Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No gluten but still diahorrea


Donna1970

Recommended Posts

Donna1970 Rookie

Sorry about the title, I never have a clue what to put.

ive not been diagnosed officially just tentatively by my GP so this may be irrelevant. I have not had any gluten for over a week now, that I'm aware of. in fact other than a cheese sandwich (I think it was Friday) with gluten free bread which affected me badly , I ate out Sunday and had a roast dinner totally gluten free -the staff double checked the list for me and promised no cross contamination they are  nationwide company so I trust them. I had a few pink gins and lemonade :) I was a bit bloated and uncomfortable but other than that fine. I havnt eaten anything since only drank coffee and until this morning havnt taken any Imodium since Saturday which usually helps a bit with the diahorrea,but the early hours of this morning (Wednesday in the uk) I've started with cramps , bloating,a little nausea and really bad diahorrea again. Assuming it is celiac disease or some sort of allergy would this be normal?

not sure if it's relevant but I don't usually eat daily so I don't think that would make a difference.

sorry if it's a stupid question,everything's up in the air atm and I'm totally clueless about it all.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jmg Mentor

Hi Donna,

Just on this point:

1 hour ago, Donna1970 said:

ive not been diagnosed officially just tentatively by my GP so this may be irrelevant. I have not had any gluten for over a week now, that I'm aware of. 

The same advice from your other thread still holds: 

 You are going gluten free before you have testing, this isn't correct and it's going to make it much more difficult and potentially painful for you should you pursue a diagnosis later down the road. Consider an appt at your local surgery with another doctor to clarify just how coeliac diagnosis actually works :)

Ok back to your post! You mention a couple of things which suggest that coeliac/gluten isn't neccesarily to blame for your current discomfort:

1 hour ago, Donna1970 said:

I don't usually eat daily

Lot's of people do some fasting during the week but generally keeping to regular eating times can help you resolve some stomach issues.

1 hour ago, Donna1970 said:

I havnt eaten anything since only drank coffee

If your stomach is irritated coffee isn't the best thing you can give it!

Finally if gluten is a problem for you and you've just gone gluten free that can sometimes be a rough ride in itself. Your body may be geared up for a response to gluten then you remove it and it's still in fighting mode. That's all supposition however and I suggest that a visit to another doctor is the best advice I can give you.

Best of luck and I hope you feel better soon! 
Matt 

 

Ennis-TX Grand Master

First off you need to get tested for this disease and you have to be eating gluten daily to get tested. Simple blood test first followed by a endoscope which would catch many "Other" issues that might be causing this.
Open Original Shared Link
Now many of us with this disease can not handle dairy for awhile....lactose intolerance is common as the villi in our intestines that help with the enzymes to break it down are damaged. Second many of us develop other food intolerance issues and processed foods are best removed and gone to a whole foods only diet and keeping a food diary to keep track of what causes symptoms.
Eating out is russian roulette, major chain or not does not matter when residue or crumbs can set it off...oh the forgot to change gloves, they used the same knife, they used the same cutting board, they used the same serving utensils....all result in use with cealic being sick....
Alcohol should be be removed if you have intestinal issues....bit obvious sorry and you mixed it with a acidic food, a duratic sorta off sets it but still a bad idea with gut issues.
Coffee can be a bit harsh sometimes and will have a laxative effects....I love my joe but I have to go easy on it with flare ups.....
Oh and my last exposure left me with over 3 weeks of on and off D.....I was reglutening myself with a toothbrush for part of it lol.

  • 1 month later...
Chelsey Newbie

I agree with everyone above! But to just throw it out there, take a daily probiotic supplement to help with diarrhea. it restores good bacteria in the gut. Make sure its in pearl form bc that is the only kind that survives stomach acid. 

moleface Explorer

I actually have this same symptom, but I haven't been able  to find any definitive answers. I suspect multiple food sensitivity is a possibility, though I can't imagine what I could be reacting to. Either that or my gastro system has been so destroyed by a lifetime of heavy gluten exposure that I'm left with permanent symptoms even though I eat the same exact thing every day without much variation. A gastro doctor found ulcers and inflamed tissue in my duodenum and small intestine, even though I'd been gluten free for several years at that point, so I'm assuming that could cause these issues.

My telltale symptom of a glutening is constipation. I wake up to 4-6 hours of diarrhea every morning regardless of diet. I take 50 billion probiotics, experimented with high and low fiber diets, tried going off vitamin supplements (which can easily cause diarrhea, especially vitamin c and other antioxidants), etc. and nothing helps.

My original issue while eating gluten was hard incomplete stools. Ever since I went gluten free 7 years ago, my new symptom has been daily explosive diarrhea. Not to be graphic, but I literally have to shower after going because I spray it all over myself.

The only time it abates is if I accidentally eat gluten-containing food, in which case I'm stopped up for 2-3 days before the diarrhea resumes.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,156
    • Most Online (within 30 mins)
      7,748

    Kelley Stowe
    Newest Member
    Kelley Stowe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Dora77
      It wasnt really eye catching, but they were small stains which looked like dried out liquid. I dont know if it was normal or shouldve been just completely clean. But if someone didnt pay attention, it wouldnt be noticeable.
    • RMJ
      If there were stains or particles on a drink can in an area that would either contact the drink or my lips, I would wash that can whether or not I had celiac disease.
    • Bebygirl01
      You are on the money, but I should also add that Italian, French and other countries research shows exactly what I have said. Our FDA is behind the ball when it comes to this research and I am hopeful that Kennedy can straighten this out soon, albeit he is giving the food companies too long to just remove food dyes from our foods when in fact they have to remove all that in order to sell for example, in the UK as they aren't allowed such things. The food companies and the cola companies have also changed their formulas to have just sugar in them instead of corn gluten aka high fructose corn syrup and corn starch in them. Misinformation here in America is a very dangerous thing. I also have been grain free for a long time now and at no time can I even have the smallest amount of corn gluten -I recently got glutened from a supplement that claimed to be grain free yet upon further research I found that it had erythritol (corn sugar) in it and that is what got me sick for 7 days straight. I am not hopeful to ever be able to add back into my diet any of the grain glutens, but perhaps those who were only gluten intolerant might be able to, but for me being celiac, I have no hope in that. Thank you for the article, I will add it to my collection of research as I am collecting everything I can find on this subject and posting it on X as well as other places.  I also don't use psuedo grains i.e. quinoa as that also reacts negatively with my gut, so I am 100% a cassava/tapioca/arrow root girl and that is my go to bread replacement. There are some new items made with chicpea/green peas that are sold as rice alternatives, i bought one to try but haven't yet. So food companies are getting creative, but like you said, I am fresh whole foods and don't buy many processed foods, I make my own cheese, ketchup, pickles, jams, etc.
    • Dora77
      There were small spots (stains) on the drinking area at the top of the energy drinks can from the store that looked as the same color as milk — maybe oat milk (Hafermilch) or a wheat-based drink (Weizendrink), but I’m not sure what it was. There were also some particles that looked like either flour or dust, but not many. Could it have been a gluten-containing drink spilled onto the can or just regular small stains which I shouldn‘t worry about? Do you watch out for stuff like that or am I overthinking? Would it cause damage to a celiac?
    • Scott Adams
      This is such an important discussion! While corn gluten (zein) is structurally different from wheat gluten, emerging research suggests some celiac and gluten-sensitive individuals may still react to it, whether due to cross-reactivity, inflammation, or other factors. For those with non-responsive celiac disease or ongoing symptoms, eliminating corn—especially processed derivatives like corn syrup—might be worth exploring under medical guidance. That said, corn’s broader health impact (GMOs, digestibility, nutritional profile) is a separate but valid concern. Like you mentioned, ‘gluten-free’ doesn’t automatically mean ‘healthy,’ and whole, unprocessed foods are often the safest bet. For those sensitive to corn, alternatives like quinoa, rice, or nutrient-dense starches (e.g., sweet potatoes) can help fill the gap. Always fascinating (and frustrating) how individualized this journey is—thanks for highlighting these nuances! Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...