy did show a couple of diverticula. So I took myself back off gluten but cheated from time to time. Then I would hurt, so I finally stayed off gluten. I got better over time and even have stopped having migraines. I changed doctors and my new doctor offered to test me, but I didn't want to go back on it for the test. We did do the gene test, which was positive. She made the diagnosis of Celiac based on that along with my symptoms and improvement by removing gluten. Here's why I'm confused. I recently thought I would like to do the challenge to get a definite diagnosis. I ate real bread and other things for 3 days in a row with no reaction. But then I got to thinking that maybe it was just because I had healed and I was afraid of causing new damage. So I stopped the challenge. Now a couple of weeks later, I've had the same stomach pain I used to get but haven't knowingly had any gluten. So could my problem really have been diverticulitis all along rather than Celiac? Should I go ahead and do the gluten challenge to be sure? I don't currently have insurance but I could probably pay for a blood test, just not an endoscopy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

This is a bit of a personal choice, you have genes and react badly to it. Some people will have the reaction in hours some withing days...weeks might be pushing it if you did it then stopped but do not quote me. The Gluten Challenge for the blood test takes 12 weeks of eating gluten, not much maybe a 1/2 slice of bread, few crackers, or a tsp of vital wheat gluten a day, you can try it at night and sleeping it off. You have to build up the antibodies and let them go from the gut to the blood stream which can take UP to 12 weeks sometimes less and heard of others showing positive at 8 weeks. Open Original Shared Link

I have UC and Celaic, might be my double whammy and random reactions to forms and the amounts I eat and why my reactions change SO much each time.

ktyler44 Contributor

It's possible that I accidentally got glutened. We were traveling and ate out a couple of times, so that would have only been a couple of days which is pretty normal for me. But what really confused me is that I didn't react for those three days that I knowingly ate gluten but have reacted at other times when I have accidentally eaten gluten.

ravenwoodglass Mentor
  On 3/8/2018 at 2:40 AM, ktyler44 said:

It's possible that I accidentally got glutened. We were traveling and ate out a couple of times, so that would have only been a couple of days which is pretty normal for me. But what really confused me is that I didn't react for those three days that I knowingly ate gluten but have reacted at other times when I have accidentally eaten gluten.

Expand Quote  

Three days may not have beenlong enough to see a reaction. When I went through my doctor guided and prescribed elimination diet I had to add items back in for a week before I could consider them safe. He explained that it can take up to a week for an intolerance reaction to show up.  Even after diagnosis it takes 3 or 4 days for the GI reaction to show up in me after a glutening although other symptoms do appear more quickly (neuro related). I think that diverticuli can be associated with celiac, or at least they were in my case. A year before diagnosis I had a colonoscopy where the GI found 'the most extensive diverticuli he had ever seen'. He said the out pouching covered my entire large intestine where usually only a couple are found on the descending colon. Five years after I was finally diagnosed celiac a repeat scope found they were gone.  If you can tolerate a challenge you may want to do so for 2 to 3 months and then get tested. You don't have to eat a lot of gluten a serving a day should be enough.  Do be sure to let your doctor know if your reaction wakes you at night. That is a clear sign of celiac since according to my GI the 'IBS' diagnosis doesn't cause that to happen. Good luck with whatever you choose to do and if you do the challenge I hope you get clear answers. In the end though it is your reaction to cutting out gluten that matters the most.

ktyler44 Contributor
  On 3/8/2018 at 9:22 AM, ravenwoodglass said:

Three days may not have beenlong enough to see a reaction. When I went through my doctor guided and prescribed elimination diet I had to add items back in for a week before I could consider them safe. He explained that it can take up to a week for an intolerance reaction to show up.  Even after diagnosis it takes 3 or 4 days for the GI reaction to show up in me after a glutening although other symptoms do appear more quickly (neuro related).

Expand Quote  

What I don't understand, though, is that I never did react after those three days. Yet, other times when I've only eaten a little by accident, I'm in pain for days. Also, how can I tell the difference if this is a diverticulitis flare or celiac flare? I always assumed these were from gluten. Now I'm not sure.

ravenwoodglass Mentor
  On 3/8/2018 at 12:28 PM, ktyler44 said:

What I don't understand, though, is that I never did react after those three days. Yet, other times when I've only eaten a little by accident, I'm in pain for days. Also, how can I tell the difference if this is a diverticulitis flare or celiac flare? I always assumed these were from gluten. Now I'm not sure.

Expand Quote  

You should talk to your doctor to be sure but diverticulitis can be very serious and can require hospitalization and antibiotics.  Do you get any other reactions that you know for sure are gluten related? Some will get a headache, brain fog or mood issues that show up with a glutening that can help us tell the difference. Do you keep a food and symptom log? That can be helpful if seeing a pattern.  Since you had no symptoms after three days back on gluten maybe a challenge and testing might be wise so you can know for sure.

ktyler44 Contributor
  On 3/8/2018 at 1:51 PM, ravenwoodglass said:

You should talk to your doctor to be sure but diverticulitis can be very serious and can require hospitalization and antibiotics.  Do you get any other reactions that you know for sure are gluten related? 

Expand Quote  

I've never required antibiotics with these flares. It's digestive only with abdominal pain and constipation. It usually lasts 3-4 days and the pain is over the whole abdominal area.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
  On 3/8/2018 at 2:34 PM, ktyler44 said:

I've never required antibiotics with these flares. It's digestive only with abdominal pain and constipation. It usually lasts 3-4 days and the pain is over the whole abdominal area.

Expand Quote  

IMHO you are dealing with a glutening. Diverticulitis would leave you very ill and running a fever. Most with that end up in the ER or at their doctors office. You say you have eaten out a couple of times so chances are you were glutened. Hope you are feeling better by now but if not a trip to the GI may be in order.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Nikki03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Confused about test results.

    2. - Nikki03 replied to Nikki03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Confused about test results.

    3. - fritz2 replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      15

      Question

    4. - Scott Adams replied to MichelleGrant's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Months of diarrhea - Testing question

    5. - Scott Adams replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      15

      Question


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,775
    • Most Online (within 30 mins)
      7,748

    MaureenC
    Newest Member
    MaureenC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      There is also something called "seronegative celiac disease" in which there is damage to the villous lining of the small bowel but no celiac antibodies are produced by the immune system. It's not very common and there can be numerous causes including infections, some medications and even some nongluten foods.  If you have dermatitis herpetiformis, that is proof positive you have celiac disease sense there is no other known cause for it. If you get it biopsied during an outbreak it can be used to establish a diagnosis of celiac disease, therefore. But not every dermatologist knows how to biopsy dermatitis herpetiformis correctly and it can be difficult to get an appointment with one on short...
    • Nikki03
      Ty very helpful I’m in the process of getting in with a new gI doctor and will ask more about all that then and yes the rash is exactly like that. I have a half cousin with celiac but that’s it in my whole family and idk if that matters as I see it is hereditary and others say the the only in the family with it. Either way this was very much appreciated ty again. 
    • fritz2
      My first post includes the blood test report done by the second doctor.  They told me to take two Naproxen tablets per day.  Absolutely worthless but I'm doing it.  I get to visit the doctor again in two weeks.  These doctors are worthless.  I had to clue them in to the fact that they used to treat me for fibromyalgia 15 years ago with vicodin until some political stooge had it removed from the market.  Then I found out about my grandchild with celiac so I removed gluten from my diet and got better.  (I had hashimoto's then and still do).  They don't read my medical record, or they don't comprehend it.  Either case they're worthless turds with no answers that are helpful.
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Scott Adams
      Have you been able to see a doctor or rheumatologist about this? Inflammation like that could point to something like celiac complications, an autoimmune response, or even reactive arthritis, and you deserve relief and answers. In the meantime, gentle heat/cold therapy or anti-inflammatory foods and over the counter meds might help a little, but I hope you can get proper medical support soon. 
×
×
  • Create New...