Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

symptoms with coffee

chrisgf

Recommended Posts

chrisgf Apprentice
chrisgf
Posted

hello.  its been a while since i posted, so i hope someone doesn't mind helping me.  i was diagnosed with celiac over 4 years ago.  i realized the past few times i had to take prednisone i barely got any symptoms and rashes.  however, the past two weeks i get very sick from coffee.  i can do a half of a cup, but more than that i am sick all day into the next with stomach pain.  is the coffee affecting my stomach like gluten and dairy by making it sick?  any help would be appreciated.

~christy

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
18 minutes ago, chrisgf said:

hello.  its been a while since i posted, so i hope someone doesn't mind helping me.  i was diagnosed with celiac over 4 years ago.  i realized the past few times i had to take prednisone i barely got any symptoms and rashes.  however, the past two weeks i get very sick from coffee.  i can do a half of a cup, but more than that i am sick all day into the next with stomach pain.  is the coffee affecting my stomach like gluten and dairy by making it sick?  any help would be appreciated.

~christy

Coffee has a lot of acid in it.  Could you be are having stomach issues with that?  

Coffee does not cause you to make Celiac antibodies that attack the intestines.  

Link to comment
Share on other sites
chrisgf Apprentice
chrisgf
  • Author
Posted

Thanks for getting back to me.  Well I stopped coffee and my stomach issues stopped...kinda stinks tho.  I was concerned about it attacking intestines...glad i know!  I am going through some forums because I still have some mild issues...but much better than years ago. :)

Link to comment
Share on other sites
kareng Grand Master
kareng
Posted
15 minutes ago, chrisgf said:

Thanks for getting back to me.  Well I stopped coffee and my stomach issues stopped...kinda stinks tho.  I was concerned about it attacking intestines...glad i know!  I am going through some forums because I still have some mild issues...but much better than years ago. :)

For me, I found that the effect of the coffee acid on my stomach kind of comes and goes.  I might have a few days it just hurts!  I use come creamer in it and that helps.  I can do dairy, but I really like the So Delicious vanilla creamer.  Maybe go a week or two and then try with creamer?  Or mix it with chocolate almond milk?

Link to comment
Share on other sites
chrisgf Apprentice
chrisgf
  • Author
Posted

my hubby said that the acid is probably the culprit.  I like the the silk dairy free creamer,,,but i am going to stay away from coffee and see what happens.  i don't like being in these DF and gluten-free diets...but i have no choice. 

 

Link to comment
Share on other sites
Ennis-TX Grand Master
Ennis-TX
Posted

Yeah we had a huge debate while back about the safety of coffee, most are safe, only exception is coffee from bulk bins in stores like whole foods or flavored artisan blends sometimes come into contact with contaminated scoops, ingredients, or in the VERY rare case they might use barley malt or roasted barley in a few flavor options. Name brands are normally safe, I contact a whole list of companies and did find that many companies that do "Specialty" flavored coffee do have gluten contamination issues NOTE these are smaller special order ones.  I also found one that is gluten free and the main rep has gluten issues and celiac in her family. If you want to try again Christopher Bean Coffee has some wonderful dessert flavored coffee that I get often.

Then again it could be as kareng says and just a acid issue and it irritating your damaged gut and intestine. But do not fret you should be able to have some once it heals. Decaffinated for now might be easier on your stomach and there is the brewed cocoa alternative from Crio Bru.

Link to comment
Share on other sites
cyclinglady Grand Master
cyclinglady
Posted

My grandmother always told me never to have tea or coffee on an empty stomach.  She said a few crackers, toast or cookies served with tea helped to avoid an “bilious” stomach.  She was a nurse.  Sometimes old advice still holds true.  ?

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chrisgf Apprentice
chrisgf
  • Author
Posted

thank you guys for the information.  i have heard that coffee can never be 100% gluten-free...but i think more and more that it may be acid.  

thanks for all your help

Link to comment
Share on other sites
Celiac comments Newbie
Celiac comments
Posted

A lot of celiac sufferers have restless legs. Coffee and especially diet soda greatly worsen my RLS. 

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to hilly's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Extreme bloating even gluten-free

      Some studies, with admittedly small sample sizes, show that about 50% of celiacs react to the protein casein in dairy the same way they do gluten. Can't find the NIH article I'm looking for but this one basically makes the point:
    2. hilly
      - hilly posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Extreme bloating even gluten-free

      I was diagnosed in April. I have been very careful about being gluten-free, except for one accident in August where I ate candy with wheat. Despite being careful, I still experience extreme painful bloating almost daily. I'm so frustrated. I stopped eating gluten-free oats because I wondered if that was it. Now I am wondering if is dairy. I'm already tired...
    3. Scott Adams
      - Scott Adams replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Shaking/Tremors and Off Balance

      In general I'm all for a formal diagnosis, except in cases where someone gets very sick when they eat gluten, and have already been on a gluten-free diet for a long time and don't plan to eat it again anyway. There seems to be more drawbacks that keep popping up with being formally diagnosed--at least here in the USA. I can testify that it's definitely...
    4. cristiana
      - cristiana replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Shaking/Tremors and Off Balance

      Just to add something here... if any people in the UK are reading this, there can be definite advantages if you are formally diagnosed coeliac, in terms of getting extra support from the NHS. For free you get to see a nutritionist, additional vaccinations if deemed necessary, in some areas prescriptions for gluten free food; bone density scans, annual blood...
    5. Ginger38
      - Ginger38 replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Shaking/Tremors and Off Balance

      Yes I figured out I couldn’t have gluten years ago when I was symptomatic and tested positive, but was misinformed and told I couldn’t have celiac but to go gluten free. I was already gluten free. I was never willing to go back on gluten and make myself so sick to have the biopsy especially when the biopsy isn’t 💯. But Now I have to have a procedure anyway a...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      124,666
    • Most Online (within 30 mins)
      7,748
    Jteach
    Newest Member
    Jteach
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Extreme bloating even gluten-free

      By trents · Posted

      Some studies, with admittedly small sample sizes, show that about 50% of celiacs react to the protein casein in dairy the same way they do gluten. Can't find the NIH article I'm looking for but this one basically makes the point:   
    • hilly
      Extreme bloating even gluten-free

      By hilly · Posted

      I was diagnosed in April. I have been very careful about being gluten-free, except for one accident in August where I ate candy with wheat. Despite being careful, I still experience extreme painful bloating almost daily. I'm so frustrated. I stopped eating gluten-free oats because I wondered if that was it. Now I am wondering if is dairy. I'm already tired of constantly wondering if I messed up.
    • Scott Adams
      Shaking/Tremors and Off Balance

      By Scott Adams · Posted

      In general I'm all for a formal diagnosis, except in cases where someone gets very sick when they eat gluten, and have already been on a gluten-free diet for a long time and don't plan to eat it again anyway. There seems to be more drawbacks that keep popping up with being formally diagnosed--at least here in the USA. I can testify that it's definitely harder to obtain life insurance, and if you can get it the premiums are quite a bit higher than if I did not have it, at least from my fairly recent experience when getting a new policy.  @Ginger38 you're very close to the end of your challenge, so let us know how it turns out.
    • cristiana
      Shaking/Tremors and Off Balance

      By cristiana · Posted

      Just to add something here... if any people in the UK are reading this, there can be definite advantages if you are formally diagnosed coeliac,  in terms of getting extra support from the NHS.  For free you get to see a nutritionist, additional vaccinations if deemed necessary, in some areas prescriptions for gluten free food; bone density scans, annual blood tests and reviews with a gastroenterologist, plus it has been my experience I've been able to see a gastroenterologist without a GP's re-referral when I've had complications.  That said, I don't know what impact there would be on health insurance; but I have found that when it comes to travel insurance I have had to declare it but it hasn't made any difference to the premium. However, I realise things can be very different in other parts of the world, and I am not sure where you are from, @Ginger38  
    • Ginger38
      Shaking/Tremors and Off Balance

      By Ginger38 · Posted

      Yes I figured out I couldn’t have gluten years ago when I was symptomatic and tested positive, but was misinformed and told I couldn’t have celiac but to go gluten free. I was already gluten free. I was never willing to go back on gluten and make myself so sick to have the biopsy especially when the biopsy isn’t 💯. But Now I have to have a procedure anyway and he told me he was doing the biopsy either way .. but I should consider the gluten challenge since I have never had the biopsy. He acted like it was super important to have this on paper.  I had no idea there were any possible negative drawbacks to having a formal diagnosis 🤦🏼‍♀️
×
×
  • Create New...