Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

symptoms with coffee


chrisgf

Recommended Posts

chrisgf Apprentice

hello.  its been a while since i posted, so i hope someone doesn't mind helping me.  i was diagnosed with celiac over 4 years ago.  i realized the past few times i had to take prednisone i barely got any symptoms and rashes.  however, the past two weeks i get very sick from coffee.  i can do a half of a cup, but more than that i am sick all day into the next with stomach pain.  is the coffee affecting my stomach like gluten and dairy by making it sick?  any help would be appreciated.

~christy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
18 minutes ago, chrisgf said:

hello.  its been a while since i posted, so i hope someone doesn't mind helping me.  i was diagnosed with celiac over 4 years ago.  i realized the past few times i had to take prednisone i barely got any symptoms and rashes.  however, the past two weeks i get very sick from coffee.  i can do a half of a cup, but more than that i am sick all day into the next with stomach pain.  is the coffee affecting my stomach like gluten and dairy by making it sick?  any help would be appreciated.

~christy

Coffee has a lot of acid in it.  Could you be are having stomach issues with that?  

Coffee does not cause you to make Celiac antibodies that attack the intestines.  

chrisgf Apprentice

Thanks for getting back to me.  Well I stopped coffee and my stomach issues stopped...kinda stinks tho.  I was concerned about it attacking intestines...glad i know!  I am going through some forums because I still have some mild issues...but much better than years ago. :)

kareng Grand Master
15 minutes ago, chrisgf said:

Thanks for getting back to me.  Well I stopped coffee and my stomach issues stopped...kinda stinks tho.  I was concerned about it attacking intestines...glad i know!  I am going through some forums because I still have some mild issues...but much better than years ago. :)

For me, I found that the effect of the coffee acid on my stomach kind of comes and goes.  I might have a few days it just hurts!  I use come creamer in it and that helps.  I can do dairy, but I really like the So Delicious vanilla creamer.  Maybe go a week or two and then try with creamer?  Or mix it with chocolate almond milk?

chrisgf Apprentice

my hubby said that the acid is probably the culprit.  I like the the silk dairy free creamer,,,but i am going to stay away from coffee and see what happens.  i don't like being in these DF and gluten-free diets...but i have no choice. 

 

Ennis-TX Grand Master

Yeah we had a huge debate while back about the safety of coffee, most are safe, only exception is coffee from bulk bins in stores like whole foods or flavored artisan blends sometimes come into contact with contaminated scoops, ingredients, or in the VERY rare case they might use barley malt or roasted barley in a few flavor options. Name brands are normally safe, I contact a whole list of companies and did find that many companies that do "Specialty" flavored coffee do have gluten contamination issues NOTE these are smaller special order ones.  I also found one that is gluten free and the main rep has gluten issues and celiac in her family. If you want to try again Christopher Bean Coffee has some wonderful dessert flavored coffee that I get often.

Then again it could be as kareng says and just a acid issue and it irritating your damaged gut and intestine. But do not fret you should be able to have some once it heals. Decaffinated for now might be easier on your stomach and there is the brewed cocoa alternative from Crio Bru.

cyclinglady Grand Master

My grandmother always told me never to have tea or coffee on an empty stomach.  She said a few crackers, toast or cookies served with tea helped to avoid an “bilious” stomach.  She was a nurse.  Sometimes old advice still holds true.  ?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chrisgf Apprentice

thank you guys for the information.  i have heard that coffee can never be 100% gluten-free...but i think more and more that it may be acid.  

thanks for all your help

Celiac comments Rookie

A lot of celiac sufferers have restless legs. Coffee and especially diet soda greatly worsen my RLS. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,733
    • Most Online (within 30 mins)
      7,748

    Debbeighe
    Newest Member
    Debbeighe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      You are most welcome, Marie.  Thank you for getting in touch, because this sort of post will be seen by other parents who find themselves in this position, I am sure there are many.   And as I say, in the long run, I am sure your daughter will be sorry for what she said.  I remember having a go at my dear Mum when I was in my twenties about something and then apologising, saying, "I don't know how you put up with me."  I can't remember her exact words but it was something along the lines of, "I used to say things like to my Mum.  Now it's my turn [to be on the receiving end]!"    😂  Although it isn't very nice to be on the receiving end, it is good your daughter feels safe to say these things to you. We look forward to hearing from you again in due course.  
    • Wheatwacked
      Are You Confused About Your Celiac Disease Lab Results? Some people test negative but have a positive biopsy, others test positive but negative biopsy.  This is why it can take years and misdiagnosis of other diseases that Celiac Disease can mimic. The above link is a good read with real life examples. Something I find interesting is that in 1980 or so a new diagnosis was created, Non Celiac Gluten Sensitivity, only 10 years after Norman Borlaug won the Nobel Peace Prize for creating our modern wheat and the Green Revolution.    
    • trents
      @Steve-n-Portland, there is a difference in the requirements to use the label "Gluten Free" and the label "Certified Gluten Free". "Gluten Free" is governed by FDA regulations and has a ceiling of 20 ppm. "Certified Gluten Free" is a labeling convention used by the GFCO, an independent international third party certifying group that uses 10 ppm as its standard.
    • trents
      We have had numerous reports from forum participants experiencing gluten reactions from Trader Joe "gluten-free" products. It seems it's not a good place for the celiac/gluten sensitive community to shop.
    • Steve-n-Portland
      Also, a class action lawsuit was launched in 2024 against Trader Joe's re: their " gluten free" everything bagels. They tested at 269ppm. (Personally, I am not sure they will win. The FDA says that the *ingredients* have to be less than 20ppm for a company to label something "gluten-free."  In order to be certified as gluten-free by the GFCO, the *final product* needs to be less than 20ppm. That said, the lawsuit is arguing that most people read that label and assume the final product is safe for people with celiac. Thus, many people were made sick. And being sick can have costly consequences in regard to work or school, depending when one becomes ill.)
×
×
  • Create New...